Stem Cell medical technology. Is this even possible? Scam?

[Inner Stickler]

Originally Posted by 2012User

I've read the whole thread and I see a lot of negativity but nothing to back it up other than personal opinion.

Then you also suck at reading. The onus is not on us to prove that his quack treatments don't work, it's on him to prove that they do. Until he can provide convincing objective evidence from a well-thought out methodology with repeatable results, we can't reject the null hypothesis.

[runner pat]

Originally Posted by 2012User

Details of the injury and the treatment will follow as it unfolds. Photos and videos will be maintained for supporting documentary evidence.

Why would an ordinary patient have such a stake in proving a treatment work to a bunch of total strangers? I changed my mind. You're a shill.

[2012User]

Originally Posted by Inner Stickler

I'm not, other than if you really hate it so much, I'd be willing to take it off your hands and I wouldn't endanger your health in the process, I already know it doesn't work, yeah, I discourage people from making bad choices, the sanctimony comes at no extra charge, if you think it's a good idea to waste your money on crank nonsense and quackery, I'm not surprised you don't understand why.

Again - you put forward no valid argument. Do you know first hand that it does not work? I will give you that satisfaction if it is indeed so, then you will have your hard proof (if it turns out that way) but I can tell you fro first hand knowledge of someone that I know that has shown remarkable improvement (two people actually). Had I not known them myself, I too would be doubtful especially after all the negative opinions posted here. I will see for myself and report to you all - good or bad.

Nothing further to discuss at this point.

[Inner Stickler]

We really don't care as you getting better wouldn't be proof one way or the other.

[2012User]

Originally Posted by Inner Stickler

We really don't care as you getting better wouldn't be proof one way or the other.

Then there is no pleasing you - you don't want to know and you are happy in your ignorance, afraid of finding out that you may be wrong. If I am cured you would find some reason to convince yourself that it was because of something else.

So what would be proof to you? Documented evidence is not going to be enough? Just admit that you are a non-believer and no amount of evidence will change your mind. If that is your position then you have nothing to "contribute" to this thread, your sole purpose is to bash this person and his procedure. It is a forum for discussion not persuasion - let the facts unfold and present to everyone what transpires and let them form their own opinion based on fact.

[Inner Stickler]

Originally Posted by 2012User

So what would be proof to you?

Multiple objective double-blind medical trials that show a statistically significant link between the remission of the illness and the treatment course.

One person getting better means nothing as it's not statistically significant.

[2012User]

Originally Posted by runner pat

Why would an ordinary patient have such a stake in proving a treatment work to a bunch of total strangers? I changed my mind. You're a shill.

I have nothing to prove or disprove - I am about to start the treatment and offered my experience to all - good or bad. Instead you choose to call me names? Should I just refrain from sharing this with everyone regardless of the outcome? That makes no sense as I am sure some people would really like to know.

Perhaps I have the wrong impression of this forum. I thought the site sought to determine if something was a scam or not. It seems it is a bashing site.

[Inner Stickler]

Scams deserve to be bashed.

[Czarcasm]

Originally Posted by 2012User

Then there is no pleasing you - you don't want to know and you are happy in your ignorance, afraid of finding out that you may be wrong. If I am cured you would find some reason to convince yourself that it was because of something else.

So what would be proof to you? Documented evidence is not going to be enough? Just admit that you are a non-believer and no amount of evidence will change your mind. If that is your position then you have nothing to "contribute" to this thread, your sole purpose is to bash this person and his procedure. It is a forum for discussion not persuasion - let the facts unfold and present to everyone what transpires and let them form their own opinion based on fact.

What precisely will this documented evidence consist of? Photos and videos have previously shown us that aliens destroyed Washington DC and Godzilla regularly lunches aton Tokyo. What we would need is an independent medical report on your condition before and after treatment, for a start. Will you provide this?

[2012User]

Originally Posted by Inner Stickler

Scams deserve to be bashed.

If it is a scam it deserves to be exposed........ It also deserves to be validated if it is not a scam.

Not one of the writers has said that they have tried the treatment and it did not work. One of the writers has said that they tried it and it worked.
I am about to start and offering to let you know if it works or not.

I will post my experience regardless of what you think.

[2012User]

Originally Posted by Czarcasm

What precisely will this documented evidence consist of? Photos and videos have previously shown us that aliens destroyed Washington DC and Godzilla regularly lunches aton Tokyo. What we would need is an independent medical report on your condition before and after treatment, for a start. Will you provide this?

I already have the before treatment medical reports from doctors and medical institutions on two continents and will provide the after reports if things change. I have nothing to prove or to hide - I am only offering to share my experience and back it up with whatever it takes should it prove successful or a failure.

[Czarcasm]

Originally Posted by 2012User

If it is a scam it deserves to be exposed........ It also deserves to be validated if it is not a scam.

Not one of the writers has said that they have tried the treatment and it did not work. One of the writers has said that they tried it and it worked.
I am about to start and offering to let you know if it works or not.

I will post my experience regardless of what you think.

Will you post independent medical examinations before and after the treatments?

edited to add: it does us no good for you to see the "before" reports and us to see the "after" reports-for all we know you are already healthy.

[Inner Stickler]

Originally Posted by 2012User

If it is a scam it deserves to be exposed........ It also deserves to be validated if it is not a scam.

Your posting about your experience on a message board is not validating it, though.

[2012User]

Originally Posted by Czarcasm

Will you post independent medical examinations before and after the treatments?

See my response above this, I also have video and photos over the last 5 years to add to the timeline. You will see the age difference over the years.

[2012User]

Originally Posted by Czarcasm

Will you post independent medical examinations before and after the treatments?

edited to add: it does us no good for you to see the "before" reports and us to see the "after" reports-for all we know you are already healthy.

When the time comes I will post it - should I have the before reports notarized for you?

[Inner Stickler]

This is not a scientific journal. Any consensus about the efficacy of a medical treatment made here is, at best, an opinion. Only a few regular contributors are remotely qualified to judge someone's health state and they would balk at saying anything definite from viewing photos and videos. Posting stuff here will not prove the legitimacy of the treatment but it is behavior consistent with shysters attempting to hoodwink others.

[Czarcasm]

Originally Posted by 2012User

See my response above this, I also have video and photos over the last 5 years to add to the timeline. You will see the age difference over the years.

None of that matters worth a damn. We don't need a flood of information-we need the pertinent information. An independent medical examination, performed fairly recently so that any healing couldn't have happened in the meantime, showing exactly what is wrong with you, followed by an independent medical examination performed as soon as possible after the treatment to show what has been healed. We don't need your videos, and we have no way of knowing the source of any photos you may send us.

[2012User]

Originally Posted by Inner Stickler

This is not a scientific journal. Any consensus about the efficacy of a medical treatment made here is, at best, an opinion. Only a few regular contributors are remotely qualified to judge someone's health state and they would balk at saying anything definite from viewing photos and videos. Posting stuff here will not prove the legitimacy of the treatment but it is behavior consistent with shysters attempting to hoodwink others.

I like your choice of words.."is at best, an opinion", just as the rest of the posters here - it is just an opinion that it is a scam. As you rightly state later on "posting stuff....is behavior consistent with shysters attempting to hoodwink others" - which is exactly what you are doing.

[2012User]

Originally Posted by Czarcasm

None of that matters worth a damn. We don't need a flood of information-we need the pertinent information. An independent medical examination, performed fairly recently so that any healing couldn't have happened in the meantime, showing exactly what is wrong with you, followed by an independent medical examination performed as soon as possible after the treatment to show what has been healed. We don't need your videos, and we have no way of knowing the source of any photos you may send us.

Medical examination performed as soon as possible after? It is not an instant miracle cure, if that is what you are hoping for then no wonder you believe it is a scam. Stem Cell takes time to perform and get the job done. Come on i though you guys were better than that.

[psychobunny]

Do you understand that even if your disease goes away this is not proof that this "procedure" works? I can give a thousand children with autism 8 oz of apple juice every day and there will likely be at least one whose symptoms improve or even disappear. Is this proof that apple juice cures autism? I hope that whatever ails you improves but that in no way constitutes proof that the procedure works. Anecdotal evidence != data.

[Inner Stickler]

Originally Posted by 2012User

I like your choice of words.."is at best, an opinion", just as the rest of the posters here - it is just an opinion that it is a scam.

No. When the claims is, "This treatment cures illness X," the null hypothesis says "This treatment has no effect on illness X." If no evidence is brought forth that disproves the null hypothesis then the treatment can be assumed a scam as we can't reject the null hypothesis.

As you rightly state later on "posting stuff....is behavior consistent with shysters attempting to hoodwink others" - which is exactly what you are doing.

Have a failstamp.

[2012User]

Originally Posted by psychobunny

Do you understand that even if your disease goes away this is not proof that this "procedure" works? I can give a thousand children with autism 8 oz of apple juice every day and there will likely be at least one whose symptoms improve or even disappear. Is this proof that apple juice cures autism? I hope that whatever ails you improves but that in no way constitutes proof that the procedure works. Anecdotal evidence != data.

Thanks to you all.......... now I know that nothing posted on this thread has any credibility at all. Just a bunch of bashers. I never said that I had autism. The thread started out questioning the stem cell treatment procedure. One person spoke about autism, another about cancer. I never said what my problem was - SCI, TBI, MS, Parkinsons, Cancer, whatever.

You are not interested in finding out anything so I will find a site that actually wants to know or learn something about the experience. perhaps just post it in YouTube for those who want to know.

Good luck in life and I hope you never find yourself in a position of severe illness/condition with a hope of a cure only to have some hater try to crush you for no valid reason.

I will pray for you all.

[Czarcasm]

Originally Posted by 2012User

Thanks to you all.......... now I know that nothing posted on this thread has any credibility at all. Just a bunch of bashers. I never said that I had autism. The thread started out questioning the stem cell treatment procedure. One person spoke about autism, another about cancer. I never said what my problem was - SCI, TBI, MS, Parkinsons, Cancer, whatever.

You are not interested in finding out anything so I will find a site that actually wants to know or learn something about the experience. perhaps just post it in YouTube for those who want to know.

Good luck in life and I hope you never find yourself in a position of severe illness/condition with a hope of a cure only to have some hater try to crush you for no valid reason.

I will pray for you all.

No thank you-go prey on someone else.

[psychobunny]

I never said you had autism-I used it as an example. My mind is open to actual scientific proof. Just show me evidence in the form of double-blind studies published in a respected peer-reviewed journal and I will be the first to tout your therapy. However, if all you give me is one person with anecdotal evidence and I will still ask for scientific proof.

[DrFidelius]

I have been drinking a certain herbal extraction every day for five years now. I can provide sworn statements that my lungs are clear of tuberculosis at this time, and in fact do not show any of the scarring associated with tuberculosis. I also have not had a seizure in that time. If that doesn't prove it works, then I don't know what does.

[Andy L]

Originally Posted by 2012User

Thanks to you all.......... now I know that nothing posted on this thread has any credibility at all.

I knew that several posts back.

[Bridget Burke]

Originally Posted by Inner Stickler

Multiple objective double-blind medical trials that show a statistically significant link between the remission of the illness and the treatment course.......

Which should be easily available in peer reviewed scientific journals. When will we get the cites? (Repeating another poster's admonition against holding your breath.)

[Marley23]

Please tone down the comments about shills and bashers. If this thread is going to stay open, it needs to be a discussion of the issue.

That said, 2012User, I don't think this board is the appropriate place for a years-long chronicle of your treatment. You can't post photo and videos here anyway. This sounds like a better subject for a blog, so I recommend you start one of those and just discuss the issue and your experiences here in a general way.

[Czarcasm]

2012User, do you know of any double-blind studies that support the therapy you intend to participate in?
What is the overall cost of the therapy?
What exactly are you being treated for?

[Acid Lamp]

2012user Just grab any of the thousands of free webpages out there, scan your documents in and we'll perhaps believe that you are legitimate. There is no need to wait for some special time or after treatment etc. Just post the stuff you have NOW and chronicle your experience.

[exborg]

2012user wrote
".. I will find a site that actually wants to know or learn something about the experience. perhaps just post it in YouTube for those who want to know."

I, and several others I know personally, have had one or two autologous stem cell treatments each and I would be genuinely interested in sharing our experiences.

This is leading-edge technology in its early stages so there will be a lot to learn along the way and it, like all new paradigms, will be assailed mercilessly by all the bots until it is finally accepted as self-evident, after much unnecessary suffering.

Meanwhile, dispassionate, rational, discourse can be hard to find. I invite you to get in touch if you like. I may answer a few honest questions here but I will not participate in trying to prove or disprove anything in this forum.

[Smeghead]

Originally Posted by exborg

This is leading-edge technology in its early stages so there will be a lot to learn along the way and it, like all new paradigms, will be assailed mercilessly by all the bots until it is finally accepted as self-evident, after much unnecessary suffering.

This sort of self flagellation is completely unnecessary. IF a treatment works, it's a straightforward, though admittedly expensive, thing to prove it. Wonderful amazing medical technologies are NOT being held back because the stodgy ol' powers that be are unable to wrap their heads around the new paradigm shift. When people begin to resort to those types of claims, it's pretty much guaranteed that they do so because the treatment DOESN'T WORK. If it does, it can be proven. If it doesn't, then all sorts of fanciful excuses need to be invented to hide that fact.

[Czarcasm]

At what clinic is your therapy taking place, and what procedures are you undergoing?
Have the procedures used been published in any peer-reviewed journals?

[Czarcasm]

Originally Posted by exborg

Meanwhile, dispassionate, rational, discourse can be hard to find. I invite you to get in touch if you like. I may answer a few honest questions here but I will not participate in trying to prove or disprove anything in this forum.

Are you saying that you will only exchange information through email? If you give me information through email, am I allowed to talk about it in this forum?

[WhyNot]

Originally Posted by exborg

I, and several others I know personally, have had one or two autologous stem cell treatments each and I would be genuinely interested in sharing our experiences.

This is leading-edge technology in its early stages so there will be a lot to learn along the way and it, like all new paradigms, will be assailed mercilessly by all the bots until it is finally accepted as self-evident, after much unnecessary suffering.

Meanwhile, dispassionate, rational, discourse can be hard to find. I invite you to get in touch if you like. I may answer a few honest questions here but I will not participate in trying to prove or disprove anything in this forum.

I am very glad that you're feeling better. But I wonder if you would answer a question for me: how is it that medical knowledge advances at all, if "the bots" assail all new medical breakthroughs "mercilessly"?

Why is it that, say, the skin cell gun has had grants and studies and news coverage and continues to be researched? I mean, that's a pretty far out there idea for curing second degree burns. It sounds like total bizarre quackery. And yet, the bots aren't assailing it mercilessly. The kinks aren't all worked out, it's only been used successfully on a couple handfuls of patients, but it's still garnering a lot of interest from legitimate medical professionals. Why aren't They scoffing at it, but they scoff at this particular stem cell procedure?

The answer I would put forth is that your assumption that They try to stop all new and innovative treatments is simply wrong. They are actually very interested in new and innovative treatments...as long as those treatments seem promising. As long as a researcher can propose a likely mechanism of action and demonstrate - in an open manner to other trained professionals - how the therapy can and does work on even a small number of people, then They keep their minds open and the research flowing.

While the calls in this thread have been for repeated large scale double blind placebo controlled studies, I warrant we don't even really need that much. Find as much openly shared well documented (that means by medical professionals, not patients themselves) information on a double handful of patients who have successfully been treated with this therapy, and minds will stay open enough to at least look for further developments.

The fact that this "stem cell" technology can't provide evidence on par with the mere dozen patients that have been helped with the skin cell gun tells me something. It tells me that there isn't any such evidence, and it's not because of Them, The Medical Establishment, it's because the fraudulent doctors selling this stem cell therapy are intent on misleading the public and the medical establishment for as long as possible.

[Czarcasm]

Originally Posted by exborg

Meanwhile, dispassionate, rational, discourse can be hard to find. I invite you to get in touch if you like. I may answer a few honest questions here but I will not participate in trying to prove or disprove anything in this forum.

Update: I emailed the same day exborg posted this.
No response at all.

[aruvqan]

To be quite honest, unless the doctor that is proposing some form of stem cell procedure is not allied with a very small handful of research programs, chances are it is pretty much a scam.

I am a medical guinea pig, and there are stem cell research projects going on, but they are quite specific in the patients they admit to the programs and they screen their candidates through other medical groups. Typically, if I were to get accepted in one for [fore example] diabetes, my endocrinologist would propose me to the research group because I fit very very VERY specific criteria. I got in to see one of the top Parkinsons researchers in the country because my regular neurologist was his university roommate ... though I admit I wasn't trying to get into the program, my neuro wanted him to check me out. So unless your regular doctor has an in with a research group, it is most likely a scam.

[Sage Rat]

Originally Posted by 2012User

Do you know first hand that it does not work?

In my first post, I pointed out that various branches of the government were active in prosecuting this organization for criminal malfeasance. Do you have any reason to distrust the government's ability to discern a crook from a doctor?

[Czarcasm]

Weird email just received:

Hi,

My name is Kat Salem and I saw your post on a message board which I have attached below. My friend and I are looking for stem cell therapy and in our short time in research, we are realizing how much there is to learn and how it's quite possible to make the wrong choices. In this regard, we are looking to hire a consultant with a medical background, such as yourself, to guide us and act as an advisor with research and answering our questions.

Its a short consultation contract, would you be interested?

We are not dealing with any serious illnesses, our goal is just to receive the benefits of stem cells in regards to regeneration and we would like to select the right doctor. We were just about to book with Dr. Mitrani and found the thread on straightdope.com.

Looking forward to your reply.

Regards,

Kathy

P.S. Here is the copy of your post in case you dont remember. We liked your answer.


WhyNot WhyNot is online now
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Join Date: Jul 2004

I am very glad that you're feeling better. But I wonder if you would answer a question for me: how is it that medical knowledge advances at all, if "the bots" assail all new medical breakthroughs "mercilessly"?

Why is it that, say, the skin cell gun has had grants and studies and news coverage and continues to be researched? I mean, that's a pretty far out there idea for curing second degree burns. It sounds like total bizarre quackery. And yet, the bots aren't assailing it mercilessly. The kinks aren't all worked out, it's only been used successfully on a couple handfuls of patients, but it's still garnering a lot of interest from legitimate medical professionals. Why aren't They scoffing at it, but they scoff at this particular stem cell procedure?

The answer I would put forth is that your assumption that They try to stop all new and innovative treatments is simply wrong. They are actually very interested in new and innovative treatments...as long as those treatments seem promising. As long as a researcher can propose a likely mechanism of action and demonstrate - in an open manner to other trained professionals - how the therapy can and does work on even a small number of people, then They keep their minds open and the research flowing.

While the calls in this thread have been for repeated large scale double blind placebo controlled studies, I warrant we don't even really need that much. Find as much openly shared well documented (that means by medical professionals, not patients themselves) information on a double handful of patients who have successfully been treated with this therapy, and minds will stay open enough to at least look for further developments.

The fact that this "stem cell" technology can't provide evidence on par with the mere dozen patients that have been helped with the skin cell gun tells me something. It tells me that there isn't any such evidence, and it's not because of Them, The Medical Establishment, it's because the fraudulent doctors selling this stem cell therapy are intent on misleading the public and the medical establishment for as long as possible.

[Santos L Halper]

Originally Posted by Czarcasm

Weird email just received:

much the same message was posted by a newbie in this thread and is now gone. It was between posts 87 and 88, iirc.

[WhyNot]

Originally Posted by Czarcasm

Weird email just received:

Oh, hey, man, thanks for taking my messages for me...


No, seriously, weird. And I haven't gotten anything, either by PM or at the email address I use here.

[Smeghead]

I got the same PM, but the user who sent it has been banned. Some weird scam spam, no doubt.

[stemcellblogger]

First a disclaimer. I am a stem cell writer/author/advocate. While you may think this means I have an agenda (I do, to help patients get better), I am very careful to site real data sources for my info. My "opinions" are based on science. [For example, I am uninterested in embryonic stem cells because they will not produce treatments for decades, they cause cysts and tumors and they require immunosuppressive drugs.]

Many of my sources are from my own blog so if you find this too self-referential or if you find any data lacking on a specific subject, please ask and I will tell you where I got my original data from. Please feel free to comment on my blog. It is an open forum on the benefits of adult stem cell treatments. I welcome all intelligent and rational communication and my site is not monetized so I make no money if you go there, comment or otherwise.

Ok, there's a lot of misinformation on this thread. Let's clear it up.

ADULT STEM CELLS or ASC (via)
SOURCE/DERIVED FROM•comes from blood, umbilical cords, bone marrow, placenta fat tissue, muscle, nasal neurological, breast milk, menstruation, dental pulp, lungs, eyes, brain and many more
PURPOSE IN BODY•they are the body’s natural healing cells
OBSTACLES+SIDE EFFECTS•virtually zero side negative effects, many positive side effects
TREATMENT HISTORY•used in bone marrow transplants to treat cancer for 40 years, can currently treat 130+ diseases safely and effectively (CP, MS, Autism, Diabetes, CHF, PAD, etc)

Blood derived stem cells are a very valid source of stem cells and many treatment centers and clinical trials using blood derived stem cells for years with extremely positive results. The first stem cell treatment center in the world generated significant therapeutic benefit for over 62% of their congestive heart failure patients. These are called no option CHF patients because their only recourse is a heart transplant. 62% of "no option" CHF patients derived significant therapuetic benefit, sometimes doubling their Ejection Fractions (amount of blood pumped out by the heart). But this is anecdotal, let's talk data.

What data is their showing that stem cell treatments work?
Anecdotal and 10's of thousands of patients treated aside...as of late 2009, according to the National Institutes of Health, there were and are ~2600 stem cell clinical trials around the world – http://www.clinicaltrials.gov/
Of those ~2600, there are ~2591 mentions of adult stem cells.
Of those ~2591, about half of them (~1300) are actual adult stem cell clinical trials.

Currently, as of today, there are 3,989 clinical trials under keyword search "stem cell" illustrating the safety and efficacy of utilizing stem cells to treat chronic and terminal diseases. Many are from reputable colleges and hospitals around the world, some in the US like Duke U., Northwestern, etc.

How about for Autism? (I apologize, my data has not kept current but as of late 2009)
https://repairstemcell.wordpress.com...ls-for-autism/
and https://repairstemcell.wordpress.com...ts-for-autism/

Please also look at the 29,500 scholarly papers submitted on "stem cell" plus "autism" minus embryonic:
http://scholar.google.com/scholar?as...%2C39&as_vis=1

As for Dr Mitrani, I've done some research. Mitrani's site makes no guarantees and he is very specific in saying stem cells are not a cure. The 60 Minutes Expose was about Dr Kulper who has no affiliation with Dr Mitrani and Mitrani never went to Guatemala to coerce school children into getting treatments.

I will post this a few other places so people can base their opinions on fact, not emotional reaction. Thanks for the opportunity to present my thoughts.

[stemcellblogger]

First a disclaimer. I am a stem cell writer/author/advocate. While you may think this means I have an agenda (I do, to help patients get better), I am very careful to site real data sources for my info. My "opinions" are based on science. [For example, I am uninterested in embryonic stem cells because they will not produce treatments for decades, they cause cysts and tumors and they require immunosuppressive drugs.]

Many of my sources are from my own blog so if you find this too self-referential or if you find any data lacking on a specific subject, please ask and I will tell you where I got my original data from. Please feel free to comment on my blog. It is an open forum on the benefits of adult stem cell treatments. I welcome all intelligent and rational communication and my site is not monetized so I make no money if you go there, comment or otherwise.

Ok, there's a lot of misinformation out there. Let's clear it up.

ADULT STEM CELLS or ASC - https://repairstemcell.wordpress.com...s-for-newbies/
SOURCE/DERIVED FROM•comes from blood, umbilical cords, bone marrow, placenta fat tissue, muscle, nasal neurological, breast milk, menstruation, dental pulp, lungs, eyes, brain and many more
PURPOSE IN BODY•they are the body’s natural healing cells
OBSTACLES+SIDE EFFECTS•virtually zero side negative effects, many positive side effects
TREATMENT HISTORY•used in bone marrow transplants to treat cancer for 40 years, can currently treat 130+ diseases safely and effectively (CP, MS, Autism, Diabetes, CHF, PAD, etc)

For example, blood derived stem cells are a very valid source of stem cells and many treatment centers and clinical trials using blood derived stem cells for years with extremely positive results. The first stem cell treatment center in the world generated significant therapeutic benefit for over 62% of their congestive heart failure patients. These are called no option CHF patients because their only recourse is a heart transplant. 62% of "no option" CHF patients derived significant therapuetic benefit, sometimes doubling their Ejection Fractions (amount of blood pumped out by the heart). But this is anecdotal, let's talk data.

What data is their showing that stem cell treatments work?
Anecdotal and 10's of thousands of patients treated aside...as of late 2009, according to the National Institutes of Health, there were and are ~2600 stem cell clinical trials around the world – http://www.clinicaltrials.gov/
Of those ~2600, there are ~2591 mentions of adult stem cells.
Of those ~2591, about half of them (~1300) are actual adult stem cell clinical trials.

Currently, as of today, there are 3,989 clinical trials under keyword search "stem cell" illustrating the safety and efficacy of utilizing stem cells to treat chronic and terminal diseases. Many are from reputable colleges and hospitals around the world, some in the US like Duke U., Northwestern, etc.

How about for Autism? (I apologize, my data has not kept current but as of late 2009)
https://repairstemcell.wordpress.com...ls-for-autism/
and https://repairstemcell.wordpress.com...ts-for-autism/

Please also look at the 29,500 scholarly papers submitted on "stem cell" plus "autism" minus embryonic. These are up to date:
http://scholar.google.com/scholar?as...%2C39&as_vis=1

I hope this was informative. If I can be of any assistance on specific diseases or questions, please feel free to ask.

[goldenmorning]

Hello, I am new here but familiar with Straight Dope. I was happy to see this thread when researching this topic, and I actually did read all of the posts.
I have kidney failure. Recently discovered a patient's blog who has gone through the treatment at ascaac to help her reverse scarring and no longer need a transplant or dialysis. It's odd because I had no idea about this procedure and I was actually looking up information about prediabetes (my potential donor that made it through all of the tests was denied because of prediabetes), so I cannot remember just how in the world I came across her blog as it has nothing to do with diabetes.. Anyway, she had her treatment in August (at first I thought she could be the poster in this thread, 2012user. On her blog she documents the entire process) she claims the treatment is helping and that she has cut her dialysis time from the normal 4 hour sessions 3 days a week, to now 2.5 hour sessions 3 days a week. She says her labs are improving and that she no longer gains fluid. I was excited to find this. The only stem cell related treatment (in the U.S.) I was aware of was one that aimed to allow a donor recipient to no longer depend/ need anti-rejection medication. Sounds awesome, but the procedure has risks, involves chemo..etc.
Still, I am an optimistic person (and I tend to believe people) so I was very interested in this woman's story. Perhaps you have heard of her as she gained some publicity after receiving a $20,000 donation from Ty Warner, the beenie babies creator, who randomly happened upon her while she was fundraising at an outdoor event. I have done a lot of reading..medical research..write ups on autism and stem cells..embryonic vs. adult..etc, etc. Of course I have no background in the medical field, I am just a patient trying to look out for myself, so it has been quite overwhelming. I even wrote the woman, Jennifer. She is nice, but she clearly seems to be capitalizing on her experience with the stem cell treatment through the ascaac at their Trinidad location. She gave me information and answered my questions fairly well, but in her 2 emails, at the end, she mentioned that she offers consultations on better living with kidney failure. She also said she could get me in touch with Dr. Matrani:
Regarding more details on the stem cell treatment itself:
In order to
support myself and continue to pay my mounting medical bills, I am offering
a stem cell treatment consultation to people who want the specifics. My fee
is $65.00. In addition, my direct connection with the director of the
clinic allows people to save money on the treatment.

I'm sure you all will agree, that seems like several red flags. Personally, I know if I had important information regarding new treatments for kidney failure, I would love to talk anyone's ear off who'd listen, especially other sufferers. I cannot imagine charging someone for this. To be fair, she herself has a background in holistic medicines and teaches this, so perhaps she sees it as a natural progression of what she can offer in her career's field. I don't know. I am having a hard time believing that she thinks the stem cell treatment is a scam.
So, I am wondering if the Adult Stem Cell & Anti Aging Center can get away with these treatments and claims because, besides the fact they are outside of the U.S., they regard their treatments (though they certainly inflate it) as a procedure that MAY work, similar to holistic healing. Sure it may make some people feel better, but there is not evidence. It's a placebo. I am also just assuming that everything they do there has minimal risks. I sure hope so.

Can you tell me how these places are able to stay in business? Is there nothing that can police them globally? While researching I came across so many shady websites and facility's around the world. It is so disheartening and sad.

I also came across this website: www.planethospital.com Are there examples of procedures that are actually safe where one would travel a great distance? I looked over their patient survey and it seems they are liposuction and breast plant oriented..

I thought I should post another site that had a similar but small debate, and drew the ascaac to comment as well as the poster before me, stemcellblogger. They b trollin'.
http://www.sitejabber.com/reviews/www.ascaac.com

I did find a few articles that offer hope, my favorite one here:
http://www.cosmosmagazine.com/news/4...ll-world-first
It is from May 2011! Any news since then?

It seems like stem cells could actually help reverse scarring in the kidneys and I am very excited about it. If I am able to have a transplant though, I don't see how I can take part in this medical advance as my own kidneys will eventually shrivel up (gross). I was excited that the ascaac may offer me hope, that they could perhaps cure me of the disease that caused this and heal my kidneys as well. To know that this hope is unwarrented is a horrible feeling. I am sickened that they can get away with this. I just don't understand it.
I just thought you all would like to know about this woman's blog and also my experience as someone who was almost taken in by it all. I am young and this is my first time having a health issue.
I should mention that my family was also fooled and excited by it. We have a relative that was treated for MS in its early stages with stem cells, so we've seen it work first hand (though this was an entirely different procedure involving bone marrow and radiation).

[GIGObuster]

The fellows at Quackwatch (already cited before) report that one should indeed check the good science, there is a lot of bad on this subject.

http://www.quackwatch.org/06Research.../stemcell.html

The Bottom Line

Although stem cell therapy has a few practical applications and considerable promise, there is no reason to believe that EmCell, Medra, the Brain Therapeutics Medical Clinic, Vita Nova, the Beijing Xishan Institute for Neuroregeneration and Functional Recovery, or any other commercial stem-cell clinic are providing it as a legitimate service. Their theories and methods are simplistic; their treatments may have adverse effects; they offer no credible outcome data; and their promises go far beyond what is now possible.

[HISSNLISSN]

I can vouch for goldenmorning's story. I'm her boyfriend. I haven't been to SDMB in a long time. Would really appreciate some more discussion on this topic based on what she's written in her post, as much of the earlier talk was so contentious. We feel like we need to make decisions fast.

There is a research lab in Australia at Monash University (referenced in the cosmos.com article goldenmorning posted) studying specifically stem cell treatments and her disease, FSGS. Question to those who've self-described as "guinea pigs" - how do you get involved in clinical trials, etc.? I don't think Monash's lab is yet at the human trial stage but when it gets there we'd be interested in volunteering for any studies they do. Is it possible for us to do this? We're Americans, so would we need to apply for some kind of temporary citizenship, first? Lots of questions come to mind and several more I'm likely leaving out. Happy to receive any and all info, thanks in advance.

[GIGObuster]

Looking at the information coming from Monash, it is clear that they are cautious, as any that is seriously investigating this should be.

http://monash.edu/monashmag/articles...s-of-hope.html

No magic bullet

Associate Professor Megan Munsie of Stem Cells Australia says speculation about the regenerative properties of stem cells often fails to take into account their diversity.

"There are many types of stem cells and many possible applications," Associate Professor Munsie says. "Just because a stem cell treatment works, or looks like it's working, in one condition, you can't necessarily extrapolate and say it will work in another. If it looks positive for macular degeneration, for example, it doesn't mean it will fix another disease, even in the eye."

Stem cell therapies are intricate puzzles, not only because of the challenge of identifying how stem cells trigger restorative mechanisms in particular tissue, but also because of the complexities in application. How should stem cells be implanted, and at which point in their development? How will they affect surrounding tissue? How can the behaviour of implanted cells be controlled so they do not form tumours?
These are all areas of uncertainty and the focus of ongoing research, and contribute to the cautious approach of mainstream medicine.

Note:
If you are an Australian who has travelled overseas for experimental stem cell treatment, or thought about doing so, and would like to share your story, visit the Stem cell tourism research project website.

One note about that last bit: it is research that looks also at people that are affected negatively, sadly, many are.