GoFundMe request from RivkahChaya

My insurance is not through my employer, so the ADA does not come into play regarding paying for the device. I don’t know what the copay is on some people’s plans. The $75 for 2 coupon may compare to the worst policies, in which case, well, there probably is no case.

I am meeting with the executive director today talk about a lot of things, and the inhaler will be one. Currently, no employees us asthma inhalers nor epi-pens, but some children have them, and the children are to have them administered as soon as they are determined to be needed, wherever they are.

I don’t think there is a policy for staff regarding asthma inhalers, but I am going to ask. If an asthmatic who cannot breath would not have to run for the clock-in room, then I have a case that I should not have to either. If the answer is that an asthmatic SHOULD, well, that’s fucked, and I’m not sure what to do, because I don’t want to be a gadfly, but fuck is that wrong.

A pox on whoever was careless with the gabapentin. One guy shits his pants, everyone wears a diaper.

On a brighter note, I have received the first payout from GoFundMe, and so after my meeting with the ExDir, I am going to buy the phone, then go to the pharmacy and pick up the inhalers. I already have a CGM, since the doctor gave me a free sample, but it’s not on. Have to pair it with my phone first.

Because the CGM will alert me to impending sugar drops, and any level I choose (the default is 55), I may not need the inhalers at work anyway, because I will always treat before 55. The inhaler is for 35 and below, which I get a few times a month, currently, and occasionally have trouble getting my sugar to STAY up, but not relying on fingersticks and feeling shaky may keep me from needing the inhaler other than when the alarm wakes me up, and in the time it takes me to wake up and check my phone, my sugar has gone from 55 to 35, which, yes, it can.

Love to all of you. Depth of gratitude cannot be expressed.

BTW, have tried to thank everyone individually through the app. I am worried a few did not go through. If you did not get personally thanked, a thousand apologies, and I blame the app.

:heart:

Yup done. As said we take care of our own.

And I just read Velocity’s thread about ‘Staying sane in this political climate’ Stuff like this helps, we’ve got to stick together while people are trying to stick it to us.

FWIW …

The ADA thing – if applicable, and IF you chose to inquire about it – wouldn’t be about the money, drug coverage, or reimbursement, per se.

Rather, it would be about you getting the school to work with you toward a reasonable accommodation that helps you, with your medical issues and within the ‘new protocol’ that you described.

Speaking as a pre-diabetic who has used a CGM three times to gather data, it’s worth reading a bit about how CGM’s differ from finger sticks. The most important thing is that there is a lag - CGM data tends to be about 15 minutes delayed, because of the way the biology involved works. You should probably discuss this with your provider to see if there are any changes in how you handle things.

There may also be some offset between the two types of readings. I was coached to watch the shape of the graph and worry about that much more than the absolute value, and there are posts on various forums online discussing the comparison. Again, a discussion to have with your provider to see if it’s anything to be concerned about, or if I’m talking about something that doesn’t apply in your case.

That’s kind of a signature move of mine by now. Please don’t bogart it :wink:

[good post]

How 'bout if I give you credit for inspiration? :rofl:

You are such a unique and outstanding Doper, and I was glad to help out a tiny bit.

I chipped in a little. I hope it helps!

ADA isn’t about insurance, but about workplaces’ legal obligation to provide reasonable accommodations.

I love you guys. :smiling_face_with_tear:

To hopefully reassure you on that point - my donation was anonymous and even so I got two separate acknowledgments and thank yous, so while I can’t tell you if everyone was thanked, I’m guessing that your efforts were successful.

:+1:

characters

My goal was only $750, and now it’s up to just short of $2,000! I’m speechless. So much is from this direction (albeit, many local friends chose to bypass GoFundMe). You guys have turned a terrible time into something that has given me hope.

I have procured my new phone, but not set it up yet, because I’ve decided that since I took tomorrow as a personal day a couple of weeks ago, I’m going to go to an office of my carrier, and have it transferred there. Doing it myself the last time took over an hour. I went ahead and came home after buying the phone, because it was after 5, so I thought the carrier office would be crowded, and, I just wanted to get home.

But, tomorrow, I transfer the phone, install the app, and setup my free sample CGM. Then I go to the pharmacy and get two more CGMs, and the rescue inhalers.

Going to put all the $$ I don’t yet need in interest-earning savings account, where I will have it to buy the CGMs or inhalers any month of unexpected expenses, when I otherwise might not be able to get them.

Thanks again, guys.

I’m glad you’ll be able to set aside a little bit of a cushion against unexpected costs. I’ve been lucky enough to have some savings for quite a while now, but I remember when I had $65 in the bank and rent of $800 was due in a couple weeks! I was expecting a paycheck that would cover it, and it did, but still … that is a stressful way to live, and you don’t need that extra stress.

We never really recovered the saving we spent during the pandemic. The news was always saying it would be over soon, so we just kept using savings, and suddenly it had been a year.

We have some money saved for the boychik, but it’s in an account with a penalty for early withdrawal (which seemed like a good idea when we set it up, because it has a high interest rate), unless there is something dire, like one of us needs chemo, or our apartment and all our stuff is completely destroyed in a natural disaster. And at any rate, it’s not enough to replenish savings.

It is weird living like this-- it was like this in my early 20s, and I thought I’d gotten away from it forever.

Six years until Social Security.

Be careful with yourself as well. All of that stress certainly isn’t going to help existing medical concerns! Make the most of the personal day above and beyond just doing the needed chores for you as well.

Rambles about non-GoFundMe things for a while. Skip to the arrow, if you are interested only in GFM info.

It’s always fun for me doing something different, even if that’s cleaning the kitchen, if I have sort of a naughty feeling of playing hooky while doing it. It’s just nice having a break from routine, and nice getting something done not on the weekend, which I really need for rest.

I used to be able to hire a cleaning service once a month, so my cleaning I had to do wasn’t as intense, but I haven’t been able to do that for a while. I also was a little neater, because I had to keep things neat for the cleaners.

Gonna try to do some organizing today, even if it’s mainly getting boxes, and throwing this I never use in one, things I rarely use in another, and things I use a lot in a third, then putting the “never use” in garbage bags, “rarely use” in a closet off the porch, and concentrate my time on the “use a lot” stuff.

Also made some appointments today for stuff I haven’t been able to get to around work. Getting steroid injections in my knees that I get every 8 - 9 months, and am about 2 months overdue for. They take about 15 years off my knees.

I rode a bike literally everywhere, all weather, distances that would have stymied most people, as long as I didn’t have to haul anything or pick up a passenger, and that was from about age 21 to age 29 (when I got a dog, and started to more hiking, less riding, albeit, I did ride around town with the dog sometimes, who loved it). But I still biked a lot, especially with DH. Didn’t really quit biking until I was pregnant.

Result of which is a complete loss of cartilage in my knees, and some arthritis. Also have problems with my feet, but for different reasons (and different in each foot, and not age-related, like my knees).

—>
Hit $2,000, and then went slightly over. Big, big thanks to the people who went ahead and donated even though I am past my goal! I guess I need to update the GFM, but it sounds greedy to say “Hey! keep giving even though I’m past my goal!”

Since the total monthly cost of the CGMs & inhalers is $271, I’m pretty sure that I’ll be using the money in savings a month here and there. I’ll probably try to put $20 - 25 in the savings account in months where I have a surplus, and gift $$ and such (in May, December, and my birthday, parents give me either cash/check gifts, or gift cards; sometimes the cards are from Target, which isn’t so helpful, albeit, I did get new glasses a few months ago from Target Optical, but often to Amazon, or just Visa/MC cards), so it doesn’t zero out.

Big six-zero coming up in exactly 6 months. Other teachers have gotten amazing gifts for milestone birthdays. I just need a subtle way to get the word out.

Anyway, when I told the Executive Director of the synagogue the whooooooole story, including the part about the GoFundMe, she said if I ever needed a little more money, the synagogue has funds for a month or two here and there, and Jewish Family Services has funds that might possibly support it longer term, and she would help me get in touch with them.

As it is, even after the new phone, the copay on the doctor’s visit where everything was prescribed ($10), and one other related expense, there will be enough just from GoFundMe to cover the two devices for 6.5 months, and that is assuming that I need two inhalers every months, which I doubt I will.

—> End of GFM news

I have had serious crises where I could not get my sugar to stay up, and had to call 911, but that has happened only twice in my life. My plan is to fill the inhaler twice for two months at two per, but assume I won’t use it a lot, and refill only after using one, or when one goes past date, with the goal of having 4 - 5 on hand. While I can see going months and never needing one, I can also see a crisis where I need 3.

Previously, I’ve had a glucagon injector. I’ll still have one and a bracelet that says “Hypoglycemic – Please check my sugar – I carry a glucagon injector” because I can’t use the inhaler if I’m unconscious.

In regards to the medicine policy and the inhaler, the ExDir says get her information on the inhaler, and maybe a letter from my doctor. If it is truly something not poisonous to a child, then I could get an exemption for it. All that is in it is glucagon, which is a naturally occurring hormone; a chemical that dilates nasal tissue so it absorbs the glucagon faster; a stabilizer that is very common in medicines; and a preservative that is common in medications and food.

The website says it can be prescribed for children as young as one year. We have younger children, but not in the room where I work, and they probably cannot get the wrapper off, nor depress the trigger, because their hands are too small.

It’s also small enough to be kept in a large, child-proof pill bottle, plus, it can be kept on a high (for a child, like 5’) shelf in a closed cabinet. I’m pretty sure I can open a child-proof bottle, crack the wrapped, and depress the plunger in under a minute.

FWIW, I have not carried a glucagon injector since the new med policy at work.

I flash back on the moment I found that goddam pill in our classroom, and decided to turn it in, instead of pocketing it (which I briefly considered). I knew this is where I’d be, eventually, but I still think I did the right thing. I’m also pretty sure I know whose pocket the pill fell out of. Haven’t said anything, because no one has asked.

And that’s the way it is, Wednesday, June 7th, 2026.

Thanks to those who were interested, even if you just read the GFM part.

Most importantly, what’s your dog’s name?

I got the sense that this particular issue may very much be considered in the past tense :frowning:

The dog I hiked & biked with, or my current dog, who is in the GoFundMe picture?

The dog I mentioned hiking & biking with was Dina. I got her when I was 27 or 28, and she died while DH was deployed to Iraq, which was 2004.

Current dog, the one in the picture, is Evie. She came with that name from the shelter in June of 2018. She was about 2 1/2. She has not slowed down a bit since. If anything, she has sped up, because she was very timid when I got her. She got over it.