Well, it’s a new day now. Getting this crap off my chest really does help. I appreciate the comments and support.
My girls are both getting lots of therapy. The area we live in has been really good at providing services. Most of the people we’ve dealt with have been phenomenal. We’re very lucky in that regard. My oldest is still really far behind with her speech, but she’s making progress in tiny steps.
I don’t know if there’s necessarily a general link between low muscle tone and autism; the way our doctor was talking, it was more like the muscle tone was an indication that both kids shared some genetic defect. That defect may or may not also be responsible for the oldest’s autism, and if it is, it may or may not cause autism in the younger as well. It always comes back to “wait and see”.
I’ve got an appointment today to get educated on all things diabetes. Can’t wait.
And fruit fly ovaries are boring. Actually, they can be quite pretty under the scope, but after imaging a few tens of thousands of them, the charm wears off.
I’m sorry for all the trouble, Smeghead- that’s a ton of unwanted bullshit you’re dealing with. In time this stuff should get easier to handle, and until then I hope you don’t have any new problems.
I do not claim to be an expert on Diabetes, but make sure to get a good lancing device for your fingers when the time comes to pay Dracula (aka A glucose meter) a couple of visits everyday. I reccommend the sides of your fingers. (Hurts less for me.)
Fastclix (Multiclix) and One-Touch Delica are great lancing devices, as these are the most positively spoken devices on quite a few diabetic message boards. These can be usually bought by themselves over the internet, but you can find them with certain meters at equal or cheaper prices at quite a few drugstores.
Sorry to hear about getting diagnosed with Diabetes and I hope your insurance will cover your supplies.
As the attending pediatrician that attended by daughters birth and resuscitated her would say “progress is good.”
Anything you can do to help the muscle tone (and core trunk strength) will pay dividends in less challenges later in life (regardless of an autism link or not). At least, in my experience muscle tone is so important in multiple areas.
So, I’ve spent the last couple of weeks getting my head around the diabetes and figuring out my new routines and dealing with the dietary restrictions and whatnot. Then today, my younger daughter went in for her 9-month checkup.
The doctor is concerned about the size of her head. She’s always had a big head - that’s a family trait on my side - but it’s taken a leap up. She’s been hovering around the 95th percentile her whole life, and now it’s shot up and off the chart. The doctor is concerned enough that she doesn’t want to wait for her 12-month appointment and is going to measure her again in six weeks. If it’s still like this then, we move on to an MRI to see what’s going on in her brain.
So we get to spend the next month and a half wondering if our youngest child is dying of a brain tumor. I know it’s perfectly possible that everything is fine, but frankly that sort of assurance is wearing really really thin.
So sorry to hear about your troubles. The universe does seem to be taking a big dump on your family, and that’s just not fair.
I hope you and your wife are taking time for yourselves whenever possible because both of you need to be mentally and physically fit to handle what’s coming your way.
Although life has been sucky for your daughters right out of the gate, they are lucky to have such loving parents taking care of them.
