# My baby girl has Spinal Muscular Atrophy (SMA)

**URL:** <https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126>\
**Category:** Miscellaneous and Personal Stuff I Must Share\
**Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\
**Posts on this page:** 20\
**Page:** 24

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**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\
**Post date:** [September 13, 2010, 12:18pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/461 "2010-09-13T12:18:48Z")

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i really like the wee owl graphic on the caringbridge site.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [September 15, 2010, 4:16am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/462 "2010-09-15T04:16:53Z")

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added some pics to gettyowl

off to the right is a link for photos

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**Author:** ![BwanaBob](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/bwanabob/32/2985_2.png) [@BwanaBob](https://boards.straightdope.com/u/BwanaBob)\
**Post date:** [September 15, 2010, 7:16pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/463 "2010-09-15T19:16:09Z")

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> [@Bearflag70](#):
>
> …  
> Yes. It’s something we would like. My only concern is that I’m 40 already.

Don’t let being 40 stop you. My son was born when I was that age. You and your wife obviously have big hearts filled with love. Peace to the three of you.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [September 18, 2010, 1:20am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/464 "2010-09-18T01:20:55Z")

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[www.gettyowl.com](http://www.gettyowl.com) has been updated and looks great thanks to a friend of ours.

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**Author:** ![MoodIndigo1](https://avatars.discourse-cdn.com/v4/letter/m/e8c25b/32.png) [@MoodIndigo1](https://boards.straightdope.com/u/MoodIndigo1)\
**Post date:** [September 19, 2010, 4:08am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/465 "2010-09-19T04:08:42Z")

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It’s beautiful, Bearflag, congrats to your friend.

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**Author:** ![MoodIndigo1](https://avatars.discourse-cdn.com/v4/letter/m/e8c25b/32.png) [@MoodIndigo1](https://boards.straightdope.com/u/MoodIndigo1)\
**Post date:** [September 21, 2010, 2:23am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/466 "2010-09-21T02:23:06Z")

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Already received the items I ordered! I can’t believe how fast that was. The items are great. The teddy bear will be a gift to my 6 month old great-niece Coralie. The yellow bag I’m going to use myself.  
Sending all the mojo I can muster for the Owlet and her parents.

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**Author:** ![Mama\_Zappa](https://avatars.discourse-cdn.com/v4/letter/m/71e660/32.png) [@Mama\_Zappa](https://boards.straightdope.com/u/Mama_Zappa)\
**Post date:** [September 24, 2010, 1:39am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/467 "2010-09-24T01:39:35Z")

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Love the poster for the crafts event!

BTW - it might be worth checking with a tax advisor to make sure you know how to handle gifts and contributions at tax time. I have ZERO clue whether these are taxable income, gifts, whatever… but perhaps there are some tax-savvy Dopers here who could at least suggest some reading. I would utterly hate to see the IRS give you any trouble.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [September 24, 2010, 8:20am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/468 "2010-09-24T08:20:14Z")

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Any tips help. I know 501©(3) is out.

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**Author:** ![FriarTed](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/friarted/32/1052_2.png) [@FriarTed](https://boards.straightdope.com/u/FriarTed)\
**Post date:** [September 24, 2010, 3:12pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/469 "2010-09-24T15:12:21Z")

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Gotta comment on a pic…

[http://www.flickr.com/photos/53374705@N06/5019262348/](http://www.flickr.com/photos/53374705@N06/5019262348/)

If she doesn’t look like a wee shaman!

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [September 25, 2010, 2:35am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/470 "2010-09-25T02:35:53Z")

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OK, Dopers, if you have 2 seconds, [please vote here](http://www.jimmiejohnsonfoundation.org/Events/Samsung-Helmet-of-Hope/Vote-Samsung-Helmet-of-Hope-For-More.aspx) for **Gwendolyn Strong Foundation (GSF)** to get $20,000 in funding for SMA research.

No need to submit personal info. Just a couple clicks and keystrokes, and that’s it!

You can (and should) vote once per day. 😛

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**Author:** ![dada2fish](https://avatars.discourse-cdn.com/v4/letter/d/ccd318/32.png) [@dada2fish](https://boards.straightdope.com/u/dada2fish)\
**Post date:** [September 25, 2010, 3:34am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/471 "2010-09-25T03:34:43Z")

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I voted today and will do every day. Anything to help the cause, Bearflag.  
Just had a little cry for your little owl viewing her latest pictures. She really is a sweetheart. I just wanna hug her and blow raspberries on her cheeks.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [September 28, 2010, 7:29pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/472 "2010-09-28T19:29:03Z")

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> [@Bearflag70](#):
>
> OK, Dopers, if you have 2 seconds, [please vote here](http://www.jimmiejohnsonfoundation.org/Events/Samsung-Helmet-of-Hope/Vote-Samsung-Helmet-of-Hope-For-More.aspx) for **Gwendolyn Strong Foundation (GSF)** to get $20,000 in funding for SMA research.
> 
> No need to submit personal info. Just a couple clicks and keystrokes, and that’s it!
> 
> You can (and should) vote once per day. 😛

Voting ends tomorrow and we are neck and neck with another group. Please vote!

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**Author:** ![Dung\_Beetle](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/dung_beetle/32/7945_2.png) [@Dung\_Beetle](https://boards.straightdope.com/u/Dung_Beetle)\
**Post date:** [September 28, 2010, 7:57pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/473 "2010-09-28T19:57:01Z")

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Done.

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**Author:** ![Snickers](https://avatars.discourse-cdn.com/v4/letter/s/5daacb/32.png) [@Snickers](https://boards.straightdope.com/u/Snickers)\
**Post date:** [September 28, 2010, 9:05pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/474 "2010-09-28T21:05:33Z")

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Done and done.

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**Author:** ![Ogre](https://avatars.discourse-cdn.com/v4/letter/o/ecb155/32.png) [@Ogre](https://boards.straightdope.com/u/Ogre)\
**Post date:** [September 28, 2010, 10:20pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/475 "2010-09-28T22:20:08Z")

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Done.

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**Author:** ![erleichda](https://avatars.discourse-cdn.com/v4/letter/e/4da419/32.png) [@erleichda](https://boards.straightdope.com/u/erleichda)\
**Post date:** [September 28, 2010, 10:25pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/476 "2010-09-28T22:25:02Z")

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Also done, but it looks like we’re still neck and neck. Spread the word guys!

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**Author:** ![Salem](https://avatars.discourse-cdn.com/v4/letter/s/8c91f0/32.png) [@Salem](https://boards.straightdope.com/u/Salem)\
**Post date:** [September 28, 2010, 10:57pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/477 "2010-09-28T22:57:35Z")

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Done. Still tied with the other group.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [September 28, 2010, 11:11pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/478 "2010-09-28T23:11:31Z")

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Too bad they don’t show the raw vote count.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [September 28, 2010, 11:15pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/479 "2010-09-28T23:15:24Z")

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Kinda sad to pit cancer kids against SMA kids now that I think about it.

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**Author:** ![mhendo](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/mhendo/32/3159_2.png) [@mhendo](https://boards.straightdope.com/u/mhendo)\
**Post date:** [September 28, 2010, 11:50pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/480 "2010-09-28T23:50:49Z")

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> [@Bearflag70](#):
>
> Kinda sad to pit cancer kids against SMA kids now that I think about it.

I guess it is, but every fucking Tom, Dick and Harry in the world solicits donations for cancer. You can’t turn around nowdays without someone wanting money for cancer victims of one sort of another.

I’m happy to vote for the SMA kids.

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