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  #251  
Old 08-03-2010, 07:51 PM
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{{{{{Bearflag}}}}}
  #252  
Old 08-03-2010, 08:16 PM
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Thank you. I was thinking about this and wondering if it is any better or worse than creating a Facebook profile for the Little Owl and updating people that way.
  #253  
Old 08-03-2010, 09:15 PM
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{{{{{{{bearflag70 & family}}}}}}}}
  #254  
Old 08-03-2010, 09:25 PM
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Caring Bridge is great! I've used it in victims' services to get info out to masses of people. The family can set it up and get all the info out and it is very well-organized and easy to use.
  #255  
Old 08-03-2010, 09:57 PM
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Here's the game plan for helping you out, Bearflag.

Step 1: I've sent up the bat signal to the CouchSurfers. We don't have a lot of money (collectively) but we're the most generous club on teh intarwebz. I pitched the idea at our meeting tonight, and we're throwing a charity event in your name. I'm going to try to get a bunch of different bars to help donate the proceeds to you.

Step 2: The CouchSurfers will act as our town criers. We're going to put the news out over the network. Everyone that wants to participate will put up some signs or a donation method in their corner of the world.

Step 3: I'm trying to come up with a good idea for gifts to sell at exorbitant prices. My aunt can get me T-shirts printed through her company. With your permission, I'd like to put your daughter's picture on it. We'll sell the T-shirts for, like, $20 a piece. They'll say "I helped baby ____'s family".

That's the plan for now. Any ideas will help. When I get this thing up and running (pending the official diagnosis), I'd like to have as much planned as possible.

ETA: We're also going to do Gourmet Hugs. It's like Free Hugs, but it costs a dollar, and they're really good hugs.

Last edited by Chessic Sense; 08-03-2010 at 09:58 PM.
  #256  
Old 08-04-2010, 12:01 AM
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Originally Posted by Chessic Sense View Post
Here's the game plan for helping you out, Bearflag.


Holy crap. Holy crap.

We are stunned. Your generosity is amazing.

We are all for whatever you need. I seriously need to digest all this.

Stunned.

Wow.

I came in to post that I plan on going with caringbridge.

Wow.

Thank you. You don't even know...

{{{Chessic Sense}}}

Last edited by Bearflag70; 08-04-2010 at 12:02 AM.
  #257  
Old 08-04-2010, 12:07 AM
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Originally Posted by Chessic Sense View Post
Step 3: I'm trying to come up with a good idea for gifts to sell at exorbitant prices. My aunt can get me T-shirts printed through her company. With your permission, I'd like to put your daughter's picture on it. We'll sell the T-shirts for, like, $20 a piece. They'll say "I helped baby ____'s family".
I think this is awesome. Put that little cutie pie's picture on the shirts and they're going to sell like hotcakes!
  #258  
Old 08-04-2010, 12:35 AM
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Aw, dammit, there goes my leaky eyes again...
  #259  
Old 08-04-2010, 03:53 AM
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Here's her new CaringBridge page.

Feel free to comment.

It's 2 a.m. so there may be typos.
  #260  
Old 08-04-2010, 05:50 AM
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that is a great page, bearflag70.

wonderful game plan chessic sense. the tee shirt idea is brilliant!
  #261  
Old 08-04-2010, 12:14 PM
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Nothing I can say seems worth saying, but I still want to Bearflag70 know that I am very sorry. You'll be in my thoughts.
  #262  
Old 08-04-2010, 12:51 PM
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wonderful game plan chessic sense. the tee shirt idea is brilliant!
Good news. The T-Shirt plan is coming together nicely. I'm thinking of ordering 100. That'll run about $400. If we sell them all at $15, that's $1,100 net. I can always send a box to different corners of Doperland. PM me if you want a box and tell me how many you need. They're between $4.65 and $4.00 depending on how many you buy.

Anyone know how much it costs to mail a 100-shirt box from West Virginia to wherever-ville? Like, $25, you think? I have no idea how much that weighs.

In other good news, my aunt tells me that last time they did this (for a cancer-ridden teen ager), the family sold thousands of shirts.

Last edited by Chessic Sense; 08-04-2010 at 12:51 PM.
  #263  
Old 08-04-2010, 01:05 PM
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I'm coming in late, Bearflag, but I just wanted to say how very sorry I am.

And that your daughter has some of the sweetest eyes I've ever seen.

You're in my thoughts.
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  #264  
Old 08-04-2010, 03:02 PM
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I want to buy a t-shirt!

Last edited by nikonikosuru; 08-04-2010 at 03:02 PM.
  #265  
Old 08-04-2010, 03:51 PM
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I am gutted.

One of the worst things about this sort of situation is that we don't have the ability to truly convey how we feel.

I'll be back in Sac in a year or so, BearFlag and drinks are on me.

*hugs*
  #266  
Old 08-04-2010, 05:17 PM
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I've been asked for input on a t-shirt slogan but we just wrapped up a long meeting with FSMA and our heads are full.

Does anyone have ideas for a nice owl-based or other slogan for a t-shirt?

Thanks for the input.

Last edited by Bearflag70; 08-04-2010 at 05:18 PM.
  #267  
Old 08-04-2010, 05:43 PM
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Originally Posted by Chessic Sense View Post
Here's the game plan for helping you out, Bearflag.
Every time I feel like I oughta be through with this place, someone goes and does something like this. Good move, man.
  #268  
Old 08-04-2010, 05:53 PM
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I came up with the simple "Fly, Little Owl!" People would buy that, I think. The alternative is what I said earlier; the direct "I helped Baby Getty's family" or maybe "I helped fight SMA". Her name really is Getty, right Bearflag? We'd look really silly if it wasn't.
  #269  
Old 08-04-2010, 05:58 PM
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Originally Posted by Chessic Sense View Post
I came up with the simple "Fly, Little Owl!" People would buy that, I think. The alternative is what I said earlier; the direct "I helped Baby Getty's family" or maybe "I helped fight SMA". Her name really is Getty, right Bearflag? We'd look really silly if it wasn't.
Yes, Getty.

I just think Fly Little Owl makes it sound like she's already gone and she's flying away.

It could be something as simple as "I helped the Little Owl."

The best help she can get is for her mother to be home caring for her.

Last edited by Bearflag70; 08-04-2010 at 06:00 PM.
  #270  
Old 08-04-2010, 06:43 PM
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Chessic Sense, go with your gut. I am happy with anything. Thank you so much.
  #271  
Old 08-04-2010, 07:10 PM
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i poked around on the interwebs, there were a few that were cute.

i give (or gave) a hoot!
thank whooo!
owl always love you.
  #272  
Old 08-04-2010, 07:20 PM
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I like "I gave a hoot for Little Owl!"

Bearflag, my heart goes out to you and your family.
  #273  
Old 08-04-2010, 07:20 PM
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Bearflag,
I've been gone a week here, so sad to hear of your wee one's diagnosis. She is so beautiful in the photos you shared, gorgeous pure eyes, and I hope you can make her life filled with as much love as possible whatever comes.

"We're Hootin' and Rootin' for Our Beautiful Baby Owl"

I'm hoping all the best for Y'all.
  #274  
Old 08-04-2010, 07:27 PM
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How about:

"Whoo loves you, Baby?
We (or I) do!"

Bonus if the design contained both a cute little owl and a pic of cute little Owl. (Does she have a little T-shirt with an owl on it?)
  #275  
Old 08-04-2010, 07:31 PM
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winterhawk & Bearflag; That's great!
  #276  
Old 08-04-2010, 07:31 PM
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Man, that's so terrible. Words just don't express. I'm so very sorry, Bearflag.
  #277  
Old 08-04-2010, 07:35 PM
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I like "I gave a hoot for Little Owl!"
If we're voting, this gets mine.
  #278  
Old 08-04-2010, 07:37 PM
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I may be able to get an owl design.
  #279  
Old 08-04-2010, 07:52 PM
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I'm crying for you all. I think your approach, like with the walk in the park, is right. Love is the only answer in such a horrible situation. You can make her experience of life one of total love, support, and warmth.

I will be keeping up with the fund raising effort, and seeing how you and your family are doing.
  #280  
Old 08-04-2010, 08:06 PM
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Quote:
Originally Posted by Drain Bead View Post
I like "I gave a hoot for Little Owl!"
If we're voting, this gets mine.
Mine, too.
  #281  
Old 08-04-2010, 08:30 PM
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I can't imagine what you're going through Bearflag70 and I hope you stay strong during it. This is any parents worst nightmare.
  #282  
Old 08-04-2010, 09:06 PM
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How about "I give a hoot for Little Owl!"? I think the past tense also makes it sound like she's gone. Present tense might also be a stronger trigger for people who see us wearing the t-shirt to ask what it's about.

Regardless, I'm in and think you're awesome, Chessic, for getting this going.

Hugs for Bearflag70, Mrs. Bearflag and for that lovely little Owl.
  #283  
Old 08-04-2010, 09:38 PM
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Such a beautiful, beautiful little girl and she looks SO happy.
This is just so sad - I'm so sorry for you, it's just heartbreaking.
Thinking of you and your family...
  #284  
Old 08-04-2010, 10:47 PM
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I'm so sorry your family has to face this, Bearflag70. Another doper sitting here with tears running down her face.

Your instinct to enjoy your baby's company and play with her are good ones, a source of happiness for you and her. I know from personal experience that it is important that she should feel your joy and comfort. Those moments will help you through whatever is to be.
  #285  
Old 08-04-2010, 11:02 PM
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She's gorgeous. I'm so sorry.

These tshirts, will there be a link here at the dope?
  #286  
Old 08-04-2010, 11:20 PM
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Ok, this thread made me de-lurk for the first time in...um...years?

She is an absolutely gorgeous little baby. I'm a mom of a 5 month old boy, his name is Alex, and I can't imagine...I can't even imagine....

Please know that you, your wife, and Little Owl are in my thoughts and prayers.

I would love to buy a t-shirt, Chessic. Please let me (and the rest of us here) know when/how they'll be available!
  #287  
Old 08-04-2010, 11:41 PM
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I too am so sorry to hear your news. I have signed up to your little owl's Caringbridge page and will keep you in my heart as you go through this.
  #288  
Old 08-04-2010, 11:48 PM
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Slogan for your tee shirt:

"I'm smiling, you should too."

Prayers for your family.

Tris
  #289  
Old 08-04-2010, 11:52 PM
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Prayers and hugs to your family.
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  #290  
Old 08-05-2010, 12:00 AM
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I've peeked at this thread over and over again, and read as much as I could stand each time, and cried with/for you over and over again. If there were anything I could say that I thought would improve the situation, I would do so. Since I can't...

{{{{{hugs}}}}}

I wish you joy in the moments that you will treasure with your family, and peace and acceptance for those moments that aren't joyful.
  #291  
Old 08-05-2010, 12:49 AM
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My heart goes out to you, Bearflag. May you and MrsBearflag cherish every moment that you have with LittleOwl.


Oh, and I like the Whooo loves you? I do slogan.

Last edited by missred; 08-05-2010 at 12:49 AM.
  #292  
Old 08-05-2010, 01:21 AM
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Whooo loves you? I do!

We like that one.
  #293  
Old 08-05-2010, 01:32 AM
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Your daughter is beautiful. She really is
  #294  
Old 08-05-2010, 02:09 AM
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Keeping your family in my thoughts. Thank you for keeping us all updated.

From personal knowledge having an ill child puts stress on marriages so please take time out for each other as well. ~hugs~
  #295  
Old 08-05-2010, 06:23 AM
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Bearflag (or anybody else in the know), has a PayPal account been set up yet? I'm normally pretty loathe to donate to people hitting hard times on the SDMB, mostly because I'm normally in pretty dire straits myself!!

But your little girl needs her folks beside her giving her cuddles, and not stressing about shit like paying the bills.

It only takes a little bit from a lot of people to make a difference. And I'm a bit flush this week so youse got lucky!!

So, gimme the details.
  #296  
Old 08-05-2010, 08:18 AM
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Pretty much everything you need to send money is in this post. It's a pretty easy process, but if you have any questions, feel free to post them here.
  #297  
Old 08-05-2010, 10:00 AM
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Thank you. I was thinking about this and wondering if it is any better or worse than creating a Facebook profile for the Little Owl and updating people that way.
I like it better than FB for something like this, because all of the comments are contained to the "guestbook", and all of the journaling/updates that you do are also together, and make it much easier to read through the history and/or print up at a later date, if you so choose. I know of far too many parents who have lost children to horrible illnesses (I also know many parents who have seen their children pull through), and they find that being able to print up the journal later gives them a great sense of peace, and they can also see that there was still joy to be found in the little things that they otherwise would have forgotten amongst all the heartache.

We will continue to pray for your family.
  #298  
Old 08-05-2010, 10:04 AM
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Anyone know how much it costs to mail a 100-shirt box from West Virginia to wherever-ville? Like, $25, you think? I have no idea how much that weighs.
I don't know if this will help in estimating, but I just sent out a box of 28 pieces of maternity clothes (including pants), and it weighed 14 lbs, and cost me $21 to send from Florida to California...parcel post. It was $40 to send it Priority...
  #299  
Old 08-05-2010, 11:15 AM
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She is a beautiful baby and has a beautiful and caring family and friends surrounding her.

You might not want to hear it, but you have had some good luck throughout this. You are so very lucky to have gotten the FSMA support so quickly and you are also so very lucky to get a diagnosis so quickly. I have a friend whose child was lost in the land of the undiagnosed for two years before they figured out what he has. (Technically, he still doesn't have a diagnosis, just an unnamed "mitochondrial disorder", but it really helped his mother that they could at least pin-point part of what his problem is.)

You are lucky your pediatrician also recognized and valued your concerns and sent you ASAP to a qualified specialist. I don't know that many other parents and doctors would be so quick to realize that there really was a problem.

You have also educated yourselves very quickly and are facing the future straight on and are asking for help when you need it. That is a very brave thing to do.

Now, get that kid fitted for a SCUBA mask and put her in the tub!
  #300  
Old 08-05-2010, 11:20 AM
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Quote:
Originally Posted by Bearflag70 View Post

Thank you. I was thinking about this and wondering if it is any better or worse than creating a Facebook profile for the Little Owl and updating people that way.
I like it better than FB for something like this, because all of the comments are contained to the "guestbook", and all of the journaling/updates that you do are also together, and make it much easier to read through the history and/or print up at a later date, if you so choose. I know of far too many parents who have lost children to horrible illnesses (I also know many parents who have seen their children pull through), and they find that being able to print up the journal later gives them a great sense of peace, and they can also see that there was still joy to be found in the little things that they otherwise would have forgotten amongst all the heartache.

We will continue to pray for your family.
We also went with caringbridge because not everyone has or wants Facebook. Also, you need an account to use Facebook but only a link is needed for caringbridge. I don't want to be asking people to create FB accounts if they want to follow along.

We also decided not to solicit our personal Little Owl funds on caringbridge. It seems tacky. The donation link on caringbridge is a donation to caringbridge, not to us.

Also, thank you all again for everything. I can't possibly thank everyone individually, as much as I would like to.

Last edited by Bearflag70; 08-05-2010 at 11:21 AM.
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