# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 2
**Author:** ![Mama\_Zappa](https://avatars.discourse-cdn.com/v4/letter/m/71e660/32.png) [@Mama\_Zappa](https://boards.straightdope.com/u/Mama_Zappa)\ **Post date:** [July 31, 2010, 2:30am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/21 "2010-07-31T02:30:39Z")
> [@aceplace57](#): > > Ouch. That must make giving birth extremely painful. > > … I’m not **Bearflag70** but as the mother of a big-headed baby… yeah, it does. :::wince::: BF70, let us know when you hear back about the assorted tests! ---
**Author:** ![Alice\_The\_Goon](https://avatars.discourse-cdn.com/v4/letter/a/ed8c4c/32.png) [@Alice\_The\_Goon](https://boards.straightdope.com/u/Alice_The_Goon)\ **Post date:** [July 31, 2010, 3:40am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/22 "2010-07-31T03:40:16Z")
I’m glad that you made the right choice to check into some more with her doc- let us know how it goes. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [July 31, 2010, 3:49am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/23 "2010-07-31T03:49:55Z")
fuck. fuck. fuck. need lab test to confirm. fuck. ---
**Author:** ![Alice\_The\_Goon](https://avatars.discourse-cdn.com/v4/letter/a/ed8c4c/32.png) [@Alice\_The\_Goon](https://boards.straightdope.com/u/Alice_The_Goon)\ **Post date:** [July 31, 2010, 3:51am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/24 "2010-07-31T03:51:18Z")
☹ We’re here for you, whatever small consolation that may be. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [July 31, 2010, 6:23am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/25 "2010-07-31T06:23:43Z")
My wife is asleep but I can’t fall asleep yet. Office diagnosis: Spinal Muscular Atrophy Genetic disorder - degenerative, leading to increased complications over time Life expectancy: Maybe 2 years. This is just horrible beyond words. Our baby girl. ☹ ---
**Author:** ![EvilTOJ](https://avatars.discourse-cdn.com/v4/letter/e/ee59a6/32.png) [@EvilTOJ](https://boards.straightdope.com/u/EvilTOJ)\ **Post date:** [July 31, 2010, 6:28am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/26 "2010-07-31T06:28:13Z")
Well I was going to make a So I Married An Axe Murderer joke but I’m not now. ---
**Author:** ![Mame](https://avatars.discourse-cdn.com/v4/letter/m/858c86/32.png) [@Mame](https://boards.straightdope.com/u/Mame)\ **Post date:** [July 31, 2010, 6:46am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/27 "2010-07-31T06:46:33Z")
Oh no - you poor people - you, your spouse, your daughter. That is just so unhappy making. I wish you all the strength possible. ---
**Author:** ![Ferret\_Herder](https://avatars.discourse-cdn.com/v4/letter/f/e47774/32.png) [@Ferret\_Herder](https://boards.straightdope.com/u/Ferret_Herder)\ **Post date:** [July 31, 2010, 10:53am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/28 "2010-07-31T10:53:01Z")
Oh shit. Damn, I am so, so sorry. ---
**Author:** ![Hedda\_Rosa](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/hedda_rosa/32/1204_2.png) [@Hedda\_Rosa](https://boards.straightdope.com/u/Hedda_Rosa)\ **Post date:** [July 31, 2010, 12:38pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/29 "2010-07-31T12:38:52Z")
Oh no. My god I am so sorry. That is terribly unfair. My heart goes out to all three of you. ---
**Author:** ![Indyellen](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/indyellen/32/4176_2.png) [@Indyellen](https://boards.straightdope.com/u/Indyellen)\ **Post date:** [July 31, 2010, 1:46pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/30 "2010-07-31T13:46:36Z")
That’s awful & my thoughts are with you. However, in case you haven’t thought of it in the wake of bad news, make sure you get a second opinion from a specialist. In a quick Google search there seem to be several support groups. Take advantage of them - that’s why they’re there. They should be able to help with specialist referrals in your area. ---
**Author:** ![Alice\_The\_Goon](https://avatars.discourse-cdn.com/v4/letter/a/ed8c4c/32.png) [@Alice\_The\_Goon](https://boards.straightdope.com/u/Alice_The_Goon)\ **Post date:** [July 31, 2010, 6:16pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/31 "2010-07-31T18:16:34Z")
Oh, **Bearflag70** , my heart goes out to you. I keep typing lame things then erasing them, this is too awful for words. ---
**Author:** ![Taters](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/taters/32/2845_2.png) [@Taters](https://boards.straightdope.com/u/Taters)\ **Post date:** [July 31, 2010, 6:26pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/32 "2010-07-31T18:26:15Z")
That’s just awful. I’m so sorry. My thoughts are with you, the baby and your wife. ---
**Author:** ![6ImpossibleThingsB4Breakfast](https://avatars.discourse-cdn.com/v4/letter/6/e19adc/32.png) [@6ImpossibleThingsB4Breakfast](https://boards.straightdope.com/u/6ImpossibleThingsB4Breakfast)\ **Post date:** [July 31, 2010, 6:36pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/33 "2010-07-31T18:36:05Z")
Fuck, **Bearflag70**. There are just no words. And some kind of internet hug is just insulting. Thoughts are all I have for you. ---
**Author:** ![BlueKangaroo](https://avatars.discourse-cdn.com/v4/letter/b/3d9bf3/32.png) [@BlueKangaroo](https://boards.straightdope.com/u/BlueKangaroo)\ **Post date:** [July 31, 2010, 6:38pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/34 "2010-07-31T18:38:45Z")
You and your family are in my thoughts. I’m so sorry. ---
**Author:** ![Promethea](https://avatars.discourse-cdn.com/v4/letter/p/f9ae1b/32.png) [@Promethea](https://boards.straightdope.com/u/Promethea)\ **Post date:** [July 31, 2010, 7:06pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/35 "2010-07-31T19:06:17Z")
My heart goes out to you, your wife and you baby girl. ---
**Author:** ![supergoose](https://avatars.discourse-cdn.com/v4/letter/s/aeb1de/32.png) [@supergoose](https://boards.straightdope.com/u/supergoose)\ **Post date:** [July 31, 2010, 7:27pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/36 "2010-07-31T19:27:35Z")
Oh my god. I’m so very, very sorry. ---
**Author:** ![ENugent](https://avatars.discourse-cdn.com/v4/letter/e/4af34b/32.png) [@ENugent](https://boards.straightdope.com/u/ENugent)\ **Post date:** [July 31, 2010, 7:51pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/37 "2010-07-31T19:51:45Z")
Oh no. I have no words. I am so, so, sorry. ---
**Author:** ![Brynda](https://avatars.discourse-cdn.com/v4/letter/b/e79b87/32.png) [@Brynda](https://boards.straightdope.com/u/Brynda)\ **Post date:** [July 31, 2010, 8:48pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/38 "2010-07-31T20:48:30Z")
I am so sorry. Words aren’t enough, but know that a stranger far away shed tears for all of you. ---
**Author:** ![Spectre\_of\_Pithecanthropus](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spectre_of_pithecanthropus/32/12343_2.png) [@Spectre\_of\_Pithecanthropus](https://boards.straightdope.com/u/Spectre_of_Pithecanthropus)\ **Post date:** [July 31, 2010, 10:20pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/39 "2010-07-31T22:20:14Z")
> [@Brynda](#): > > I am so sorry. Words aren’t enough, but know that a stranger far away shed tears for all of you. We are not strangers here, you have friends. I’m going to go change the thread titile now to forestall any more jokes, even from those who are normally decent posters but who, out of carelessness, might drop in to post another joke without having read the entire thread. ---
**Author:** ![LavenderBlue](https://avatars.discourse-cdn.com/v4/letter/l/e95f7d/32.png) [@LavenderBlue](https://boards.straightdope.com/u/LavenderBlue)\ **Post date:** [July 31, 2010, 10:29pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/40 "2010-07-31T22:29:52Z")
I am so sorry to hear that. ☹ Your poor family. [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=1) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=3)