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  #201  
Old 12-15-2017, 06:10 PM
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Originally Posted by nearwildheaven View Post
I had my CAT scan today and may be able to start treatments as early as Tuesday or Wednesday. If that's the case, they'll be spread out over 5 weeks, so it may not be as rough on me as they might if it was straight Monday through Friday. I did ask about the cold-water treatment, and she said, "No, no, no! Do not do that!" and instead recommended vitamin E oil. I'll get some next time I'm at a grocery store.
<shrug>

Did she give any reason for saying that?
  #202  
Old 12-26-2017, 05:34 PM
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Originally Posted by ThelmaLou View Post
<shrug>

Did she give any reason for saying that?
No, but I didn't ask. Some people are also recommending Aquaphor ointment.

I had my first treatment today. One down, 19 to go.
  #203  
Old 12-26-2017, 06:51 PM
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Yaay! Good luck & keep us posted.
  #204  
Old 12-26-2017, 10:39 PM
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Just catching up. Great news all around. Aquaphor is sticky and made me itch. I didn't need it until well into radiation. You might want to look for Miaderm, which i found very helpful (and didn't wreck my clothes) and ask about Biafine, which is a prescription cream, also potentially helpful.
  #205  
Old 12-27-2017, 06:54 PM
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I saw my surgeon today, and he said I'm healing quite well and he wants to see me, probably one last time, in April.

I had a seroma (fluid-filled mass) in my breast that was bigger than an egg, presumably where the tissue was removed, and just in the past few days has it started to shrink. I'm getting little twinges in my breast, which I keep thinking are from radiation but I know it's from the scar tissue shrinking.
  #206  
Old 12-27-2017, 10:15 PM
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I'm glad the seroma is resolving. Soon you'll get to the freaky part where all these medical people and appointments disappear.
  #207  
Old 01-09-2018, 02:41 PM
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As of today, I am halfway through with my radiation. I still feel fine, although as of yesterday, the skin on the irradiated area began to darken (tan) but the doctor looked at it today and said that what I am experiencing is normal. Tomorrow, I will have a second CAT scan to plan my boost treatments at the end, and also re-evaluate me due to the seroma's shrinkage.

So far, so good! I wear a sports bra and apply that oil twice a day, and am continuing a normal diet and all my activities.
  #208  
Old 01-09-2018, 06:41 PM
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Thanks for the update, and glad to hear it!
  #209  
Old 01-12-2018, 06:51 PM
nearwildheaven nearwildheaven is offline
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2/3 finished!
  #210  
Old 01-15-2018, 10:46 PM
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Hooray!
  #211  
Old 01-23-2018, 01:13 PM
nearwildheaven nearwildheaven is offline
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Just got home from my last treatment. The rad onc says I'm doing well and wants to see me again in 2 weeks.

Sure am glad that's over, although everyone at the clinic was very nice.
  #212  
Old 01-23-2018, 01:39 PM
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Yay you!

Huge milestone.

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  #213  
Old 01-23-2018, 03:24 PM
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Wonderful news!
  #214  
Old 01-23-2018, 09:29 PM
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YAY!

StG
  #215  
Old 01-23-2018, 09:48 PM
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I am very late to this thread, but have read it through, and I am so happy for you that the worst is in your rear view mirror! You have cause to celebrate, for sure!
  #216  
Old 01-23-2018, 11:37 PM
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Congratulations!
  #217  
Old 02-16-2018, 07:53 PM
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I had a quick follow-up check today, and she told me that I am healing nicely, and said I can use soap on the area once again. I still have a red circle around my incision, where I had my boost treatments at the end, but other than that, my skin is almost completely healed.

In addition, as a self-employed person I buy my own insurance, and it has been paying claims without a speck of hassle (so far). Yeah, I met my out-of-pocket expenditures two years in a row, but at least I know much it would be and could budget for it, and do have the money to pay it.
  #218  
Old 02-16-2018, 08:27 PM
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Great news!
  #219  
Old 03-13-2018, 10:25 PM
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I saw my oncologist today for the 3-month checkup. He feels that tamoxifen, the hormone blocker I'm currently using, is not the right one for me due to a drug interaction, and persuaded me (successfully this time) that I should undergo treatments to send me into menopause and use a different hormone-blocking agent, probably anastrozole. I decided to go ahead and do it, pending insurance company approval and probably a bone scan for osteoporosis.

Otherwise, everything's looking good. I also have a visit scheduled with the rad-onc on Thursday.
  #220  
Old 03-15-2018, 10:44 PM
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And now for what the rad onc told me. Keep in mind that she's a Pakistani woman in her 70s; she said, "You have beautiful breasts!" I knew she meant that I was healing well, and she told me to continue using the vitamin E oil, and come back in 3 months.

  #221  
Old 03-15-2018, 11:29 PM
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Glad to hear that you're healing well.
  #222  
Old 03-17-2018, 08:37 PM
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I think I've read recently that vitamin D is more effective than calcium for bone health.
  #223  
Old 03-18-2018, 12:36 AM
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They work together, and the oncologist recommended that I take both. In the meantime, my insurance did approve the Zoladex treatment to send me into menopause for good, and he also said I don't need a bone scan right now.
  #224  
Old 03-18-2018, 10:47 AM
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Will you have the typical symptom? Try to ride the hot flashes, not fight them. Of course, this doesn't work in business meetings and the like, unfortunately.
  #225  
Old 03-18-2018, 02:14 PM
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I've already been through menopausal symptoms like hot flashes and anxiety. I have also been averaging a period or two a year for the past 5 years or so (I'm 54) and my LMP was August 21, 2017. That was very easy to remember because it started when I made a pit stop en route to the eclipse. For several days beforehand, I was kind of jittery and wondered, "Am I having PMS, or am I just really excited about this eclipse?" It turned out to be a little of both, and because of that period, that's why I was put on tamoxifen and will now have the ablation. I haven't had my hormone levels measured, but he doesn't think that's necessary and said my symptoms shouldn't be too bad because I'm probably 95% (or thereabouts) through the whole process anyway.
  #226  
Old 03-19-2018, 06:40 PM
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Got my Zoladex implant this afternoon; it didn't hurt except for the needle stick for the lidocaine used to numb the implant area. And they covered it with a Tasmanian Devil Band-Aid. Might as well have a little fun if you can!
  #227  
Old 04-30-2018, 05:48 PM
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Today, I had a 6-month appointment with the surgeon, and he said my healing process is continuing to proceed normally and he wants to see me at the 1-year mark.

Since I last posted, I did see him in the meantime because I started having pain in my breast again, and he said that it was probably cut nerves re-connecting (still!) and the oncologist, who I also saw in the meantime although that was previously scheduled, told me the same thing. The surgeon also said that I was wise to address a concern like this.

So far, I do not appear to be having any side effects from the new medications.
  #228  
Old 04-30-2018, 09:37 PM
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Good news all around!
  #229  
Old 04-30-2018, 10:18 PM
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That's great! I still get zaps 3 years out (but now I have a lot more sensation than I did at the point you're at).
  #230  
Old 05-01-2018, 06:36 AM
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What terrific news to start the day with! Thank you so much for sharing this with all of us.

Regarding the nerve damage, I had my hip replacement 10 weeks ago last Friday. As recently as two weeks ago I still had blazing hot pain down the outside of my right leg from the hip to the little toe.

It was a stripe about 2 in wide and if it was touched in any way it was as though someone was slipping a knife into me.

The doctor informed me that it was because of a nerve that have been several that would slowly grow back. It's mostly gone now but boy can I relate.

What you went through will never become a distant memory but in time it will become a less stressful part of being Who You Are. So glad to hear that everything is progressing so well !!

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  #231  
Old 06-14-2018, 04:32 PM
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I saw my radiation oncologist earlier this afternoon. She too said that everything looks good, and if it stays that way, she does not need to see me again until December.

  #232  
Old 06-14-2018, 04:55 PM
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WAHOOOOOOOO !!!

So happy for this, yet another great milestone.

You allowed to drink? Tonight you should raise a glass, if that's how you'd celebrate!



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  #233  
Old 06-14-2018, 05:00 PM
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I don't drink except for a very rare glass of wine if I'm really stressed, but thanks anyway! I'm sure happy about it.
  #234  
Old 06-15-2018, 01:04 PM
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Terrific news! I'm very glad for you.
  #235  
Old 10-03-2018, 07:10 PM
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Today is my one-year "boobaversary." Things are still going well, and I have a diagnostic mammogram scheduled for later this month, along with yet another visit with the surgeon.

  #236  
Old 10-03-2018, 08:37 PM
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Mazel tov! May it go uneventfully. Me, I'm in the middle of several nuclear scans because I'm having pain. I really think it's nothing, but my oncologist wisely won't allow me to try systemic treatment (like acupuncture) without ruling out bony metastasis (done, nothing) and soft tissue metastasis (Pet/CT, upcoming).
  #237  
Old 10-03-2018, 08:59 PM
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Quote:
Originally Posted by susan View Post
Mazel tov! May it go uneventfully. Me, I'm in the middle of several nuclear scans because I'm having pain. I really think it's nothing, but my oncologist wisely won't allow me to try systemic treatment (like acupuncture) without ruling out bony metastasis (done, nothing) and soft tissue metastasis (Pet/CT, upcoming).
I'm so sorry to read this. Let me know what the results are. Any pain or other symptoms can be scary, aren't they.
  #238  
Old 10-03-2018, 10:25 PM
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Thank you. I try to remind myself that before I had cancer, I would have figured I just injured myself--but of course, I have had cancer now, so I can no longer bet on it not being cancer. Fortunately, I have pretty low scanxiety. It's while I'm waiting for results that my mood gets dark. Since I had bilateral without recon, all I get is a semi-annual clinical exam, so the up side of this is that I get a pretty thorough look for tumors in my innards.
  #239  
Old 10-19-2018, 06:43 PM
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Yesterday, I got a letter from my insurance company regarding next year's premiums. I was hesitant about opening it, but my fears were unfounded, because not only will I be renewed, the premium went up by just $16 a month. I don't mind, because that's a combination of inflation and me getting older and presumably having higher medical expenses to begin with.

The day before that, I got a letter from the rad onc that included a check for reimbursement of an out-of-pocket overpayment. That was also a pleasant surprise.

p.s. I knew that the rad onc, whom I said earlier in this thread is an elderly Pakistani woman, looked familiar. I recently watched the "RBG" documentary, about Ruth Bader Ginsburg, and realize that this is who she resembles.

Last edited by nearwildheaven; 10-19-2018 at 06:44 PM.
  #240  
Old 10-20-2018, 12:20 AM
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Congratulations!
  #241  
Old 10-20-2018, 12:37 AM
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Susan, how are you doing? You can PM me if you don't want to post the details here.
  #242  
Old 10-20-2018, 12:13 PM
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Thanks for asking. I'm doing well as I come up on 4 years past the ambiguous mammogram. I have some ongoing pain so I had a series of scans (all of which were unremarkable) and other sequelae that are annoying but manageable. My vision prescription has stabilized so I was able to get glasses. My joints are easily injured, but I'm able to go to my dance fitness classes twice a week. One of my medical people put me on a short-term low-carb, high-fat diet to counter the creeping Tamoxifen weight gain and increased A1c, and that's been helpful. My memory is a bit worse, but still better than average. My lymphedema nurse has okayed the use of a larger backpack as long as it's not overloaded, so I'll be able to arrange some foot travel I've had to put off. Later this winter I'll get to try higher altitude for a couple of days to see if that causes any problems.

How are you doing?
  #243  
Old 10-25-2018, 02:02 AM
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I had my anniversary mammogram (by now) yesterday, and the surgeon got the results right away and said that it looks like everything is healing nicely and there was nothing abnormal on the scans that he didn't do to me (like the titanium marks in the scar, that looked like donut sprinkles), and he doesn't need to see my any more.



In addition, my DEXA scan (ETA for osteoporosis; I had it a few weeks ago) was within normal range for women my age, although any further treatment will be discussed next week with my oncologist.

So, in short, the news is excellent.

Last edited by nearwildheaven; 10-25-2018 at 02:03 AM.
  #244  
Old 10-25-2018, 06:43 AM
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--throwing titanium confetti in the air--

WAHOOO!!!!

Such great news!!

Maybe a donut with sprinkles to celebrate!
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  #245  
Old 10-25-2018, 01:14 PM
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Great news!
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