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  #1  
Old 03-10-2012, 04:06 PM
Stelios Stelios is offline
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Anyone here have to wear a piss bag?

For reasons too tedious and depressing to go into, there is a slight chance I may need to wear a piss bag for a while, possibly forever. I have questions and my google-fu is so weak that I've not been able to find the answers anywhere. If anyone here does have any experience, either as a permanent catheter patient or as a medical professional who treats them, I would very much appreciate your input.

I basically just want to know three things:

1). If you have to wear a piss bag, what happens when you get an erection?
2). How do you masturbate?
3). What are you supposed to do if you want to have sex?

As I understand it, if you've got the bag, that means you would have to have a tube running down your urethra pretty much all the time. If that's the case, then i would image the answers to my questions would be:

1). It hurts.
2). You don't
3). You don't

In which case I would probably refuse it, because life simply wouldn't be worth living. I'm a young guy (28). I feel I'm owed a good 30- 40 years of sex and I fully intend to have all of it. Like I say, I may very well not need one, it's just a possibility, but I need to know what to expect if the worst comes to the worst. I can't imagine that full time cath patients have to agree to a lifetime of celibacy. There must be some way to balance a piss bag with a healthy sex life.

Thanks in advance.

Last edited by Stelios; 03-10-2012 at 04:09 PM..
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  #2  
Old 03-10-2012, 04:53 PM
Cub Mistress Cub Mistress is offline
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Why might you need a cath? Two possible alternatives are intermittent self-catheterization which involves inserting a catheter into the urethra 4-6 times a day and suprapubic catheterization which involved creating an artificial opening in the abdomen directly into the bladder. Once this opening is made a regular catheter is inserted and attached to the drainage bag. However, it's hard to say if either one might be appropriate for your particular condition.
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Old 03-10-2012, 05:12 PM
Stelios Stelios is offline
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I might need a cath for urinary retention. Retention causes back pressure on the kidneys. This in turn causes hydronephrosis, leading to kidney atrophy. According to my Docs, I am particularly susceptible to retention because my waterworks were damaged by posterial urethral valves when I was a baby. Like I said, tedious and depressing.

I also am aware of intermittant self-catheterisation. If the above weren't enough, I was also born with a peculiarly narrow bladder neck. Once, I had to have a test called a MAG3. It involves pushing a thin catheter into the bladder, filling it up with water, and then taking X-rays of the bladder while the water is then pumped back out using the catheter. The test is used to measure the internal pressure of the bladder. Anyway, because of my narrow bladder neck, the Doctor couldn't get the catheter in there. It kept banging up against the bladder neck and causing jolts of searing pain through my groin. Eventually, after about fifteen minutes of this shit, he ran out of patience and forced it up there. It hurt so bad I screamed, threw up on a nurse, and then burst into tears. And I didn't cry when I broke my leg. So intermittant self catheterisation is not an option.

A suprapubic cath is an option, but I'm really only interested in talking about the worst case scenario at the moment. If a piss bag is on the table, I want to know what to expect. Thanks.

Last edited by Stelios; 03-10-2012 at 05:16 PM..
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Old 03-10-2012, 05:20 PM
Stelios Stelios is offline
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Also, a suprapubic cath can damage the male urethra during sex, and causes painful erections. Not to mention the fact that most women would rather crawl through a bath of spiders than fuck a guy with ten feet of plastic hosing sticking out his gut. Hardly a palatable alternative.

Last edited by Stelios; 03-10-2012 at 05:22 PM..
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  #5  
Old 03-10-2012, 05:31 PM
WhyNot WhyNot is offline
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I'm not sure what you mean by "a piss bag". Do you mean a urostomy? Or are you talking about a semi-permanent Foley catheter? Or what?

If you have urostomy questions, I'd suggest checking out c3life. There's also the United Ostomy Associations of America, through whom we found local ostomy support and informational groups.

Also, a great book for the intimacy issues facing ostomy patients and people who love them: It's In The Bag and Under The Covers

My partner had a colostomy for 2 years and a loop ileostomy for 4 months (when the attempted colostomy reversal failed) and is now back to "normal". So while I don't have personal experience with "a piss bag", I do know a thing or two about loving a man with a bag of excrement on his belly. It wasn't fun, but it also wasn't the end of the world. I'd rather deal with a bag of poo than a funeral plot.
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Old 03-10-2012, 05:47 PM
Stelios Stelios is offline
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By "piss bag", I mean any device which transfers urine from the bladder, via a tube, into a bag attached to the stomach or hip. I was principally thinking of a foley catheter, but a urostomy fits the bill just as well, in so far as it's repulsive, and highly off-putting to prospective partners.

Also, with respect, your experience with your husband isn't very germane to my situation, although I sincerely thank you for taking the trouble to share. I'm in a very different situation. You were already in love. You'd swapped vows and gotten a mortgage before you had to deal with his catheter. I'm a single guy. I'd have to be very lucky indeed to meet a girl open minded enough to deal with bags and tubes within the first few weeks.

So yeah, going forward, let's agree, for the sake of simplicity if nothing else, that the term "piss bag" refers exclusively to a Foley catheter, a semi-permanent cath which runs down the urethra. My questions again:

1). What happens when you get an erection?
2). How do you masturbate?
3). How do you have sex?

Many thanks in advance.

P.S. - Thank you WhyNot, for the links. I'll make sure to look at them.

Last edited by Stelios; 03-10-2012 at 05:48 PM..
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Old 03-10-2012, 06:00 PM
Yeah Yeah is offline
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It sounds to me as though you should do well with intermittent self-catheterization. Can't they dilate the bladder neck under anesthesia so that you can catheterize yourself? It sounds like they would have to dilate the neck to get a Foley in anyway (and a Foley would have to be thicker).
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Old 03-10-2012, 06:04 PM
Cub Mistress Cub Mistress is offline
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I've never heard that a suprapubic cath causes painful erections or can damage the urethra. Can you point me to a cite for this?

This patient information brochure says it should not get in the way of sexual activity.
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  #9  
Old 03-10-2012, 06:23 PM
WhyNot WhyNot is offline
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Actually, no I wasn't in love/mortgage/etc. We'd "hooked up" three weeks before his surgery, which was unexpected and emergency in nature. We were lovers, but we were not at all settled, and it could have gone either way. We're not unique. People with ostomies do date, and get married and get mortgages, all with bags of piss and shit hanging off them. That book has a whole lot of stories - some good, some bad - about people with all types of ostomies finding lovers.

Masturbation isn't really an option with a Foley catheter in place. I've never known a patient to get an erection with a Foley, but I'm not always watching. Since they have to be changed periodically, people will sometimes remove them for intimate moments (alone or with a partner) and insert a new one when done.

It's not very common (although it's not unheard of ) for a Foley catheter to be used for very long term use, mostly because it does so directly interfere with sexual activity. Also because it tends to create a lot of UTIs and skin breakdown around the urethra (but suprapubic caths also have infection problems.)

I have no idea why a suprapubic cath would cause damage to the part of the urethra in the penis, because it doesn't involve that part of the urethra. The surgery to make the hole can, however, cause nerve damage which can interfere with erection (as can urostomy surgeries.) It doesn't always, or even mostly, but it's not super rare, either.

Has your doctor discussed continent stomas with you? These are stomas which do not need a tube draining the urine from them all the time, but form a reservoir inside your body which you drain periodically. They don't prevent you from masturbating, and present fewer challenges to body image and finding a sexual partner. Continent stomas include the Kock's reservoir, Indiana pouch and Mitrofanoff reservoir.
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Old 03-10-2012, 06:47 PM
Stelios Stelios is offline
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I'm on my iPhone so apologies for spelling mistakes and the lack of proper quotations.

Yeah: I would be very happy if I got away with just being able to self-catheterise. Given my previous experience, however, I'm rather dubious about whether this will be achievable for me. If there is a procedure by which they could widen my bladder neck, I'll certainly take advantage of it.

Cub Mistress:. I was going off this paper. It's a catheter care guide for nurses. The relevant info is on page 16. However, I think I might have misread it. On second glance, it looks like that section may be referring to foley caths.

WhyNot:. Thank you very much for the information, and I apologise for the assumptions I made in my previous post. You must be a very understanding lady. Mr. WhyNot is a lucky guy

I've not heard of continent stomas but based on what you've said they sound better than a Foley or an SPC.

Quick question. I was under the impression that Foley caths had to be inserted at hospitals under medical supervision. Is that the case? I find it hard to believe that doctors would be very understanding about constantly replacing Foley caths for guys who pulled them out every time they wanted to have sex.
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Old 03-10-2012, 07:05 PM
Cub Mistress Cub Mistress is offline
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Foley caths can be inserted in the home. Usually it is done once a month by home health nurses. My patients with Foleys are usually elderly, but I would think some patients could be taught to do it for themselves, family members could also be taught.
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Old 03-10-2012, 07:33 PM
samclem samclem is offline
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While the OP is looking for factual answers to a question, there will likely be opinions involved. Let's move this from GQ to IMHO.

samclem, Moderator

Last edited by samclem; 03-10-2012 at 07:34 PM..
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  #13  
Old 03-10-2012, 07:39 PM
WhyNot WhyNot is offline
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Originally Posted by Cub Mistress View Post
Foley caths can be inserted in the home. Usually it is done once a month by home health nurses. My patients with Foleys are usually elderly, but I would think some patients could be taught to do it for themselves, family members could also be taught.
Since placing a Foley really only has two more steps than inserting a cath (inflate balloon, check integrity), many patients can learn to do it themselves. Home health would (should) try to teach the patient. If they can't manage it, try to teach a caregiver. If that doesn't work, then the nurse would do it. But we want to encourage independence - if you can do it, you should do it. We'll show you, teach you, observe you and make sure you've got it down, but the nursing goal would be for you to do it yourself eventually.

Last edited by WhyNot; 03-10-2012 at 07:39 PM..
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  #14  
Old 03-11-2012, 09:55 AM
Nancarrow Nancarrow is offline
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Continent stomas include the Kock's reservoir...
Well, duh.
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Old 03-11-2012, 10:11 AM
Patty O'Furniture Patty O'Furniture is offline
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  #16  
Old 03-11-2012, 11:03 AM
cwthree cwthree is online now
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I've had both a Foley cath and a suprapubic cath, and I've had to do intermittent self-catheterization and urethral dilation. None of it is fun, exactly, but they all become "normal" surprisingly quickly.

Stelios, you mentioned that you were catheterized before and it was extremely painful due to the small bladder neck. It's likely that the doctor was simply trying to use a catheter that was too big. Catheters come in a full range of sizes, from pediatric to don't-come-near-me-with-that-thing. If your doctor wants you to try self-catheterization, ask about using a small catheter. It will take you longer to empty your bladder due to the smaller diameter, but you'll be able to get comfortable with it.

If you need to use a Foley, you can definitely learn to remove and place it. WRT to sexual activity, unless your sessions last extraordinarily long, you should have no trouble placing a new Foley after the fun is over (i.e., your urethra was dilated by the Foley, and it won't contract that quickly).
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Old 03-11-2012, 02:43 PM
Stelios Stelios is offline
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Originally Posted by cwthree
Stelios, you mentioned that you were catheterized before and it was extremely painful due to the small bladder neck. It's likely that the doctor was simply trying to use a catheter that was too big. Catheters come in a full range of sizes, from pediatric to don't-come-near-me-with-that-thing. If your doctor wants you to try self-catheterization, ask about using a small catheter. It will take you longer to empty your bladder due to the smaller diameter, but you'll be able to get comfortable with it.
I hope that's the case. The catheter seemed very thin, but I could easily be misremembering. If I ask for a pediatric cath, I might be able to manage it, and that would be such a colossal weight off my mind that I can't even begin putting it into words!

Quote:
Originally Posted by cwthree
WRT to sexual activity, unless your sessions last extraordinarily long...
Believe me, that's not a problem
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  #18  
Old 03-14-2012, 11:42 AM
Stelios Stelios is offline
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Well, it's official. I start intermittant self-catheterisation next Monday. If I can't get it so I can tolerate the pain, it'll be the bag. Fuck.
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Old 03-14-2012, 04:40 PM
WhyNot WhyNot is offline
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That fucking sucks. Sorry.

Last edited by WhyNot; 03-14-2012 at 04:40 PM..
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Old 03-15-2012, 12:04 PM
Mama Zappa Mama Zappa is offline
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.... If the above weren't enough, I was also born with a peculiarly narrow bladder neck. .... It kept banging up against the bladder neck and causing jolts of searing pain through my groin. Eventually, after about fifteen minutes of this shit, he ran out of patience and forced it up there. It hurt so bad I screamed, threw up on a nurse, and then burst into tears....


Please tell me you never went near that so-called doctor again. And please tell me you reported him to *someone*.

While I'm not a medical person, common sense would suggest that this approach is a) brutal, and b) likely to cause **damage**.

I wonder if there isn't some kind of procedure where - with APPROPRIATE PAIN CONTROL - they can use some kind of inflatable thingy to gently stretch the bladder neck.

Beyond that, I don't have any good relevant advice, beyond saying that I hope you do NOT have to go the "pee bag" route.

And if it's at all amusing: when Dweezil was not-quite-3 - a mildly autistic, non-potty-trained 3 - he had to have some tests that involved collecting urine samples. He was of course clueless about peeing into a cup, so we had to use a urine collection bag that basically used self-adhesive tape to glue the bag over the penis.

We got the thing on him, rediapered him, and he got up and started walking around - then stood stock-still and announced in outrage "My PEE-NEE STUCK!!!". The epression on his face was really pretty funny.
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Old 03-15-2012, 12:13 PM
Shmendrik Shmendrik is offline
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Well, it's official. I start intermittant self-catheterisation next Monday. If I can't get it so I can tolerate the pain, it'll be the bag. Fuck.
I didn't see if this was addressed earlier in the thread, but have you gone to another urologist for a second opinion?
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Old 03-18-2012, 05:31 PM
cwthree cwthree is online now
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Keep up updated, please.
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Old 03-24-2012, 06:24 PM
Stelios Stelios is offline
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Update: So, I've been wearing a pissbag for just under a week now. It's a standard Foley urethral cath and they're looking into the possibility of fitting me up with a continent stoma which, if I understand the procedure correctly, is something that would suit me quite nicely. I just have one problem and, since we have some very knowledgeable contributors in this thread, I thought I'd post the question here. My question is this:

JEEEZUS MOTHERLOVIN' TITTY-FUCKIN' CHRIST ON CIABATTA I HATE THIS FUCKING CATHETER!!! Hate it! Just hate it to fucking death. I was expecting it to hurt. I was prepared for that! Oh, if only it hurt! But no, I wasn't that lucky. The little fucker outsmarted me, gave me something I didn't expect. It itches. I mean, constantly, with every step, it evokes a delicious, exquisite agony of boring, burrowing deep-rooted itching that drives me to absolute distraction. I swear, the relief I get from scratching it? Better than sex. Seriously.

Is there anything I can do about this? I'm already meticulous with my hygiene. I've started taking two showers a day as a matter of course, and I always make sure everything is sterilised. Is this normal? Are there any remedies? Cheers.
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Old 03-24-2012, 06:46 PM
cwthree cwthree is online now
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Originally Posted by Stelios View Post
My question is this:

JEEEZUS MOTHERLOVIN' TITTY-FUCKIN' CHRIST ON CIABATTA I HATE THIS FUCKING CATHETER!!! Hate it! Just hate it to fucking death. I was expecting it to hurt. I was prepared for that! Oh, if only it hurt! But no, I wasn't that lucky. The little fucker outsmarted me, gave me something I didn't expect. It itches. I mean, constantly, with every step, it evokes a delicious, exquisite agony of boring, burrowing deep-rooted itching that drives me to absolute distraction. I swear, the relief I get from scratching it? Better than sex. Seriously.

Is there anything I can do about this? I'm already meticulous with my hygiene. I've started taking two showers a day as a matter of course, and I always make sure everything is sterilised. Is this normal? Are there any remedies? Cheers.
You have my sympathy, oh yes, you do. Standard disclaimer - I'm not a doctor, you're not my patient, call your urologist, etc. Meanwhile, I'll give you some ideas based on my experience.

Where does it itch? The tip of the penis? The inside (i.e., does it feel like your whole urethra itches)? Do you have an "itchy" feeling all the way up in your bladder? Your urethra may simply be irritated from being catheterized, especially if the urologist had to dilate you to get it in. If this is the case, you WILL heal and it will stop itching. Sadly, I have no remedies for the meantime.

You mentioned that you're taking extra showers - do you have crusty stuff collecting where the catheter exits the penis? Gooey stuff? A bit of yellowish crud is normal (in my experience). I think it's just mucus that would normally be washed out during urination.

Does the end of your penis look red or swollen? More than a little crud? Could be an infection. Your urologist can culture anything you might be growing and prescribe accordingly

What color is the catheter? If you have a yellow-ish one, it may have some latex content. You could be reacting the latex (latex sensitivity are relatively common). If this is the case, your urologist should be able to outfit you with a latex-free catheter (they exist).

Also, 9 out of 10 for profanity and invective. "Christ on ciabatta" is both unusual and an excellent use of imagery, evoking the sightings of Christian religious figures on tortillas, toast, and other bakery products.
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Old 03-24-2012, 06:57 PM
WhyNot WhyNot is offline
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Have you talked to your doctor about the itching? Did it start immediately when they placed the Foley, or after a couple of days? Has the Foley been withdrawn and reinserted, even an inch or two? Has it been replaced with a new one? What is your changing schedule? Who is changing it - you or a nurse?

The three possibilities I can think of are allergy, infection, and possibly the wrong size catheter. Using the wrong size more commonly causes pain than itching, but nerves are weird, and what makes one person's nerves send "pain" signals causes "itch" in others. It could be a cath with latex, although those are pretty rare nowadays. Even if you haven't been allergic before, you could have developed a latex allergy now. Infection would be the most likely culprit if you see any unusual discharge, see redness and swelling and if your penis feels hotter or colder than normal to the touch.

Definitely need to bring this to the attention of your doctor. The longer it's been itching, the sooner you need to talk to him. Try calling the office - it's just vaguely possible that he's used to this, not worried about it, and will prescribe you something for it over the phone and save the office visit. Maybe an antihistamine, maybe a urinary tract analgesic like Pyridium (which turns your urine Gatorade orange, so don't be alarmed.)
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Old 03-24-2012, 07:09 PM
Stelios Stelios is offline
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Incidentally, intermittant self-catheterisation is probably a non-starter for me. Last Friday I had to go to my ER because I had fallen into complete and total urinary retention. I mean, not a drop was coming out of there. Anyway, a nurse tried teaching me how to self-catheterise. Didn't work. Then we tried again, this time with a smaller, pre-lubed catheter. Still nothing. I was getting them in about 6 inches but kept butting up against a blockage (about which more later). And all this time I was getting fuller and fuller.

Then the nurse tried catheterising me with the same sort of tube. She couldn't do it. Anyway, she scurries off to get a doctor. I dunno where she went to get him but I was left sitting there for nearly a full hour with a bladder which felt like it was approaching the size of a basketball, but she eventually found one (a doctor! In a hospital! Imagine that) and he tried having a go. The doctor (the fucking doctor!) couldn't do it, and now I was stuck in complete agony because my bladder was now fully distended and was probably bigger than a fucking basketball by then. This doctor makes an emergency call to the urology department, comes back in the room and tells me they're sending their "Top man". I'm serious, he really said that, like Indiana Jones!

So I sit and I wait, and wait, and wait. I'm near tears by this point (doesn't take much) and in my desperation I take a catheter that had been left on the side and I try again, but only succeed in cutting myself, as the catheter comes out slicked in blood. Lovely.

Anyway, in comes the "Top man" and I have to say, in grudging admiration, that he lived up to his billing. He was brandishing what was obviously a very heavy duty cath. I mean, this thing was a fucking snake. The kind of thing you might see being brandished by a masked man in a hardcore gay bondage film. By this point, I don't give a fuck and I let the man get on with it.

Oh. My. God. I've never felt pain like it. Not to get too graphic, but it felt like someone had poured boiling acid straight down my urethra. And when it hit the bladder neck, I literally screamed like a great big girl. A girl with a receding hairline, and a cock. But then, oh sweet blessed relief! They hooked me up to a bag and within five minutes it had filled up with a liter and a half of warm, shimmering, yellowey-orangey piss! A liter and a half! That's almost three pints! I was amazed. It was definitely a personal best.

They took that catheter out the next day but unfortunately I still couldn't piss under my own power. Again, they tried showing me how to self-catheterize, and again I failed. Again, I went into retention and again I had to through the rigamarole of having a half-dozen doctors and nurses queue up for a shot at catheterising me. The lucky winner that night was a young asian junior doctor named Gupta, although I never worked out if that was his first name or his last name, who, after literally saving my fucking life with this procedure, found himself on the receiving end of my, shall we say, overly effusive gratitude. I got out of bed, pulled up my jeans, and gave him the biggest hug I've ever given anyone, all the while shouting "I love you, Gupta. You're a fucking angel on earth, and you don't get paid enough!" He's only a little fella. I lifted him clean off the floor! I don't think he minded, though. He knew it was meant with love.

I've been wearing a catheter ever since. The only interlude was a cystoscopy I had on Wednesday which revealed no blockages, swellings or strictures of any kind that might explain my original retention. However, the exam did reveal that my muscles in that area are unusually tight, and have a tendency to spasm violently in the presence of foreign objects, which would explain why I, and so many trained medical personnel, had such trouble catheterising me.

I'm due for one further appointment, this time with a team of specialised nurses who will unite under one banner in a quest to teach me how to skewer myself with silicon tubing without kicking up a stink about it. After that, they're gonna start drawing up plans for the stoma.

So yeah, in summary: fun week.
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Old 03-24-2012, 07:18 PM
Stelios Stelios is offline
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Originally Posted by cwthree View Post
Where does it itch? The tip of the penis?
Yep, right at the tip. And only when I'm walking about, too. I'm lying down at the moment and it's fine

Quote:
You mentioned that you're taking extra showers - do you have crusty stuff collecting where the catheter exits the penis? Gooey stuff? A bit of yellowish crud is normal (in my experience). I think it's just mucus that would normally be washed out during urination.
i did, but only on the first day. Since then I haven't seen any.

Quote:
Does the end of your penis look red or swollen? More than a little crud? Could be an infection. Your urologist can culture anything you might be growing and prescribe accordingly
Not swollen, and no crud, but definitely a little red. Then again, I'm having to nip off to the nearest bathroom every ten minutes to scratch the bastard, so I suppose that might be par for the course. My doctor's had a look and didn't seem concerned, given the circumstances.

Quote:
What color is the catheter? If you have a yellow-ish one, it may have some latex content. You could be reacting the latex (latex sensitivity are relatively common).
It's a grey one. I think it might be silicon.

Quote:
Also, 9 out of 10 for profanity and invective. "Christ on ciabatta" is both unusual and an excellent use of imagery, evoking the sightings of Christian religious figures on tortillas, toast, and other bakery products.
Why thank you kindly, good sir . May The Lord continue to communicate His will to man via the medium of baked goods.

Last edited by Stelios; 03-24-2012 at 07:19 PM..
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Old 03-24-2012, 07:20 PM
Broomstick Broomstick is offline
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Originally Posted by Stelios View Post
By "piss bag", I mean any device which transfers urine from the bladder, via a tube, into a bag attached to the stomach or hip. I was principally thinking of a foley catheter, but a urostomy fits the bill just as well, in so far as it's repulsive, and highly off-putting to prospective partners.

Also, with respect, your experience with your husband isn't very germane to my situation, although I sincerely thank you for taking the trouble to share. I'm in a very different situation. You were already in love. You'd swapped vows and gotten a mortgage before you had to deal with his catheter. I'm a single guy. I'd have to be very lucky indeed to meet a girl open minded enough to deal with bags and tubes within the first few weeks.
My husband had a "piss bag" when I met him. He had also had a number of prior long-term girlfriends he had had plenty of sex with.

You are correct, there are quite a few women who would run for the hills at the first mention of "piss bag". There are also quite a number of us women who can cope with the issues involved. You are doing yourself a disservice with the notion that such an "appendage" means you will never have sex or a girlfriend or a wife. Yes, it's an obstacle. It's not insurmountable.

My husband used an external catheter, sometimes called a "Catholic condom" (there's a hole at both ends). The rubber sleeve rolled over his dick and the lower end was attached to a tube that drained into a bag he wore strapped to his leg. He has since changed to intermittent catherization. He did, at one point, require a procedure to dilate his urethra which had scarred up over the years due to urinary infections, but that's another matter.

Alright, that's second hand, but -
1) He has been able to get erections all the years I've known him
2) He removed the thing to masturbate and when we have had sex
3) Our sex life has been quite happy these past 23 years

I understand that at the moment this is all still very new to you and you're going through a lot of adjustments. One reason the pissbag wasn't that much of an issue with hubby and me is that HE was so matter-of-fact about the whole thing. When you find a comfortable/tolerable solution to your current problems I hope you can relax about the social issues a bit. They won't disappear - there are some people out there for whom it's a show-stopper - but I hope you find it much less an obstacle than you fear it to be. However, right now, your urological problems and health are important. Research your options and try to find the optimum one for you. Good luck and best wishes.
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  #29  
Old 03-24-2012, 07:28 PM
Stelios Stelios is offline
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Quote:
Originally Posted by WhyNot View Post
Have you talked to your doctor about the itching? Did it start immediately when they placed the Foley, or after a couple of days? Has the Foley been withdrawn and reinserted, even an inch or two? Has it been replaced with a new one? What is your changing schedule? Who is changing it - you or a nurse?
i have told my doc and, while he wasn't sure what it was, he's given me some antibiotics just in case it's an infection. It started about a day after they replaced the Foley and, during that time, I wouldn't be surprised if it had withdrawn an inch or two purely by virtue of the fact that I've been walking around.

My doctor said that the catheter was designed to stay in for three months, so there's no changing schedule to speak of.

Quote:
The three possibilities I can think of are allergy, infection, and possibly the wrong size catheter. Using the wrong size more commonly causes pain than itching, but nerves are weird, and what makes one person's nerves send "pain" signals causes "itch" in others. It could be a cath with latex, although those are pretty rare nowadays. Even if you haven't been allergic before, you could have developed a latex allergy now. Infection would be the most likely culprit if you see any unusual discharge, see redness and swelling and if your penis feels hotter or colder than normal to the touch.
i'm not sure what the cath is made of (although I have a feeling it might be silicone. I think I remember seeing that on the packaging) so it may well be a latex allergy. I've got another appointment with my GP on Monday so I'll be sure to raise that possibility.

Thanks, as usual, for your very useful advice. It's really appreciated.
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  #30  
Old 03-24-2012, 07:47 PM
Stelios Stelios is offline
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Broomstick: thank you very much for sharing. It's made me feel a lot better. I'm definitely very neurotic about the possibility of being rejected over this. I have trouble dealing with rejection anyway, and a full time bag would only make it more likely. I'm very gratified to hear first hand testimony which shows that it needn't be a complete impediment. Thanks again
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  #31  
Old 01-21-2013, 02:01 PM
unclefoxpeter unclefoxpeter is offline
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sex with catheter

Even if you have a catheter you do not need to wear a bag. The end can be fitted with a Flip-flow valve. You open this when you feel full.

I wore a Foley for 3-months. You can wank any time you want to. They dont fit your tube so tight that the spunk cannot run down the outside.

Actually I like wanking with one in.

Brian.
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  #32  
Old 01-21-2013, 02:40 PM
Ambivalid Ambivalid is offline
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Ugh. I hate urologists. Since suffering a spinal cord injury just about 13 years ago, every single urologist I have every visited (with the exception of one-my current urologist) has told me I need to use a catheter. They have told me this despite the fact that I do not need a catheter! In the time that I have been paralyzed, I have never suffered a UTI or had ANY bladder or kidney issues (whatsoever). I think doctors are SO programmed to assume that someone with a spinal cord injury NEEDS to cath that when someone comes to them presenting a case where they aren't cathing, it automatically means they are doing something less-than-optimal.

But I feel more-than-sure that I am doing what is best for me. The only concrete reason any doctor has pointed to when saying I need to cath is when looking at how completely I empty my bladder. But this is an area of contention amongst different doctors; with some saying anything above 75ml remaining in the bladder is too much and could lead to problems and others saying as much as 150ml (or even more) is tolerable. Either way, I know that I have been healthy all this time, so why fuck things up with a catheter? I CAN feel everything, so I am in no hurry to stick a tube up my dick.
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  #33  
Old 01-21-2013, 10:17 PM
colander colander is offline
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Quote:
Originally Posted by Ambivalid View Post
Ugh. I hate urologists. Since suffering a spinal cord injury just about 13 years ago, every single urologist I have every visited (with the exception of one-my current urologist) has told me I need to use a catheter. They have told me this despite the fact that I do not need a catheter! In the time that I have been paralyzed, I have never suffered a UTI or had ANY bladder or kidney issues (whatsoever). I think doctors are SO programmed to assume that someone with a spinal cord injury NEEDS to cath that when someone comes to them presenting a case where they aren't cathing, it automatically means they are doing something less-than-optimal.

But I feel more-than-sure that I am doing what is best for me. The only concrete reason any doctor has pointed to when saying I need to cath is when looking at how completely I empty my bladder. But this is an area of contention amongst different doctors; with some saying anything above 75ml remaining in the bladder is too much and could lead to problems and others saying as much as 150ml (or even more) is tolerable. Either way, I know that I have been healthy all this time, so why fuck things up with a catheter? I CAN feel everything, so I am in no hurry to stick a tube up my dick.
Money, money, money. That's Big Cath for you.

PS. Post 31? Best bump ever.

Last edited by colander; 01-21-2013 at 10:18 PM..
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