# My baby girl has Spinal Muscular Atrophy (SMA)

**URL:** <https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126>\
**Category:** Miscellaneous and Personal Stuff I Must Share\
**Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\
**Posts on this page:** 20\
**Page:** 30

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**Author:** ![MoodIndigo1](https://avatars.discourse-cdn.com/v4/letter/m/e8c25b/32.png) [@MoodIndigo1](https://boards.straightdope.com/u/MoodIndigo1)\
**Post date:** [November 16, 2010, 10:45pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/581 "2010-11-16T22:45:15Z")

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Fingers crossed for your little Owl, sending all the mojo I can muster. Keep us posted.

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**Author:** ![vivalostwages](https://avatars.discourse-cdn.com/v4/letter/v/d07c76/32.png) [@vivalostwages](https://boards.straightdope.com/u/vivalostwages)\
**Post date:** [November 16, 2010, 11:50pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/582 "2010-11-16T23:50:13Z")

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Hoping for the best possible outcome.

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**Author:** ![Hokkaido\_Brit](https://avatars.discourse-cdn.com/v4/letter/h/d26b3c/32.png) [@Hokkaido\_Brit](https://boards.straightdope.com/u/Hokkaido_Brit)\
**Post date:** [November 17, 2010, 12:08am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/583 "2010-11-17T00:08:57Z")

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My thoughts will be with you all day today too. You’ve got good vibes coming at your family from all over the world… Big hugs to you and gentle pats to baby-chan.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [November 17, 2010, 12:39am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/584 "2010-11-17T00:39:12Z")

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Getty is in surgery now (4:30 pm Pacific). It could go to maybe 6 pm. No real updates to speak of. Waiting anxiously.

We were pretty calm heading into it, but at the very moment you hand your child over to a stranger knowing all you can do is hope for the best, it hits you like a ton of bricks.

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**Author:** ![gardentraveler](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/gardentraveler/32/3576_2.png) [@gardentraveler](https://boards.straightdope.com/u/gardentraveler)\
**Post date:** [November 17, 2010, 12:51am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/585 "2010-11-17T00:51:34Z")

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Lots of good wishes for a quick and successful surgery. Hugs for the whole family.

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**Author:** ![dada2fish](https://avatars.discourse-cdn.com/v4/letter/d/ccd318/32.png) [@dada2fish](https://boards.straightdope.com/u/dada2fish)\
**Post date:** [November 17, 2010, 1:11am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/586 "2010-11-17T01:11:26Z")

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Hugs and best wishes for our baby girl Getty. Yes, she’s “ours” too. She’s got lots of aunts and uncles all over the world thinking about her today and everyday.

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**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\
**Post date:** [November 17, 2010, 1:42am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/587 "2010-11-17T01:42:46Z")

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i hope she is in your arms soon.

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**Author:** ![DoperChic](https://avatars.discourse-cdn.com/v4/letter/d/a9a28c/32.png) [@DoperChic](https://boards.straightdope.com/u/DoperChic)\
**Post date:** [November 17, 2010, 1:55am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/588 "2010-11-17T01:55:08Z")

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Hugs and best wishes for success! Sending good thoughts and prayers your way.

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**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\
**Post date:** [November 17, 2010, 2:31am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/589 "2010-11-17T02:31:56Z")

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Thinking of Miss Getty and sending good vibes your way.

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**Author:** ![Ann\_Onimous](https://avatars.discourse-cdn.com/v4/letter/a/ea5d25/32.png) [@Ann\_Onimous](https://boards.straightdope.com/u/Ann_Onimous)\
**Post date:** [November 17, 2010, 2:45am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/590 "2010-11-17T02:45:54Z")

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Sending good wishes and prayers Getty’s direction.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [November 17, 2010, 3:09am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/591 "2010-11-17T03:09:23Z")

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Surgery is done!

**SUCCESS!**

Getty is resting comfortably. The BiPAP breathing machine is doing its job. Stats look good.

She is so beautiful! 😛

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**Author:** ![Buckler\_of\_Swashing](https://avatars.discourse-cdn.com/v4/letter/b/d6d6ee/32.png) [@Buckler\_of\_Swashing](https://boards.straightdope.com/u/Buckler_of_Swashing)\
**Post date:** [November 17, 2010, 3:11am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/592 "2010-11-17T03:11:41Z")

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Thinking of you and your family, **Bearflag70.** Hold on, she’ll be with you soon.

ETA: Good news! I’m so pleased to hear that! Excuse me, I have something in my eye…

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**Author:** ![Ann\_Onimous](https://avatars.discourse-cdn.com/v4/letter/a/ea5d25/32.png) [@Ann\_Onimous](https://boards.straightdope.com/u/Ann_Onimous)\
**Post date:** [November 17, 2010, 3:21am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/593 "2010-11-17T03:21:35Z")

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Hooray!

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**Author:** ![China\_Guy](https://avatars.discourse-cdn.com/v4/letter/c/779978/32.png) [@China\_Guy](https://boards.straightdope.com/u/China_Guy)\
**Post date:** [November 17, 2010, 3:24am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/594 "2010-11-17T03:24:42Z")

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Glad to hear the good news. I’ve been through that and all I can say is I feel for ya. Hang tough.

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**Author:** ![thirdwarning](https://avatars.discourse-cdn.com/v4/letter/t/ecccb3/32.png) [@thirdwarning](https://boards.straightdope.com/u/thirdwarning)\
**Post date:** [November 17, 2010, 3:27am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/595 "2010-11-17T03:27:34Z")

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That’s wonderful news! I’m so glad things went well, even with that rough beginning.

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**Author:** ![whiterabbit](https://avatars.discourse-cdn.com/v4/letter/w/cab0a1/32.png) [@whiterabbit](https://boards.straightdope.com/u/whiterabbit)\
**Post date:** [November 17, 2010, 4:30am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/596 "2010-11-17T04:30:09Z")

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Such good news! Atta girl, Little Owl.

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**Author:** ![MoodIndigo1](https://avatars.discourse-cdn.com/v4/letter/m/e8c25b/32.png) [@MoodIndigo1](https://boards.straightdope.com/u/MoodIndigo1)\
**Post date:** [November 17, 2010, 5:29am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/597 "2010-11-17T05:29:44Z")

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Wonderful news! I hope that the Little Owl does well with the new set-up and that her parents can get a better night’s sleep tonight. When can she leave the hospital and go home?

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [November 17, 2010, 6:26am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/598 "2010-11-17T06:26:03Z")

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Thursday or Friday.

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**Author:** ![Mama\_Zappa](https://avatars.discourse-cdn.com/v4/letter/m/71e660/32.png) [@Mama\_Zappa](https://boards.straightdope.com/u/Mama_Zappa)\
**Post date:** [November 17, 2010, 12:47pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/599 "2010-11-17T12:47:21Z")

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Yay on the successful surgery!! I’d bet the whole thing has been much harder on you parents than on her!

Do write some letters about the clusterfuck with the mask and formula - there is absolutely NO Excuse for that crap especially the mask. Hospital, can’t get the right mask?? Bullshit.

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**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\
**Post date:** [November 17, 2010, 1:41pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/600 "2010-11-17T13:41:38Z")

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deep sigh of relief!

heal up little girl!

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