In constant pain for a month - don't know where else to turn

On Monday, the pain was really bad. I had probably done too much standing up over the weekend - I was baking treats to take to a party (since I always pride myself on making something homemade rather than buying a bag of chips or whatever), and then going to the mall to return some things I had bought online.

So on Monday the pain was pretty bad. I called up the office of the sports medicine doctor that I had previously seen, to try and get an appointment that day. They said he was unavailable until Wednesday, so I asked if I could see another doctor in the practice - there are about 10 doctors in that practice. And I was told no, because I am “his patient,” and therefore I can’t see anyone else.

So I looked for a new primary care physician. Using the website for my health insurance, I managed to find a doctor who was taking new patients and was available to see me that same day.

After explaining the entire situation to her (and telling her the other doctor’s response), she asked me a few questions, and felt my muscles, asking where it was hurting. She concluded that it was a massive case of muscle tears, and I had to just take it easy until they healed. She said that cases like this can sometimes take months. I asked if it was possible that I had some kind of permanent damage, and she said she didn’t think so. She had me get some blood work done, because it could show if any muscle breakdown was showing up in the blood, or something like that.

So when I asked for advice on how to get around without aggravating the muscles, she said to stop all exercise (which I am already doing) and to take things slowly - like if I was trying to do a household chore, just do a little at a time, with breaks in between. She also advised me to drink lots of fluids, including Gatorade, for the electrolytes.

Just to be sure, I also saw my gynecologist to ask about blood clots in the legs. After explaining my situation to her, she said it didn’t seem like blood clots because you usually feel them in the back of the leg, not the front, and the other symptoms didn’t quite match up either. She did write me a prescription (or whatever it’s called) to get a test done to check for clots just in case, but I haven’t done it yet because I was waiting for the blood test to come back.

I called on Friday to ask about the tests, and just spoke to someone working in the doctor’s office, but not the doctor herself. She said that the only thing the tests showed was that I was low in vitamin D, and I should start taking a 1000 IU supplement of D3. I asked if this was related to the muscle pain or if it was something they had just coincidentally happened to find. At first I don’t think she understood my question, and then she said that it might help with the pain, but I’m not sure if she was just making something up or what. But I went to Rite Aid and bought some D3, which I have been taking daily. The only other thing she said was that the doctor wanted me to come back in 4 weeks, so I made another appointment.

So that’s where I stand. I am feeling seriously depressed about the whole thing, and the thought of continuing like this for months makes me want to cry. I can barely walk, and can’t stand up for more than a few minutes at a time. All I do all day long (when not at work) is sit at the computer and surf or watch YouTube videos. I used to enjoy cooking healthy meals, but now am resorting to simple dinners with more processed ingredients, simply because it means less preparation and less cleanup (although I am able to do some things by sitting at a stool in front of the stove and/or sink).

My mom came over last week to clean the house for me, and next week I have a cleaning service coming (I got a Living Social coupon, similar to Groupon, for the service). And I guess my mom will come back the week after that. But I am still having difficulty with the day-to-day cleaning, and it has been causing a lot of tension in my marriage - Mr. Ipsum seems to think I am no longer doing my fair share of the household chores. He does the laundry, bed-making, taking out the garbage and a few other things, and the kitchen, bathrooms and vacuuming have always been my thing. His opinion seems to be that I am a wuss that just can’t handle a bit of pain - but I am afraid that every time I stand up too much and cause pain, that I am just delaying my recovery.

Has anyone gone through anything like this? Is Gatorade and vitamin D going to help or am I kidding myself? I can believe that a serious muscle injury will take a while to heal, but the problem is, it’s impossible to entirely avoid using my legs, short of buying a wheelchair. In the spring I had a muscle injury that lingered - I was doing an arm exercise, and accidentally did the same arm twice instead of doing once on each arm (don’t ask). So that shoulder was sore for about 2 months. I avoided doing that particular exercise again, although other arm exercises probably aggravated it too. It didn’t hurt all the time, but during certain movements. But since I can get through my day without moving my arm in that particular way, eventually it did get better. I am starting to doubt that my legs will ever get better.

Today I was doing some baking - again, it’s a long story, but it was something special that I didn’t want to cancel. And since I had to do a lot of standing up, my legs have been hurting all day again. I ended up taking a bath for the first time in about 20 years because I couldn’t stand up long enough to take a shower. So I am starting to doubt that I will ever be in a situation where I can just spend weeks at a time sitting down and not have to get up and walk, to let my legs recover. Is it possible that they can still get better even if I have to stand/walk?

And of course, I am worried about the health problems I might cause by being so sedentary. Right now I feel between a rock and a hard place with no way out. :frowning: I have started seen a psychologist about my depression, but I am hoping that someone here may have some words of comfort too. Am I ever going to get better?

I am going to recommend a very old remedy. Epsom salts.

Buy a bulk bag, put two cups into a hot bath and soak for at least 30 minutes each night.

Last year my mother was having severe muscular pains (hers were due to chronic kidney disease and side effects from statins instead of an injury) but part of her treatment for that was at first megadoses and then smaller doses of Vitamin D and it did help with the pain. It wasn’t overnight, I’d say 2 weeks to a month. But it did help.

Any chance of your husband going with you to the psychologist? It can be hard for people who haven’t experienced it to understand how debilitating and depressing chronic pain can be; maybe if he hears it from a professional he’ll ixnay the wuss comments.

Without going into exquisite detail, I injured myself earlier this year. Per my ortho and PT, no gym for me for 3 months. As I normally spend a couple of hours a day working out 5 days a week (sometimes 6), I have had to make some major adjustments. I’m looking at the bright side. I get to watch a lot of tv, surf the web and relax. As a lifestyle, it’s not going to work for me, but I can kick back for a while. It’s what my body needs. I’ve been working out my entire adult life. A few months off won’t kill me. I’ll have the thrill of watching my body transform all over again, and it’s not like a few months off will leave me looking like the blob. I’ll be fine, and I’m a lot older than you are.

I don’t see a problem with sitting while you prep dinner. Make it simple.

Take baths. There is no law that says you must shower.

Mr. Ipsum needs to back off. If you can’t, you can’t. You’re obviously not lazy. You’re injured. I’d bet Mr. Ipsum has never had an injury. Most people who behave like he is behaving have no idea what a person who is injured is going through. It sucks.

Don’t feel guilty about getting someone in to help you. It’s not forever.

Use your legs as little as possible. Of course you are going to need to use them, but do it sparingly.

Treat yourself as if the person you loved most in the world was hurt, and needed to stay off their feet. Anything you wouldn’t let them do, don’t do it yourself.

You will get better as long as you take care of yourself.

I’m not sure I read every word in this thread but I must have come close, so forgive me if this has been covered. I saw mentions of sciatica upthread but none of any actual scans to look for disk bulges, impinged nerves and so on. So that’s my suggestion, get scans done.

I was rendered similarly incapacitated but it was my Achilles tendons and it was cumulative, not sudden (although fencing lessons put me over the edge.) A year of increasing pain despite PT and a couple of months of immobilization boots and still no relief. Finally a referral to a good rheumatologist gave me an answer.

Okay, so my answer is not likely to be the same as your answer but don’t get discouraged. Follow your instincts and keep investigating. The unknown weighs you down so solving the mystery will give you an immediate boost and get you on the healing path back to your bike. Hang in there.

Have you been screened for parathyroid disease? For a start, did your new doctor test at least your total calcium, if not an ionized calcium? Even a MILD elevation of your total calcium warrants further investigation, as it is never normal to have an elevated calcium level. With your severe pain and your low vitamin D, I think I would consider hyperparathyroidism a possibility. The good news is that if this IS your problem, getting it treated will resolve your pain. But hyperparathyroidism causes very severe bone pain, particularly in the long bones, such as the thighs.

And actually, the more I think about this, I am bothered by this lump on your knee, as it could be what is termed a “Brown tumor of the knee” which is also common in parathyroid disease. It is not a true tumor, but the result of bone lysis.

Anyway, I would encourage you to check this out, as untreated hyperparathyroidism leads to kidney stones and eventual mineralization of the kidneys. Plus, it is intensely painful.

Maybe you should look Pudendal Nerve Entrapment.

http://en.wikipedia.org/wiki/Pudendal_nerve_entrapment

I have a friend who had been in great pain for over a year and wasn’t able to work. She even had surgery on her spinal cord, and that didn’t fix the problem. I did some research and suggested she might suffering from PNE. I couldn’t find a local doctor that was familar with PNE, but I located physical therapist that was familar with PNE and she knew a OB/GYN that knew about it. My friend responded well to therapy and experienced a reduction in pain in a couple of weeks and was back to work in a couple of months.

http://www.pudendalhope.org/

I notice the OB/GYN that treated her isn’t on the list. If you find a local PT, ask them if the know a local doctor.

Thanks. Yes, I know that individually, none of these inconveniences makes a crisis, but it just left me feeling very discouraged. I was doing so-so on Saturday, but then I had to stand up for about an hour or so on Sunday, baking, and then I was done for the rest of the day, not even being able to stand up for a shower. I am just frustrated that I can’t just avoid doing things that involve standing up. I have had a few occasional days where I was feeling okay, but then I always ended up doing some kind of physical activity that set me back again.

For me, it’s not as easy as just staying off my feet, because I have all these things I have to do. Even if someone else does the weekly vacuuming and toilet scrubbing, I still have to cook dinner (or at least microwave something) every day and then clean up the kitchen. And we always do grocery shopping together and then I put away the groceries. I am hesitant to ask my husband for help too often (or ask him to do the shopping without me), because so far, every time I have asked for help, he will do it, but with sighing and eye rolling.

In the time I have known him, he has never been injured, and only got (mildly) sick twice. But he is also of the mindset that pain/discomfort is just mind over matter, and that the answer to an injury is to just tough it out. I can’t make him understand that it’s not just an issue of pain, but the fact that every time I cause pain, I am probably delaying my recovery. So he doesn’t understand why I can’t just “ignore the pain” and go around doing all the things I usually do. And although he hasn’t said so, he is probably frustrated because I am in too much pain (and depression) for certain other “activities” and probably will be for the foreseeable future. And I feel terrible about that. :frowning:

As for ugly ripe tomato’s comment about him seeing the psychologist with me, the psychologist actually did suggest that too - so that she could talk to him about why I need help doing things around the house. But I know it would go badly. While he has been supportive of me seeing her, he would not want to go himself. Aside from the fact that he hates seeing doctors (of any type) I know he would get extremely defensive if she were to try to talk him into letting me take it easy, and he would feel like he is being accused of something. I think it would end up causing an argument and just making things worse between us.

I just feel like, it’s been over a month since I stopped doing any exercise and I thought I might at least be seeing some improvement by now. The fact that I’m not, makes me think that I’m still doing too much standing/walking, but I don’t see any way to reduce it further, which makes me worry that I am never going to get better.

I don’t have any advice for you, but I do have some support and encouragement. I had about a year, maybe a little longer, where my stomach hurt all the time. It hurt when I was hungry, and it hurt when I ate. I can sympathize with your feelings of depression and hopelessness and frustration; nothing I do seemed to help, all the tests came back normal, I was chugging Pepto Bismol by the litre, and it seemed like it would never stop hurting. My doctor finally figured out that I was probably having Irritable Bowel Syndrome, which in some people (like me) manifests in stomach pain. I finally figured out which foods were irritating my innards, and my occurrences of stomach pain are down from daily to maybe monthly - an annoyance, but not overwhelming. Part of my relief is having a diagnosis now - not knowing what is wrong with you is another source of stress.

Chronic pain IS exhausting - it’s like when you wake up in the morning, first thing you do is strap on a 50 pound weight, then go about your daily routine. I hope you can figure out what’s going on, and get some resolution. And tell your husband from me that he needs to step up and help you out while you’re going through this.

[quote=“LaurenIpsum, post:50, topic:595108”]

. . .

As for ugly ripe tomato’s comment about him seeing the psychologist with me, the psychologist actually did suggest that too - so that she could talk to him about why I need help doing things around the house. But I know it would go badly. While he has been supportive of me seeing her, he would not want to go himself. Aside from the fact that he hates seeing doctors (of any type) I know he would get extremely defensive if she were to try to talk him into letting me take it easy, and he would feel like he is being accused of something. I think it would end up causing an argument and just making things worse between us.

. . .

[quote]

I strongly recommend that you insist upon his attending the sessions. I know it’s really hard to summon the energy right now, but it’s important. You deserve a parnter in life who will step up when you need help/support. If he’s not going to be there for you, you need to know that for certain and make some decisions accordingly.

Loading the “DTMFA” gun, but holding fire for the moment. . . :wink:

Don’t drink Gatorade…it’s horrible for you. If you need the electrolytes drink SmartWater made by Glaceau.

The good news is, it seems that my quads are feeling much better. So it’s possible that at least part of the problem was muscle soreness, which took a long time to heal. The bad news, after my last physical therapy appointment, my left knee has swelling and sharp pain (my right knee is also a bit sore, but not as bad, and no swelling). I actually noticed about a month ago that there was a bit of a bump on that knee, which felt a little tender. I mentioned it to the PT, and he didn’t even look at it, just said that muscles on different sides of the body can be different shapes & sizes. But whatever it is, my latest appointment made it worse.

This swelling & sharp pain happened on Thursday afternoon last week, so on Friday I called my primary care physician, who I then saw this week on Monday. She told me to go back to the orthopedic doctor from August. So I saw him on Wednesday, and he wrote me a prescription for an MRI (I noticed that he wrote it was a possible “torn meniscus.” I have not Googled this because whatever it is, I’m sure I will freak out.)

The doctor told me to make an appointment after I have the MRI. I got an appointment for the MRI later today, so I tried to call back the doctor’s office to see if I could come back tomorrow. Turns out I have to wait a week to come back because it takes that long to get the records from the MRI. I asked if there was any way to speed things up, and they said I could see about picking up the records myself. So I called back the MRI place to ask. They said it would be at least 2 business days until they were ready (and Monday is a holiday), so I could try calling on Tuesday. But that means I can’t even make my doctor appointment until then, because we don’t know for sure if they will be ready.

Fuckity fuck fuck fuck. Why does everything take so damn long? Good thing I didn’t have something more serious or I’d be dead by now, at the rate things are going. (And it’s a good thing I don’t have a job that requires me to stand.) On the one hand, I’ve been sitting on my butt in near constant pain for 2 months (putting on weight and getting hemorrhoids), so what’s another week? But on the other hand, this torn meniscus (or whatever it may be) is new, and I am afraid that it might get worse if left untreated - by the time I see the doctor again, it will likely be 2 weeks since it started.

I tried to ask about getting a pain prescription from the ortho, but, naturally, he’s gone home early today. So I called my primary care physician and got a prescription for some kind of drops that I can put right on my knees to help the pain. Hopefully that will do something.

Last year I saw a neurologist about headaches which turned out to be caused by a spinal fluid leak. They had an MRI place right on the premises, and I thought I remembered just walking down to get the MRI, then walking back up to the Dr.'s office to discuss the results. Maybe I’m misremembering? How can one place give you instant results and the other one say that it takes 2 business days?

Come to think of it, I developed my spinal fluid leak at the end of July last year, and my leg pain started at the end of July this year. I think in July 2012, I will stay inside all month.

One other good thing is that Mr. Ipsum is being a bit more sympathetic. I showed him the swelling on my knee, and maybe the visual evidence was enough to convince him that this is something real, and not just me being a wimp. A few days ago I apologized to him about how I was having a hard time with cooking, and there has been no “sexytime” since this whole thing began. And he said that he was more concerned with my mental well-being (referring to how depressed I have been). I recently paid to have a cleaning service come over and clean the house because I just can’t do it, and when he found out I paid for it myself, he told me to take the money out of our joint account instead.

I had the MRI last week and saw the orthopedic doctor today. The result: The MRI shows absolutely nothing wrong.

The Dr. asked why I was disappointed to find that nothing’s wrong, and I said it’s because something obviously is wrong and we still don’t know what it is, unless I am just crazy.

The doctor examined my knee again, the one that had the sharp pain and swelling after my last PT. He couldn’t see/feel it at my last appointment, and he couldn’t feel it again today, although that’s because it has gone down quite a bit. And he made some comment, “I’m still not able to find this bump you say is in your knee.” Or words to that effect. It seemed very condescending, as if I’m just making it all up.

And he ended by saying that sometimes things in the body go “out of whack” and we don’t know exactly what they are, but they go away on their own. In passing, he mentioned the possibility of this being a hernia - I’ve never heard of that happening in the leg/knee, but if that’s what it is, a bit of Googling has shown me that hernias don’t just clear up on their own.

He also said I should feel free to start exercising at the gym again, just don’t do any squats, and that I could try riding an exercise bike. When I pointed out that exercise is what has been consistently shown to make my pain worse, he just shrugged and said I should be fine as long as I avoid squats. Screw that. I’m not doing any exercise until this goes away, whatever it is.

So, since my quads are about 90% back to normal, I’m inclined to think this is just a matter of time. On the other hand, I am concerned about my knee. The swelling was very real, and my husband witnessed it. Admittedly, the knee itself seems to be less painful, but I still have this prickly sensation in it, almost like there’s a rip or tear somewhere. And the lower part of my thighs (right above both knees) still complain when I stand up for more than a few minutes.

The doctor did mention that I should feel free to get a second opinion from someone else if it would make me feel better, but he really didn’t think it was anything to be concerned about. I may just do that. Although I have an appointment to go back to my primary care physician next week, so maybe she’ll have some more thoughts.

Ugh, I can’t stand condescending doctors.

I am glad to hear that some of the pain is going away though. I hope it really is one of those things that just goes away on its own.

That does suck. I definitely agree with you getting a second opinion; your current doctor doesn’t seem appropriately concerned considering how much pain you are in.

My husband reported the same effects from Vicodin, they just don’t work as a pain reliever for him. He switched to Percocet and that worked much better, though he didn’t like taking them because he liked them too much and didn’t want to get hooked.

I have no thoughts on your pain, but I do on knees.

I hurt my knee one day, almost 10 years back. I went to the Dr, who couldn’t find anything wrong. I suffered knee pain off and on for years, my right knee would swell up and a hard/tender lump could be found. I went to the top sports doctor in my area, who took MRI’s, x-rays, and sent me to PT for months. Eventually, he simply told me, “sometimes, your knee just swells up and hurts.”

It’s been 3 or 4 years now since I had a really bad attack. Most days I even forget I used to hurt so bad I was limping.

I remember reading somewhere that when you have bad swelling in tissues, the nerve endings get damaged and the tingly/prickly thing is the nerve endings regenerating, so it’s actually a sign of healing. A few years ago I sprained the hell out of my ankle and felt the same kind of sensation in it after the swelling went down.