# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 14
**Author:** ![Mighty\_Girl](https://avatars.discourse-cdn.com/v4/letter/m/7bcc69/32.png) [@Mighty\_Girl](https://boards.straightdope.com/u/Mighty_Girl)\ **Post date:** [August 4, 2010, 5:14pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/261 "2010-08-04T17:14:46Z")
Nothing I can say seems worth saying, but I still want to **Bearflag70** know that I am very sorry. You’ll be in my thoughts. ---
**Author:** ![Chessic\_Sense](https://avatars.discourse-cdn.com/v4/letter/c/7c8e57/32.png) [@Chessic\_Sense](https://boards.straightdope.com/u/Chessic_Sense)\ **Post date:** [August 4, 2010, 5:51pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/262 "2010-08-04T17:51:03Z")
> [@rocking\_chair](#): > > wonderful game plan chessic sense. the tee shirt idea is brilliant! Good news. The T-Shirt plan is coming together nicely. I’m thinking of ordering 100. That’ll run about $400. If we sell them all at $15, that’s $1,100 net. I can always send a box to different corners of Doperland. PM me if you want a box and tell me how many you need. They’re between $4.65 and $4.00 depending on how many you buy. Anyone know how much it costs to mail a 100-shirt box from West Virginia to wherever-ville? Like, $25, you think? I have no idea how much that weighs. In other good news, my aunt tells me that last time they did this (for a cancer-ridden teen ager), the family sold thousands of shirts. ---
**Author:** ![flodnak](https://avatars.discourse-cdn.com/v4/letter/f/838e76/32.png) [@flodnak](https://boards.straightdope.com/u/flodnak)\ **Post date:** [August 4, 2010, 6:05pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/263 "2010-08-04T18:05:36Z")
I’m coming in late, Bearflag, but I just wanted to say how very sorry I am. And that your daughter has some of the sweetest eyes I’ve ever seen. You’re in my thoughts. ---
**Author:** ![nikonikosuru](https://avatars.discourse-cdn.com/v4/letter/n/5f8ce5/32.png) [@nikonikosuru](https://boards.straightdope.com/u/nikonikosuru)\ **Post date:** [August 4, 2010, 8:02pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/264 "2010-08-04T20:02:45Z")
I want to buy a t-shirt! ---
**Author:** ![Tristan](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/tristan/32/18058_2.png) [@Tristan](https://boards.straightdope.com/u/Tristan)\ **Post date:** [August 4, 2010, 8:51pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/265 "2010-08-04T20:51:04Z")
I am gutted. One of the worst things about this sort of situation is that we don’t have the ability to truly convey how we feel. I’ll be back in Sac in a year or so, **BearFlag** and drinks are on me. _hugs_ ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [August 4, 2010, 10:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/266 "2010-08-04T22:17:10Z")
I’ve been asked for input on a t-shirt slogan but we just wrapped up a long meeting with FSMA and our heads are full. Does anyone have ideas for a nice owl-based or other slogan for a t-shirt? Thanks for the input. ---
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [August 4, 2010, 10:43pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/267 "2010-08-04T22:43:55Z")
> [@Chessic\_Sense](#): > > Here’s the game plan for helping you out, **Bearflag**. Every time I feel like I oughta be through with this place, someone goes and does something like this. Good move, man. ---
**Author:** ![Chessic\_Sense](https://avatars.discourse-cdn.com/v4/letter/c/7c8e57/32.png) [@Chessic\_Sense](https://boards.straightdope.com/u/Chessic_Sense)\ **Post date:** [August 4, 2010, 10:53pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/268 "2010-08-04T22:53:12Z")
I came up with the simple “Fly, Little Owl!” People would buy that, I think. The alternative is what I said earlier; the direct “I helped Baby Getty’s family” or maybe “I helped fight SMA”. Her name really is Getty, right **Bearflag**? We’d look really silly if it wasn’t. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [August 4, 2010, 10:58pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/269 "2010-08-04T22:58:32Z")
> [@Chessic\_Sense](#): > > I came up with the simple “Fly, Little Owl!” People would buy that, I think. The alternative is what I said earlier; the direct “I helped Baby Getty’s family” or maybe “I helped fight SMA”. Her name really is Getty, right **Bearflag**? We’d look really silly if it wasn’t. Yes, Getty. I just think Fly Little Owl makes it sound like she’s already gone and she’s flying away. It could be something as simple as “I helped the Little Owl.” The best help she can get is for her mother to be home caring for her. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [August 4, 2010, 11:43pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/270 "2010-08-04T23:43:01Z")
**Chessic Sense** , go with your gut. I am happy with anything. Thank you so much. ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [August 5, 2010, 12:10am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/271 "2010-08-05T00:10:27Z")
i poked around on the interwebs, there were a few that were cute. i give (or gave) a hoot! thank whooo! owl always love you. ---
**Author:** ![Drain\_Bead](https://avatars.discourse-cdn.com/v4/letter/d/e47774/32.png) [@Drain\_Bead](https://boards.straightdope.com/u/Drain_Bead)\ **Post date:** [August 5, 2010, 12:20am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/272 "2010-08-05T00:20:33Z")
I like “I gave a hoot for Little Owl!” **Bearflag** , my heart goes out to you and your family. ---
**Author:** ![elelle](https://avatars.discourse-cdn.com/v4/letter/e/f0a364/32.png) [@elelle](https://boards.straightdope.com/u/elelle)\ **Post date:** [August 5, 2010, 12:20am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/273 "2010-08-05T00:20:48Z")
Bearflag, I’ve been gone a week here, so sad to hear of your wee one’s diagnosis. She is so beautiful in the photos you shared, gorgeous pure eyes, and I hope you can make her life filled with as much love as possible whatever comes. “We’re Hootin’ and Rootin’ for Our Beautiful Baby Owl” I’m hoping all the best for Y’all. ---
**Author:** ![Infovore](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/infovore/32/420_2.png) [@Infovore](https://boards.straightdope.com/u/Infovore)\ **Post date:** [August 5, 2010, 12:27am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/274 "2010-08-05T00:27:24Z")
How about: “Whoo loves you, Baby? We (or I) do!” Bonus if the design contained both a cute little owl and a pic of cute little Owl. (Does she have a little T-shirt with an owl on it?) ---
**Author:** ![elelle](https://avatars.discourse-cdn.com/v4/letter/e/f0a364/32.png) [@elelle](https://boards.straightdope.com/u/elelle)\ **Post date:** [August 5, 2010, 12:31am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/275 "2010-08-05T00:31:06Z")
winterhawk & Bearflag; That’s great! ---
**Author:** ![Idle\_Thoughts](https://avatars.discourse-cdn.com/v4/letter/i/838e76/32.png) [@Idle\_Thoughts](https://boards.straightdope.com/u/Idle_Thoughts)\ **Post date:** [August 5, 2010, 12:31am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/276 "2010-08-05T00:31:39Z")
Man, that’s so terrible. Words just don’t express. I’m so very sorry, **Bearflag**. ---
**Author:** ![Silver\_Fire](https://avatars.discourse-cdn.com/v4/letter/s/a88e4f/32.png) [@Silver\_Fire](https://boards.straightdope.com/u/Silver_Fire)\ **Post date:** [August 5, 2010, 12:35am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/277 "2010-08-05T00:35:56Z")
> [@Drain\_Bead](#): > > I like “I gave a hoot for Little Owl!” If we’re voting, this gets mine. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [August 5, 2010, 12:37am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/278 "2010-08-05T00:37:21Z")
I may be able to get an owl design. ---
**Author:** ![Unauthorized\_Cinnamon](https://avatars.discourse-cdn.com/v4/letter/u/bc8723/32.png) [@Unauthorized\_Cinnamon](https://boards.straightdope.com/u/Unauthorized_Cinnamon)\ **Post date:** [August 5, 2010, 12:52am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/279 "2010-08-05T00:52:29Z")
I’m crying for you all. I think your approach, like with the walk in the park, is right. Love is the only answer in such a horrible situation. You can make her experience of life one of total love, support, and warmth. I will be keeping up with the fund raising effort, and seeing how you and your family are doing. ---
**Author:** ![anyrose](https://avatars.discourse-cdn.com/v4/letter/a/54ee81/32.png) [@anyrose](https://boards.straightdope.com/u/anyrose)\ **Post date:** [August 5, 2010, 1:06am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/280 "2010-08-05T01:06:34Z")
> [@Silver\_Fire](#): > > > [@Drain\_Bead](#): > > > > I like “I gave a hoot for Little Owl!” > > If we’re voting, this gets mine. Mine, too. [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=13) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=15)