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View Full Version : Neurologist needed--put this in plain English please!


SoulFrost
04-11-2001, 10:15 PM
A relative of mine has recently been diagnosed with "something" growing in his brain. Originally, it was thought to be possibly a calcium deposit, but evidently, that has been ruled out.

These are the MRI results. If I'm reading this correctly, these are the two main candidates for what it could be...but I'm unsure of exactly what it all means.

Of course, the results will be interpreted by a professional in a couple of days--but if someone could explain this, it would help his family and friends move past the "we just have to wait" stage.



MRI of the brain with and without Omniscan

Technique:
T2 weighted fast-spin echo sagittal and axial images are submitted, as well as a FLAIR coronal sequence. Additionally, a T1 weighted spin echo axial sequence is obtained. After the administration of a 16 cc Omniscan, T1 weighted echo axial images are acquired. The study was performed on the Marconi 0.23 Tesla proview open magnet.

Findings:
There is an enhancing mass in the posterior aspect of the right lateral ventrical. The mass measures 1.5 cm in width and 1.9 cm in length, anterior to posterior. The mass does appear to contain some calcification, although this might be better detected on CT. There is heterogeneous but predominatly intermediate intensity on T2 while it is predominatly isointense on T1. Enhancement is moderate. The mass does not appear to be aggressive. The most likely diagnosis is ependymoma, subependymoma, or neurocytoma. Also to consider in the differential diagnosis would be chorid plexus papilloma and carcinoma, meningioma, astrocyloma, hemangioma, and xanthogranuloma.

There is no evidence of ventricular dilatation. Ventricals and basil cisterns are otherwise unremarkable. Midline structures are normal, and there is no evidence of midline shift.

There are no other signs of intracranial mass or abnormal fluid collection. Normal signal void is seen in the internal carotid and basilar arteries. There is no evidence of abnormality within the mastoid air cells. There is minimal increased signal intensity within the posterior maxillary sinuses consistant with mild sinusitis.

Impression:
1.9 X 1.5 cm right Choriod Plexus mass. Suspect most likely an ependymoma or neurocytoma. Differential diagnosis provided above.


and


NEUROCYTOMA, CENTRAL
This rare, grade I, benign tumor typically occurs in a lateral ventricle in the region of the foramen of Monro, and occasionally extends into the third ventricle as well. It is supplied by many blood vessels. The central neurocytoma shows mature cells, similar to normal neurons of the gray matter, although their cell of origin is unknown. It is most common in young adult males. Symptoms are those associated with increased intracranial pressure: headache, nausea and vomiting, drowsiness, vision problems and mental changes.

Standard treatment is surgery, which is often successful. Excessive bleeding can limit the extent of tumor removal however. The routine use of radiation therapy as an adjuvant therapy is still under discussion.


EPENDYMOMA
An ependymoma arises from the ependymal cells that line the ventricles and central canal of the spinal cord. Ependymomas represent about 6% of all gliomas, and 10% of all childhood brain tumors. About 65% of ependymomas occur in the posterior fossa, the lower back portion of the brain. The remainder are found higher in the brain or in the spinal cord. Ependymomas are more common in children, but they also occur in adults.

About 10% of these tumors, particularly those of higher grade, spread via the cerebrospinal fluid (CSF). A spinal MRI with gadolinium enhancement can often detect if spread has occurred. A spinal tap is performed to test the CSF for the presence of tumor cells.

There are two types of grade I, benign ependymomas: myxopapillary ependymoma

commonly found in the spine; and subependymoma. The subependymoma most often arises in the 4th ventricle; the second most frequent location is one of the lateral ventricles. The grade I tumors might be treated by surgery alone if the tumor is totally removed. Radiation therapy may be recommended following surgery if any tumor remains. The papillary, cellular, and clear cell ependymomas are grade II tumors. These tumors are most frequently located in the fourth ventricle and the midline area. The extremely rare papillary ependymoma is located in the cerebellopontine angle. Anaplastic ependymoma is the grade III, malignant form of this tumor, and its typical location is the cerebral hemispheres.

The rare ependymoblastoma, a high-grade, grade IV tumor, is more common in children and is classified as a PNET (primitive neuroectodermal tumor) in some systems.

An ependymoma can also be classified as "low-risk" or "high-risk," based on the location of the tumor and if tumor cells are found in the cerebrospinal fluid. Tumors in the fourth ventricle and midline are often more difficult for the neurosurgeon to access than those located in the cerebral ventricles.

The usual treatment for the higher grade tumors is surgery followed by radiation therapy to the brain and spinal cord. A shunt is often necessary to relieve the increased intracranial pressure that frequently accompanies this tumor. Chemotherapy or a form of local radiation might be used for recurrent tumors. Clinical trials using chemotherapy for initial treatment along with surgery and radiation are available. In very young children (under the age of three), chemotherapy might be used to delay radiation.



Forgive any spelling errors--I hand-copied this from scanned bitmaps of the original docs.

Thanks!
David

SoulFrost
04-11-2001, 10:24 PM
FTR, he had a physical a couple of weeks ago, and the doctors couldn't believe that he is 50-ish, and a moderate smoker and drinker.

Except for this, he really is in great shape.

-David

SoulFrost
04-11-2001, 10:29 PM
Geez...yet more information, if it'll help:

He has worked for several years with gasoline. Six or seven days a week, he's breathing those fumes...but I don't know how that would affect the above.


About 15 years ago, he was involved in a BAD motorcycle wreck--severe head damage was involved, but I don't know the specifics.

There was no lasting apparent brain damage, though--the guy's smart, as well as physically fit!

-David

Duck Duck Goose
04-12-2001, 08:39 PM
Jeepers. :eek: I'm sorry about your friend, SF. IANA neurologist, but you don't need a neurologist to tell you he has a brain tumor. What you need to do is sit down with a medical dictionary and look stuff up.

http://www.medterms.com/script/main/AlphaIdx.asp?p=A_DICT

(You can also look for other medical dictionaries on Google under "medical dictionary".)

But it looks to me like the stuff you posted already answers your question.
There is an enhancing mass in the posterior aspect of the right lateral ventrical. The mass measures 1.5 cm in width and 1.9 cm in length, anterior to posterior.
He has a "mass" in his brain. That's neurospeak for "tumor". The rest of the sentence just says how big it is, and exactly where it's located.
The most likely diagnosis is ependymoma, subependymoma, or neurocytoma. Also to consider in the differential diagnosis would be chorid plexus papilloma and carcinoma, meningioma, astrocyloma, hemangioma, and xanthogranuloma.
It could be one of several different kinds of tumors. You can go and look those up, but, again, the stuff you already posted seems to answer most of your questions. You can also do a Google search under "brain tumors" and get tons of info.

Overall, what you've posted doesn't sound too bad. "None" of this, "none" of that. I am personally acquainted with a person who has recurring brain tumors, and she's still walking around.

AFAIK there's no direct correlation between exposure to gasoline fumes or being in a motorcycle accident with head damage, and developing brain tumors. It's just one of those things.

Verrain
04-12-2001, 11:55 PM
Not too much to add to that. I am not a neurologist either but I work on cancer as a scientist so I know a little. The brain tumor is still quite small as tumors so it seems you've caught it early which is always a plus. All those different -noma names are tumors that arise from different populations of cells in the brain. SOme are worse than others. From the description it sounds like the one found is on eof the less dangerous types. All in all, the news sounds as positive as you get when starting with the phrase You have a brain tumor.

SoulFrost
04-13-2001, 02:01 AM
Thank you Duck Duck Goose and Verrain!

I appreciate the time you took looking this stuff up and responding.


We tried looking up most of the terms, but that really only led us to looking more terms...it was confusing to say the least.

For instance, who knew that the brain has ventricals...on first reading, I thought what's his heart got to do with anything?


The appointment with the Neurologist turned out to be an appointment with a Neurosurgeon instead...the distinction still being a bit murky to me.

The good news (paradoxically enough) is that he's evidently had the tumor for a very long time. According to the doctor, it's probably grown as much as it's going to...and since it hasn't killed him yet, it probably won't.

It's inoperable, but that doesn't matter because it isn't harming him, and it's not responsible for the headaches which prompted the MRI...and that strikes me as very odd--something can grow in an organ as important as the brain without causing any real problems.


Well, if nothing else, this is certainly a learning experience!


Thank you for the link, DDG...and best wishes to your friend with the tumors.

Thank you for your encouragement, Verrain. It's appreciated.

:)
David

barbitu8
04-13-2001, 07:30 AM
A neurosurgeon can perform brain surgery. A neurologist cannot, just as an orthopedic surgeon can operate while an orthopedist cannot. And you dare not call an orthopedic surgeon an orthoedist. They take umbrage at that slight.

A "mass" is a mass and altho IANAN or even a doctor this does not necessarily mean a tumor, IMHO. Altho all the diagnoses are tumors, it could be a cyst. The fact that it does not appear to be aggressive indicates that it is probably benign.

Chas.E
04-13-2001, 08:51 AM
I should note that "ventricle" is just a generic anatomical term and there are structures called ventricles in the brain as well as the heart.
This is something you really should be dealing with directly with your neurosurgeon. There are cancerous tumors that are nonmalignant, and there are noncancerous tumors that are terminal. Only the neurosurgeon knows what is going on. Neurosurgery is heavy duty surgery, but they've gotten a lot better at it, and with MRI and other high-tech scans, you stand a lot better chance of discovering these tumors when they're still easily operable.

psychobunny
04-13-2001, 04:28 PM
I am not a neurologist but I am a doctor. Let me see if I can translate.

An MRI is a scan that can look at the brain in several ways, T1 and T2. Your friend has a mass. It is not a cyst becuase an MRI would have shown this. It enhances with contrast meaning there is blood flow to the mass (it is not "dead tissue"). It could be one of a number of tumors.

Brain tumors do not usually spread to distant areas (metastasize) so they are classified as benign or malignant based on how fast they grow. They cannot tell from the scan exactly which form of tumor your friend has.

The only way to tell would be to do a biopsy of the area, which is why your friend saw a neuroSURGEON, who does surgery on the brain. By what you posted, it looks like this growth cannot be easily biopsied but does not appear to be growing quickly. They will probably watch it with periodic scans.

A neurologist, in contast, treats neurologic diseases (brain diseases) that do not require surgery, such as Parkinson's, Multiple Sclerosis, of Strokes. An Orthopedist is just another name for an Orthopedic Surgeon (the closest non-surgical specialist to an Orthopedic Surgeon would probably be a Rheumatologist) but there is a distinction between, for example, a Cardiologist (treats heart disease without surgery) and a Cardiac Surgeon (does surgery on the heart). Hope this helps a little.

barbitu8
04-13-2001, 04:37 PM
Originally posted by psychobunny
An Orthopedist is just another name for an Orthopedic Surgeon (the closest non-surgical specialist to an Orthopedic Surgeon would probably be a Rheumatologist) but there is a distinction between, for example, a Cardiologist (treats heart disease without surgery) and a Cardiac Surgeon (does surgery on the heart). Hope this helps a little.

This is not on the OP, but I see a lot of doctors at the MUSC wellness center and I said to one, "Oh, you're an orthopedist." He said, quite miffed, "I am an orthopedic [B]SURGEON [/B}"

lucky henry
04-13-2001, 08:56 PM
Just a note to confirm what several people above had said.

I'm not an MD, but I'm Assistant Director of a hospital Radiology Department. (Translation - I perform CT scans on patients all morning, and do mounds of paperwork all afternoon)

Let's look on the bright side; if you gotta have a brain tumor, this is the kind you want. Since it is in a ventrical and not in the brain tissue itself, it's not putting any pressure on the brain tissue, or restricting blood flow to the brain. Also, as noted in the radiology report, there is no abnormality in the midline structures and no mid line shift. (Again, this is because the mass is in a ventrical, and is not pushing against brain tissue.)

I would guess that your relative's doctor will recommend periodic re-scans, every year or so, even if no new symptoms develop to check for growth of the mass.

Lyra
04-15-2001, 07:53 PM
Well, IANAD, but my mother was diagnosed this week with a meningioma. This is also a benign type tumor of the brain. My mom went to see a Neurosurgeon to see what the next step should be. There is something new that doctors are using as an alternative to surgery but still does the job if the tumor must be removed. It is called the gamma knife. Apparently it is non-invasive, using radiation to get rid of the tumor. I wasn't able to go to the appointment with her, so I don't have all of the details. I do know that she was told that the larger brain tumors get the faster they grow and that even benign tumors can become cancer if they get big enough. So the best option is usually to remove the tumor. It is very new and to my knowledge there is only 1 hospital in our region that has it. Another hospital will have it in 6 months, because it is a universtiy teaching hospital. Surgery is not a bad option, but if the gamma knife works just as well, it is probably alot less traumatic for a person to go through. Have your friend ask his doctor about it. If you live near a large city, I am sure they will have it. I hope all goes well with your friend.