Take Care of Maya (2023). This is a documentary, but it’s as deeply moving as any drama – a well crafted, intensely personal story of one family’s struggle against medical and legal bureaucracies that threaten to permanently take their child away. The completeness of the material they gathered for this film is incredible, and is at least partly due to the family’s careful documentation and recording of events as they happened.
Maya is 9 years old at the start of the story, and suffers from a rare neurological disorder called Complex Regional Pain Syndrome (CRPS). Unable to get relief from conventional treatments, the family took her to a clinic in Mexico which gave her massive doses of ketamine that resulted in a considerable improvement.
The nightmare begins some time later when Maya is taken to the ER at Johns Hopkins All Children’s Hospital in St. Petersburg, Florida. One suspicious admitting doctor in particular, assisted by a representative of the privatized child protection agency spun off from Florida’s Department of Children and Families, deems that Maya has been abused, that she doesn’t have CRPS, and that her mother is mentally ill.
Maya is kept in the hospital for more than three months, against her will and against the wishes of her parents, with strict rules governing parental contact. When Maya’s mother begs the judge in court to let her visit her daughter and at least give her a hug, the judge denies the request. Devastated by months of despair and this latest setback, the mother returns home and takes her own life.
A significant element of the story is that when a reporter published an account of the events, hundreds of other families came forward with their own stories of government and medical bureaucracies separating them from their children.
Near the end of the film, dad, now struggling as a single father with two children, decides he has enough evidence to sue the hospital. Faced with overwhelming evidence of wrongdoing and malpractice, the hospital hires the biggest legal guns they can find and successfully prevents the case from coming to trial, year after year for something like five years. As the film ends, we’re informed that an appeals court has finally ruled that the trial can go ahead, but as the film wrapped the trial was still in the future.
But this is a true story, and the trial concluded last fall. You can see excerpts from the jury’s verdict at the link below (click on the speaker icon near the bottom to enable audio). Contrary to the incorrect text in the one-box, the family was awarded $261 million in damages, including $50 million in punitive damages. The hospital says they will appeal.