# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 33
**Author:** ![MoodIndigo1](https://avatars.discourse-cdn.com/v4/letter/m/e8c25b/32.png) [@MoodIndigo1](https://boards.straightdope.com/u/MoodIndigo1)\ **Post date:** [November 27, 2010, 6:36pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/641 "2010-11-27T18:36:17Z")
Lots of new pics and a few updates on Getty’s site. After what she’s been through, to see the little Owl full of smiles and joy just warms the heart. She’s so cute in the pink outfits (with ballerina slippers) that Kate chose for her. Bear’s demonstration of how Getty’s feeding works was enlightening. [http://gettyowl.com/](http://gettyowl.com/) ---
**Author:** ![vivalostwages](https://avatars.discourse-cdn.com/v4/letter/v/d07c76/32.png) [@vivalostwages](https://boards.straightdope.com/u/vivalostwages)\ **Post date:** [November 27, 2010, 7:25pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/642 "2010-11-27T19:25:11Z")
Gorgeous!! ---
**Author:** ![Ruby](https://avatars.discourse-cdn.com/v4/letter/r/13edae/32.png) [@Ruby](https://boards.straightdope.com/u/Ruby)\ **Post date:** [November 27, 2010, 7:26pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/643 "2010-11-27T19:26:55Z")
I’m just catching up on the thread for the last month and am reminded what a beautiful baby girl she is, **Bearflag70**. Getty can be proud to have been blessed with you as her mommy and daddy. 🙂 ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [November 28, 2010, 10:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/644 "2010-11-28T22:17:57Z")
Your lovely ballerina is very photogenic. Thank you for sharing. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [November 30, 2010, 4:36am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/645 "2010-11-30T04:36:27Z")
I think we need a car. Wanna help in [this thread](http://boards.straightdope.com/sdmb/showthread.php?p=13196164#post13196164)? ---
**Author:** ![MN\_Maenad](https://avatars.discourse-cdn.com/v4/letter/m/e95f7d/32.png) [@MN\_Maenad](https://boards.straightdope.com/u/MN_Maenad)\ **Post date:** [November 30, 2010, 4:27pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/646 "2010-11-30T16:27:01Z")
> [@Bearflag70](#): > > If we don’t know the answer to a question, we have a whole network of parents who have been doing this stuff for years, willing to lend others a hand. The SMA community is amazing. Sometimes the Internet really can be as amazing as we were promised. Like everyone, I’m glad to hear Getty is doing so well! I ran across [this blog post](http://www.copyblogger.com/fight-for-your-ideas/) yesterday by a young man also with SMA 1. Apologies if it’s already been posted, but it sounds like you’re fighting for Getty much like his mother fought for him. 🙂 ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [December 5, 2010, 7:12am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/647 "2010-12-05T07:12:04Z")
Sorry, I can’t resist the new pic at [www.gettyowl.com](http://www.gettyowl.com). ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [December 6, 2010, 5:01am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/648 "2010-12-06T05:01:35Z")
If you want to follow Getty Owl on Facebook, I think [this link](http://www.facebook.com/#!/pages/Getty-Owl/169917196356343) will take you there. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [December 6, 2010, 5:02am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/649 "2010-12-06T05:02:39Z")
> [@MN\_Maenad](#): > > Sometimes the Internet really can be as amazing as we were promised. > > Like everyone, I’m glad to hear Getty is doing so well! I ran across [this blog post](http://www.copyblogger.com/fight-for-your-ideas/) yesterday by a young man also with SMA 1. Apologies if it’s already been posted, but it sounds like you’re fighting for Getty much like his mother fought for him. 🙂 Love it! ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [December 20, 2010, 9:07pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/650 "2010-12-20T21:07:32Z")
someone has an ipad. i think i heard a bit of fur elise. cute video on the getty blog. her hair is really getting thick, will she be styling the “pebbles” hair style soon? ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [December 21, 2010, 12:43am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/651 "2010-12-21T00:43:02Z")
She just got an ipad and she loves it! She can’t hold on to anything much heavier than a cotton ball. She can’t move herself about the home to learn or play like other kids. We were looking back at some of the videos from only about 3 months ago and noticing how she was able to lift her hands against gravity up to her mouth; she can’t do that now. We were afraid she was lacking in stimulation and would, thus, end up lacking age-appropriate cognitive development. Since SMA does not affect cognition at all, my wife and I are adamant in our desire to see Getty get proper age-appropriate mental development. We’ve been reading articles on how ipads are beginning to help the disabled. For example, an SMA child may be able to “turn the pages” of a digital book, play math games, get exercise, and communicate via the ipad with only a slight touch of the finger. We think one reason Getty loves the ipad is she can play with it independently. It’s probably one of the few things with which she’ll ever be able to use her hands to play and learn independently. Otherwise, her hair is pretty fine and too short to really do anything with it. No Pebbles yet. 🙂 ---
**Author:** ![baileygrrrl](https://avatars.discourse-cdn.com/v4/letter/b/e19b73/32.png) [@baileygrrrl](https://boards.straightdope.com/u/baileygrrrl)\ **Post date:** [December 21, 2010, 6:39pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/652 "2010-12-21T18:39:50Z")
> [@Bearflag70](#): > > If you want to follow Getty Owl on Facebook, I think [this link](http://www.facebook.com/#!/pages/Getty-Owl/169917196356343) will take you there. Oh my goodness, she is absolutely beautiful! ---
**Author:** ![MoodIndigo1](https://avatars.discourse-cdn.com/v4/letter/m/e8c25b/32.png) [@MoodIndigo1](https://boards.straightdope.com/u/MoodIndigo1)\ **Post date:** [December 22, 2010, 1:27am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/653 "2010-12-22T01:27:21Z")
My favourite video is probably the Going Getty one. Sorry, I had missed your post, Bearflag. The iPad was a brilliant idea, she really seems to take to it well. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [December 31, 2010, 7:49pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/654 "2010-12-31T19:49:24Z")
We have [Team Getty bracelets](http://gettyowl.com/2010/12/31/the-bracelets-are-in/) if you’re interested. Thanks for helping raise awareness! ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [December 31, 2010, 9:50pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/655 "2010-12-31T21:50:14Z")
the bracelets are nifty. how go the holidays? did she enjoy the sights and sounds? ready for the new year? ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [January 1, 2011, 12:00am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/656 "2011-01-01T00:00:59Z")
The holidays have gone well so far. Christmas was nice and relaxing with family. She enjoyed the tree and singing of songs. The tree was covered in owl decorations only. Best of all, her lungs are clear and she’s happy. 😃 ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [January 9, 2011, 7:34pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/657 "2011-01-09T19:34:35Z")
cuteness alert! some one has wee owl hair ornaments. really cute. and 2 nice new sharp teeth! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [January 20, 2011, 5:58am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/658 "2011-01-20T05:58:58Z")
American Idol fans, I hope you can support Robbie Rosen. He’s a wonderful guy who wrote a song to support the fight against SMA. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [January 20, 2011, 6:56am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/659 "2011-01-20T06:56:48Z")
_[Make It Through](http://www.youtube.com/watch?v=mZ51wEIWrNk)_ by Robbie Rosen was written exclusively to support the fight against SMA. ---
**Author:** ![ComeToTheDarkSideWeHaveCookies](https://avatars.discourse-cdn.com/v4/letter/c/e9bcb4/32.png) [@ComeToTheDarkSideWeHaveCookies](https://boards.straightdope.com/u/ComeToTheDarkSideWeHaveCookies)\ **Post date:** [January 20, 2011, 7:08am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/660 "2011-01-20T07:08:07Z")
What a great song and video. Man, it just broke me into pieces. [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=32) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=34)