# I have an uncommon and incurable desease! **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [September 12, 2000, 9:49pm UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950 "2000-09-12T21:49:50Z")\ **Posts on this page:** 20\ **Page:** 1
**Author:** ![Biggirl](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/biggirl/32/3294_2.png) [@Biggirl](https://boards.straightdope.com/u/Biggirl)\ **Post date:** [September 12, 2000, 9:49pm UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/1 "2000-09-12T21:49:50Z")
Years I’ve spent asking doctors “Is this normal?” and “A why does this keep happening?” I have finally been diagnosed. And when I say “years” I mean I had my first emergency room visit over this in 1989! So, what does this diagnosis mean to me? Absolutely nothing. It is incurable, though not fatal. Treatment will be more aggressive, but basically the same. Now I know I’ll just have to live with it and hope it doesn’t develope into something incurable and fatal. You wanna know what it is, dontcha? Well, can’t a girl have any secrets on this board? ---
**Author:** ![Brunetter](https://avatars.discourse-cdn.com/v4/letter/b/839c29/32.png) [@Brunetter](https://boards.straightdope.com/u/Brunetter)\ **Post date:** [September 12, 2000, 9:57pm UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/2 "2000-09-12T21:57:15Z")
I’m not sure whether to offer congratulations or condolences. Well, at least you are finally validated - yes, there \* is \* something wrong with you. (That’s not meant to be as insulting as it sounds.) Care to confer with the queen of bizarre diseases? I’ve had slapface, vertigo, and Bell’s Palsy - all nonfatal, incurable, and highly uncommon. It’s kind of like my niche in life. ---
**Author:** ![Biggirl](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/biggirl/32/3294_2.png) [@Biggirl](https://boards.straightdope.com/u/Biggirl)\ **Post date:** [September 12, 2000, 10:23pm UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/3 "2000-09-12T22:23:25Z")
> [@](#): > > \*Originally posted by Brunetter \* > \*\*Well, at least you are finally validated - yes, there \* is \* something wrong with you. \*\* Yes, Brunetter, this is exactly what I felt. There is something wrong with me besides the voices in my head! I just wonder why it took so many _years_ for the doctors to figure out what was wrong with me. Not that I want to disparage doctors. . .wait a minute, yes I do. They can be so arrogant sometimes. If my first doctor had said “You know, I’ve never seen anything like this before. Let me consult with a few of my colleagues. . .” ---
**Author:** ![Silver\_Fire](https://avatars.discourse-cdn.com/v4/letter/s/a88e4f/32.png) [@Silver\_Fire](https://boards.straightdope.com/u/Silver_Fire)\ **Post date:** [September 12, 2000, 10:38pm UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/4 "2000-09-12T22:38:34Z")
> [@](#): > > \*Originally posted by Biggirl \* > \*\*Well, can’t a girl have any secrets on this board? \*\* No. Guys can’t either. 😃 Glad to hear you finally got some answers. ---
**Author:** ![Shadowfox](https://avatars.discourse-cdn.com/v4/letter/s/c89c15/32.png) [@Shadowfox](https://boards.straightdope.com/u/Shadowfox)\ **Post date:** [September 13, 2000, 1:02am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/5 "2000-09-13T01:02:01Z")
> [@](#): > > \*Originally posted by Brunetter \* > **Care to confer with the queen of bizarre diseases? I’ve had slapface, vertigo, and Bell’s Palsy - all nonfatal, incurable, and highly uncommon. It’s kind of like my niche in life.** I know what vertigo and Bell’s palsy are, but slapface? What is that? Do you have permanently red cheeks that look like someone slapped you, or do you have this uncontrollable urge to backhand people? ---
**Author:** ![TroubleAgain](https://avatars.discourse-cdn.com/v4/letter/t/e480ec/32.png) [@TroubleAgain](https://boards.straightdope.com/u/TroubleAgain)\ **Post date:** [September 13, 2000, 1:04am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/6 "2000-09-13T01:04:28Z")
> [@](#): > > \*Originally posted by Biggirl \* > \*\*You wanna know what it is, dontcha? Well, can’t a girl have any secrets on this board? \*\* Oh, come on, Biggirl, if you didn’t want to tell, you wouldn’t have started this thread, right? Do tell. Anyway, congratulations on your validation. I hope there’s some treatment to help you with it, at least. ---
**Author:** ![Angkins](https://avatars.discourse-cdn.com/v4/letter/a/fbc32d/32.png) [@Angkins](https://boards.straightdope.com/u/Angkins)\ **Post date:** [September 13, 2000, 2:40am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/7 "2000-09-13T02:40:32Z")
You have to tell!!! I won’t be able to sleep, I’ll be so curious! 😉 ---
**Author:** ![Biggirl](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/biggirl/32/3294_2.png) [@Biggirl](https://boards.straightdope.com/u/Biggirl)\ **Post date:** [September 13, 2000, 3:14am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/8 "2000-09-13T03:14:11Z")
O.K., name all the uncommon, incurable yet nonfatal and noncommunicable diseases you can think of and if you’re right, I’ll tell you. Win a prize! Really, it’s kind of gross and I have a dopefest coming up this Friday. I don’t want to keep people away. I actually posted this thread because this is my let it all hang out board. I knew you guys would make me smile even though it was very upsetting finding out that it’s fucking incurable and I’ll have to live the rest of my life dealing with it. Maybe I could do like Walt and have myself frozen until they find a cure. ---
**Author:** ![TroubleAgain](https://avatars.discourse-cdn.com/v4/letter/t/e480ec/32.png) [@TroubleAgain](https://boards.straightdope.com/u/TroubleAgain)\ **Post date:** [September 13, 2000, 4:18am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/9 "2000-09-13T04:18:39Z")
Rheumatoid arthritis? ---
**Author:** ![Biggirl](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/biggirl/32/3294_2.png) [@Biggirl](https://boards.straightdope.com/u/Biggirl)\ **Post date:** [September 13, 2000, 4:27am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/10 "2000-09-13T04:27:11Z")
> [@](#): > > \*Originally posted by TroubleAgain \* > \*\*Rheumatoid arthritis? \*\* Not that uncommon and not too gross, either. ---
**Author:** ![Falcon](https://avatars.discourse-cdn.com/v4/letter/f/49beb7/32.png) [@Falcon](https://boards.straightdope.com/u/Falcon)\ **Post date:** [September 13, 2000, 4:35am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/11 "2000-09-13T04:35:51Z")
Lupus? ---
**Author:** ![Biggirl](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/biggirl/32/3294_2.png) [@Biggirl](https://boards.straightdope.com/u/Biggirl)\ **Post date:** [September 13, 2000, 4:40am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/12 "2000-09-13T04:40:32Z")
> [@](#): > > \*Originally posted by Falcon \* > \*\*Lupus? \*\* Nopus. BTW Falc, are you having trouble getting on the Mountain? I keep getting a “you are not authorized to access this page” message. and BTAW, do you subscribe to the aarlist? ---
**Author:** ![Scotticher](https://avatars.discourse-cdn.com/v4/letter/s/e9c0ed/32.png) [@Scotticher](https://boards.straightdope.com/u/Scotticher)\ **Post date:** [September 13, 2000, 4:44am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/13 "2000-09-13T04:44:48Z")
Interstitial cystitis? ( I know I spelled that wrong) ---
**Author:** ![Falcon](https://avatars.discourse-cdn.com/v4/letter/f/49beb7/32.png) [@Falcon](https://boards.straightdope.com/u/Falcon)\ **Post date:** [September 13, 2000, 4:48am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/14 "2000-09-13T04:48:01Z")
Yep, I’ve been getting that message since about noon today. Last time I managed to get on the mountain was aroun 9 this morning. And nope…not on the aarlist. Not even sure what it is… ---
**Author:** ![Initial\_Entry](https://avatars.discourse-cdn.com/v4/letter/i/e9a140/32.png) [@Initial\_Entry](https://boards.straightdope.com/u/Initial_Entry)\ **Post date:** [September 13, 2000, 4:49am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/15 "2000-09-13T04:49:16Z")
> [@](#): > > do you have this uncontrollable urge to backhand people? Is this an actual medical disorder? If so, can I get an authorized card stating I have it? Hm, is it uncontrollable, random bouts of projectile vomiting Biggirl? ---
**Author:** ![Sue\_Duhnym](https://avatars.discourse-cdn.com/v4/letter/s/91b2a8/32.png) [@Sue\_Duhnym](https://boards.straightdope.com/u/Sue_Duhnym)\ **Post date:** [September 13, 2000, 5:19am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/16 "2000-09-13T05:19:34Z")
Labial elaphantitis? ---
**Author:** ![Biggirl](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/biggirl/32/3294_2.png) [@Biggirl](https://boards.straightdope.com/u/Biggirl)\ **Post date:** [September 13, 2000, 5:25am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/17 "2000-09-13T05:25:33Z")
Whichever way you spell it Scotti, I don’t have it. That’s not a desease, that’s what happens after a really long Saturday night. And Falc, a woman on that list named Falcon2 described herself as a “Book Goddess” and I thought of you. ---
**Author:** ![Biggirl](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/biggirl/32/3294_2.png) [@Biggirl](https://boards.straightdope.com/u/Biggirl)\ **Post date:** [September 13, 2000, 5:26am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/18 "2000-09-13T05:26:49Z")
> [@](#): > > \*Originally posted by Sue Duhnym \* > \*\*Labial elaphantitis? \*\* No, thank goodness. I don’t think I could afford the underwear. ---
**Author:** ![Larry\_Griffin-Kentzel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/larry_griffin-kentzel/32/14787_2.png) [@Larry\_Griffin-Kentzel](https://boards.straightdope.com/u/Larry_Griffin-Kentzel)\ **Post date:** [September 13, 2000, 5:50am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/19 "2000-09-13T05:50:07Z")
Howzabouta hint…please?! ---
**Author:** ![Archer](https://avatars.discourse-cdn.com/v4/letter/a/85f322/32.png) [@Archer](https://boards.straightdope.com/u/Archer)\ **Post date:** [September 13, 2000, 6:09am UTC](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950/20 "2000-09-13T06:09:27Z")
Impacted hemorrhoids? [Next page](https://boards.straightdope.com/t/i-have-an-uncommon-and-incurable-desease/32950.md?page=2)