Are her doctors trying to cripple my wife?

I know, I know, but with my limited knowledge and experience, and with more than a little familiarity with CYA attitudes in all businesses, I cannot help but be suspicious that there is an unconscious motivation to reduce risk as much as possible. Then considering we, as her home caregivers, were given no fucking training or suggestions whatsoever how to get her out of the car and into the wheelchair the night she got home (it took TWO HOURS, part of it in light rain, to get her into the house) nor how to help her once we were home, well, that I chalk up to her being a charity patient and us being too poor to put her in a rehab facility. Mea maxima culpa, I signed up for Obamacare too late for it to help, but I still think the sub-minimal PT she got was pretty shabby, and the lack of care training we got was nearly criminal, like they threw her out for her and us to fend for ourselves.

FTR, I don’t lie about my own conditions, being an over-sharer who gets rushed by doctors when I try to explain context and everything. :wink: Which is why I landed in the hospital the first time. All I wanted or needed was a refill of my Prozac but the chair in his office was too low and I fell a little bit (no pain or damage) getting out of it. He later said I was near death, but he’s just an osteopath (AKA: A chiropractor with a prescription pad) so what does he know. I don’t go to him anymore, finding MDs (AKA: Real Doctors) more to my liking.

She, OTOH, is a lousy patient like you describe, and pisses and moans and gets accusatory and tries to pull rank over every little thing. Our oldest finally told her that she lost the right to be right when she lied to the doctor in this exchange in the ER:

Doctor: Have you ever been treated for diabetes?
Her: Well, I was told I had gestational diabetes when my [now adult] children were born, but no.
Me [fed up]: Why are you lying to him? You were diagnosed five or six years ago and handled it well with diet and Metformin. Then you stopped taking care of yourself and were put on insulin, but all I saw of that was a box of needles on the carport a couple months ago that must’ve fallen out of a garbage bag.
Her: The insulin was old.

So you can see what I’m working with. But I still think crutches would be a better choice because instead of just your hands you have the support in your armpits. You folks are welcome to tell me I’m wrong. I’m used to it. As for walkers, I prefer shopping carts. They are taller and easier to lean on, with plenty of room and a smooth surface with no surprises to walk on.

AFAIK crutches are not meant to transfer weight to your armpits. A properly sized crutch should be below your armpit.

Osteopaths, in the U.S. are real doctors. Why don’t you do some research? Geez.

As the wife of a very hardworking, caring and knowledgeable D.O., I can tell you that you have no fucking clue as to what you’re talking about. My husband got the same education as an M.D., he ALSO was trained in Manual Medicine techniques. He rarely uses them, but the training and the hands on approach and mindset is still there. ANY doctor can be a crap doctor, someone has to be bottom of the class. And, given patients like you and your wife who apparently won’t take care of themselves, lie, won’t believe what they are told, and won’t ask questions and attempt to be a part of their own treatment, can you actually blame a physician for getting burnt out?

ASK about PT solutions. ASK about how to handle things like getting in and out of cars (which would be OT, and you both need it). Stop expecting to be spoon fed all the solutions to your problems.

In short, grow the hell up.
And here, learn something: What is a DO? | American Osteopathic Association

Yup. When my husband broke his foot he got a very short lesson on crutches usage. They should ride a few inches below the armpit while you’re ambling along. And even my strong, otherwise-healthy husband had some balance issues with them. I can very, very easily see someone who’s infirm toppling over on crutches.

The doctors aren’t trying to cripple your wife, your wife is crippling herself. First with the refusal to take responsibility for her diabetes maintenance, second by lying to her doctors, and now with being lazy rather that making an effort to get up and move as much as possible.

I understand it’s upsetting and you’re looking for someone or something to blame. The person responsible here is your wife.

I understand my response last night was harsh, perhaps overly so. I was tired and in a bad mood, and had spent the last 12 hours listening to people blame me for their problems which had nothing to do with me. I did not take your OP well.

So let me shed a little light on the therapy thing. Now I haven’t worked in all the hospitals in the US - just three, and all in the same city. But based on those experiences - no one was trying to skimp on your PT. Save for very specific units, hospital PT programs are set up for evaluation only. Our hospital is staffed for PT 3 times a week for about 10 minutes at a time. Our goal is to deal with the acute and immediate, and then send a patient on their way to rehab. Did a case manager/social worker see you? Probably, if you were a charity patient. Did the topic of rehab come up?

Okay, so your wife is a difficult patient. She probably got lousy continuity of care and slipped through some of the cracks. When a patient spends the entire day whining, bitching and (oh god, this especially) blaming the nurse for every little thing, the nurses will pass that patient around to avoid emotional burnout. Did your wife have a different nurse every day, or nearly every day?

Patients like that don’t get the best care, they just don’t. Hospital staff are human, and it takes a lot out of them when patients are continuously unpleasant to them. I’m not talking about patients asking for extra help that they need, that’s why I’m there. I’m talking about the patients who call you an idiot and yell at you because their tray wasn’t what they wanted and freak out because they had to wait five minutes for me to pull their medicine. I do my best to be a good nurse, but you stand outside the door to that room and take a deep breath and steel yourself. And then you find yourself avoiding that room, much as you try not to.

Did you request crutches? Walkers are a go to standard, and doctors are too busy to think of every little thing. Walkers work well for most people.

All this falling down a lot and cracking skulls business— is this common behavior? I’ve somehow made it to [precise age redacted] without ever breaking a bone, and I’m given to the occasional tipple, 7 or so times a week. Something I never would’ve considered a boast, but now I’m wondering…

They lopped off the pads of her feet, but unless she makes immediate, serious, permanent changes to her lifestyle, they will be coming back for the rest of her feet before long. You need to quit worrying about doctors’ hidden agendas, and do whatever it takes to get her diabetes under control. “Raging diabetes” is as dire a situation as a brain tumor or a 95% heart blockage. She’s a ticking time bomb.

Now that she’s unable to drive or walk, you are 100% in control of what she puts in her mouth and how often and how much insulin she takes. Help her help herself.

Good luck to both of you.

Correct. The shoulders are not built to hold the stress of your body weight, particularly from below. Crutches should be adjusted to have a 2 inch gap when you stand with your arms draped over them, and the handgrips at wrist height. Crutches are tall so that they are contained by your arms when you use them to keep the tip from splaying out of control, but your weight should not be on the tops, your weight is held by your arms, not your armpits. It requires a lot of arm strength to use crutches safely.

Also, crutches are a pain in the ass to keep nearby and to get arranged when you want to stand up and walk. And they offer absolutely no help with actually standing up - they’re a hindrance until you are fully upright. They are a terrible choice of assistive device in someone who needs assistance getting up off of a couch. People tend not to use them because they’re so cumbersome, whereas a walker will actually help you get up, as well as walk.

Is there an element of CYA when it comes to Fall Precautions in the hospital? Yes, there is, a little bit. If a patient falls - even if they don’t injure themselves - there’s paperwork to be filed and an Incident to report, and ain’t nobody got time for that. But far far far more is the element of Cover THE PATIENT’S Ass. Falls are a huge risk for injury, particularly in the hospital, where the surfaces are all hard and there is often unfamiliar equipment around your bed and you are usually tethered to IV tubing, oxygen tubing, monitoring wires…it’s a mess.

They don’t make up the Fall Risk on a whim or to be mean or to cover their ass. There are calculators for Fall Risk. It’s math. We know what’s strongly correlated with falling, and what’s weakly correlated with falling, and you get an objective score. Fallen and injured yourself in the last 3 months? You get 15 points for that. Taking medications which lower your blood pressure? You get 5 points for that. Carefully gathered and analyzed data over many years have shown that people who score more than 15 (on one particular rubric, there are others with other scores) are pretty darn likely to end up falling again.

So…let me turn it around for a second. What would you be posting if your wife wasn’t on fall precautions and you later found out that, statistically, she was really likely to fall? You would be screaming about substandard care because the nurse should have known she was likely to fall and did nothing to protect her.

I swear, they can’t win.

Now…about the Physical Therapy. Physical Therapy sounds like it probably is indicated here. If I was your home nurse (assuming your wife met the guidelines for home health), I would order a Physical Therapy evaluation and we’d probably agree that she needs home Physical Therapy twice a week for transfer training and gait training and therapeutic exercise. But A) Physical Therapy isn’t free, at home or otherwise. If you aren’t insured, that sucks, but that’s not the doctor’s fault and B) Physical Therapists aren’t Personal Trainers and they’re not cheerleaders (and doubly so for home Physical Therapists, as opposed to outpatient or inpatient PT). They are there to provide specific assessment and training you in balance building and strengthening exercises and to set up a home exercise program that you *must *do on your own. Doesn’t sound to me like she would benefit a whole *lot *from home PT, because she’s not shown me that she is willing and able to work on her own. So I’d order it, and it would probably help a little bit and she’d feel and function better the days she gets PT, but it’s not going to be a huge benefit, nor long lasting, unless she exercises on her own.

Finally, the one tiny part that may be “the doctor’s fault”: doctors and nurses often forget that not only do you not know things, but you don’t know what you don’t know. You don’t know to ask for home PT (setting aside whether you can afford it or have insurance that will pay for it) because you don’t know that home PT is a thing. Or you don’t know that there are outpatient PT facilities, so you don’t ask for it. It would be great if discharge was always handled with enough time and education to at least let you know what the resources in your area are and how to access them. But everyone wants to gtfo the second the doctor says they can go, and the discharge coordinator can only be in one place at one time. So people are cut loose because they’re not prisoners, and this stuff gets skipped or glossed over. And really, I have yet to see discharge papers that don’t include, at least, “Follow up with primary care provider in 1 week,” with the expectation that your regular doctor will arrange the ongoing care. Again, if you don’t have a primary care provider, that’s not the hospital’s fault.

Hospitals are not set up or funded to provide ongoing care. They are there to save your ass and get you stable enough to go home and get ongoing care from your regular doctor.

I absolutely agree that there is a gap in coordination of care between hospital care and home care, or hospital care and ongoing care with your out-of-the-hospital physicians and nurses. As a home nurse, this is something that frustrates me, and I know it frustrates the hospital nurses, too. All I can say is that we, as an industry, are working on it. Some of the ACA mandates, including electronic recordkeeping that can more easily be shared between providers, are expected to help (if Congress will stop delaying them, that would help, too). But there are big privacy concerns there, as well. How do we develop and implement systems that let unrelated health care providers get your information quickly, but that keep The Bad Guys out? How does your hospital verify that I’m a home nurse working with you, and not an asshole trying to obtain your personal information to steal your identity, or an employer illegally trying to get information about your diagnosis so I can fire you? We’re working on it. I’ve seen a couple of good systems put into use in just the last 6 months, but they aren’t universal yet.

In the meantime, my advice is to walk. Walk, walk, walk. It’s the best exercise for most people with the fewest contraindications (none of which you’ve mentioned your wife has; the contraindications for walking are generally cardiac related and congenital.) If she can only walk 20 feet today, fine. Walk 20 feet. Tomorrow walk 21 feet. The day after that, walk 22 feet. It will add up.

And talk about this stuff with YOUR doctor. The hospital doctors are done.

Victim mentalities are one the most difficult conditions to heal.

Agreed with WhyNot and any others mentioning it - she has to walk. Walk inside or outside, but walk. My husband broke a bone in his foot and as a result of the cast, his ankle was immobilized for almost 3 months. His PT was being told to go walk, and it worked. (I broke my wrist and had to go through several weeks of PT to get it to bend again, then back to its original flexibility.)

Considering your wife has a history of minimizing her condition, is it possible she hid from you that they recommended she consult an orthopedist, or go to an outside PT facility?

I can’t blame you at all, but thanks.

Really? My mistake then because that’s about what she got.

Case manager saw her, not me. As for rehab, to quote, “They’ll have us sign away our house!” and it went no further than that. She’s an adult and has to make her own decisions, at least until I have her committed as a danger to herself. (only a half-joke)

She’s a very good patient when she’s in the hospital. I got compliments from the nurses regarding how much nicer and more cooperative she is compared with some of their other patients.

Crutches were my idea. She disagrees.

Balance issues and a missing stair railing, which has been replaced. And it wasn’t a “tipple”–I don’t go halfway, it’s either all or nothing. I’ve since chosen “nothing,” but I’ve always had some problems staying vertical if I lack visual cues, like a horizon. I’m on VFR (visual flight rules) all the time.

Yes, that’s part of my knowledge of the good and bad of crutches, but I found being able to slump onto well-supported armpits when I needed to helpful and reassuring.

That’s because they take the most time and education. Honestly, that’s most of what I do. I have the luxury of time, and I love to educate. So I’m the one who comes in after the furor has died down, and I get a whole hour at a time one or more days a week for 9 weeks or more, to tell people *why *their doctor prescribed what they did, how their disease process is affecting their anatomy and physiology, details about how they can make little changes that, over time, make a big difference, and to provide encouragement and connect the dots for them between what they do and how they’re feeling. Doctors and hospital nurses don’t always do that, but it’s not because they don’t know this stuff, it’s because they have too many patients in one day, and they don’t have time.

Just one example: an uncomplicated vaginal labor and childbirth got my grandmother 2 weeks in the hospital. 2 *weeks *when the nurses would start out mostly caring for the infant, and then slowly teach her how to change the baby, feed the baby, clothe the baby, soothe the baby, learn the baby’s cries and signals (and also to make sure she wasn’t going to hemorrhage, and even to watch her for her mental health; they didn’t have the term “postpartum depression” then, but they knew that women had the potential to have a “nervous breakdown” after having a baby.)

Today, an uncomplicated vaginal labor and delivery gets you 24 hours. How in the HELL can a hospital nurse teach you everything in 24 hours?! She can’t. You can’t absorb that much information that quickly. So you have to learn it on your own when you get home.

Same thing with diabetes and other illnesses. What used to get you weeks or even months of “convalescence” in a monitored setting gets you days now. You are expected - you *must *- educate yourself and take care of yourself now.

I am never going to be rich like the busy doctors. I don’t have it in me to handle the stress and time constraints and patient loads of hospital nursing. I may not ever even be able to retire, financially speaking. But the one thing I do have is time with my patients. It’s worth it. And MOST of them, not all of them, but most of them, show significant improvement in their medical conditions and their ability to do Activities of Daily Living by the time I’m done educatin’ them. As well, they show an increase in self care and a decrease in victimization and blaming attitudes. (This isn’t just a feeling. This I know. I’m tracking these things for a research class I’m taking. Even the early data is showing great results.) My happiest days are the ones when I have to discharge a patient because they are no longer homebound!

I spoke harshly about DOs because I question this particular one’s abilities, given that I got no clear answer when I asked, from my hospital bed, “Why am I here?” I apologize for tarring an entire profession because I got a clinker. He never even tried adjusting anything! :wink:

When you are missing parts of your foot and you slump, a fall is not far behind. Much better would be a Rollator style walker, which has a seat. If she gets tired, she can turn around and sit safely, no matter where she is. I love these things. They give people not only physical stability, but emotional/mental security, knowing that however far they walk, they have a seat with them when they need to stop. These things get people out of the house far better than crutches or frame walkers.

If you can’t afford one, do some googling and see if there’s something called a “Nurse’s Closet” or similar in your town. Many towns have them; when people don’t need their assistive devices any more (some get better, some are donated when Grandma dies) they are made available at low or no cost to others who need them.

We’re friends, so please don’t take offense when I say, “Well, DUH!” :slight_smile: But when I wrote the OP I wasn’t blaming the medical people, who are all very good, but a medical system that seemed to encourage enforced bedrest for her, and for me a couple years ago, while they have heart patients doing laps a couple days after surgery. And yes, I know she was very sick and not capable of much at first.

Do you tell the family that, too, so they know what to expect and how to handle it? Because that would have eliminated a lot of problems AND this thread. :frowning: