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  #1051  
Old 03-24-2019, 09:27 PM
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!


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That started with 9 hearts, but the hamsters made off with them. Happiest Day, Getty and family!!!!!!!!!


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  #1052  
Old 03-24-2019, 10:37 PM
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Happy Birthday!
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  #1053  
Old 03-25-2019, 12:36 AM
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Happy Birthday, Getty!
  #1054  
Old 03-25-2019, 02:56 AM
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That started with 9 hearts, but the hamsters made off with them. Happiest Day, Getty and family!!!!!!!!!


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Ah, you probably used the actual heart icon. Rebuilt you some:

<3 <3 <3 <3 <3 <3 <3 <3 <3
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  #1055  
Old 03-25-2019, 05:05 AM
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Happy birthday to the beautiful Miss Getty. I appreciate so much that you've been sharing her journey with us all this way.
  #1056  
Old 03-25-2019, 08:29 AM
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Nine years old! Thanks for all the birthday wishes!
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  #1057  
Old 03-25-2019, 08:40 AM
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Happy birthday Getty! She is so big!

Also: that cake! WOW!
  #1058  
Old 03-25-2019, 01:56 PM
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hoot! hoot! hoot!
hoot! hoot! hoot!
hoot! hoot! hoot!

great cake!
  #1059  
Old 03-25-2019, 03:29 PM
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Awesome cake, and Happy Birthday, Getty.
  #1060  
Old 03-25-2019, 04:18 PM
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  #1061  
Old 03-26-2019, 09:21 PM
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Gosh, the years are just flying by!

Hope you had a great day Getty, best wishes from Australia.

  #1062  
Old 03-27-2019, 08:50 PM
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Happy birthday to Getty!
  #1063  
Old 03-25-2020, 10:28 AM
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Getty. Today.

10 years, folks!

10 years...

Thanks for all the love and support.


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  #1064  
Old 03-25-2020, 01:49 PM
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Amazing. Amazing. Happy birthday, girl!
  #1065  
Old 03-25-2020, 04:14 PM
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Getty. Today.

10 years, folks!

10 years...

Thanks for all the love and support.


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Unbelievable! What a testament to her amazing parents!
  #1066  
Old 03-25-2020, 04:53 PM
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https://uploads.tapatalk-cdn.com/202...08417da1cc.jpg
Getty does her usual cake-cutting honors.


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  #1067  
Old 03-25-2020, 05:02 PM
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Amazing! I'm so happy for you, Bearflag. How's the Spinraza doing, both for Getty and for the other SMA kids?

StG
  #1068  
Old 03-25-2020, 05:13 PM
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Happy Birthday Miss Getty! Double digits now, WOOOOOOO.

  #1069  
Old 03-25-2020, 05:17 PM
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Happy birthday Getty!
  #1070  
Old 03-25-2020, 05:40 PM
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Happy Birthday!
  #1071  
Old 03-25-2020, 05:46 PM
rocking chair is offline
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Hoot! Hoot! hoot! Hoot! Hoot! hoot! Hoot! Hoot! hoot! HOOT!
  #1072  
Old 03-25-2020, 06:36 PM
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Amazing! I'm so happy for you, Bearflag. How's the Spinraza doing, both for Getty and for the other SMA kids?

StG

All good. Some fights in the community to get it covered for some folks, but good results in maintaining available strength from the time of dosing rather than experiencing constant loss of strength.

A couple new oral drugs will be on the market soon hopefully. This might cut the STEEP price tag of Spinraza, especially because Spinraza requires a hospital visit to administer, which poses an exposure risk for our fragile kiddos... especially with COVID19 around.


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  #1073  
Old 03-26-2020, 09:27 AM
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Wonderful news! Belated happy birthday to Getty! Wow, has she grown! Keep learning and growing Getty, we need girls like you!
  #1074  
Old 03-26-2020, 12:29 PM
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Happy Birthday Getty Owl..

Sorry it's a day late.. been thinking a lot about you guys.. *HUGS*
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  #1075  
Old 03-26-2020, 02:06 PM
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Happy Birthday! Best wishes to the entire family.
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