# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 37
**Author:** ![monavis](https://avatars.discourse-cdn.com/v4/letter/m/e0b2c6/32.png) [@monavis](https://boards.straightdope.com/u/monavis)\ **Post date:** [March 17, 2011, 12:03pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/721 "2011-03-17T12:03:47Z")
> [@Bearflag70](#): > > ok thanks! I emailed you my new address ---
**Author:** ![Ann\_Onimous](https://avatars.discourse-cdn.com/v4/letter/a/ea5d25/32.png) [@Ann\_Onimous](https://boards.straightdope.com/u/Ann_Onimous)\ **Post date:** [March 19, 2011, 6:32pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/722 "2011-03-19T18:32:01Z")
Anyone in Central Mississippi: Chick-Fil-A is doing a fundraiser Monday night for Stop SMA. All the details can be found [here](http://thereznews.blogspot.com/2011/03/eat-mor-chikin-stop-sma.html?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+TheRezNews+%28The+Rez+News%29) if you’re interested. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [March 20, 2011, 6:59am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/723 "2011-03-20T06:59:29Z")
Here’s a neat little “[PicBadge](http://www.picbadges.com/getty-owl-foundation/1376297/)” I made that you can put on your FB page photo if you want to show support for Getty Owl Foundation. 😛 I’m a little nervous tonight if the high winds knock the power out. We don’t have external backup power. Most of Getty’s equipment has internal batteries that should be fine, but still… ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [March 25, 2011, 7:44am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/724 "2011-03-25T07:44:43Z")
It is now past midnight Pacific Time. It’s Getty’s 1 year birthday!! Thank you, Dopers, for all your support and encouragement! You have truly helped us and Ms. Getty tremendously. What a wonderful and generous group of kind souls. **THANK YOU!** ---
**Author:** ![sitchensis](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/sitchensis/32/4892_2.png) [@sitchensis](https://boards.straightdope.com/u/sitchensis)\ **Post date:** [March 25, 2011, 7:56am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/725 "2011-03-25T07:56:31Z")
Happy B day and many more to come ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [March 25, 2011, 12:54pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/726 "2011-03-25T12:54:21Z")
happy birthday getty! may you have a happy and stable year 2! ---
**Author:** ![KinkiNipponTourist](https://avatars.discourse-cdn.com/v4/letter/k/e9bcb4/32.png) [@KinkiNipponTourist](https://boards.straightdope.com/u/KinkiNipponTourist)\ **Post date:** [March 25, 2011, 1:01pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/727 "2011-03-25T13:01:05Z")
Happy birthday, cutie bear!! xoxo ---
**Author:** ![janis\_and\_c0](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/janis_and_c0/32/21_2.png) [@janis\_and\_c0](https://boards.straightdope.com/u/janis_and_c0)\ **Post date:** [March 25, 2011, 1:32pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/728 "2011-03-25T13:32:26Z")
I hope you Have a Beautiful Birthday, Little Owl!! ---
**Author:** ![Dung\_Beetle](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/dung_beetle/32/7945_2.png) [@Dung\_Beetle](https://boards.straightdope.com/u/Dung_Beetle)\ **Post date:** [March 25, 2011, 2:09pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/729 "2011-03-25T14:09:53Z")
Make sure all her birthday wishes come true! 🙂 ---
**Author:** ![joyfool](https://avatars.discourse-cdn.com/v4/letter/j/df788c/32.png) [@joyfool](https://boards.straightdope.com/u/joyfool)\ **Post date:** [March 25, 2011, 2:20pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/730 "2011-03-25T14:20:31Z")
Happy Birthday Getty Owl!! ---
**Author:** ![Hal\_Briston](https://avatars.discourse-cdn.com/v4/letter/h/a9a28c/32.png) [@Hal\_Briston](https://boards.straightdope.com/u/Hal_Briston)\ **Post date:** [March 25, 2011, 4:22pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/731 "2011-03-25T16:22:39Z")
Hoot! Happy birthday, little Owl! ---
**Author:** ![swampbear](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/swampbear/32/467_2.png) [@swampbear](https://boards.straightdope.com/u/swampbear)\ **Post date:** [March 25, 2011, 4:40pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/732 "2011-03-25T16:40:25Z")
Happy Birthday Getty Owl! ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [March 25, 2011, 9:06pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/733 "2011-03-25T21:06:49Z")
Hoot that candle out you good girl. Happy Birthday! ---
**Author:** ![PunditLisa](https://avatars.discourse-cdn.com/v4/letter/p/4af34b/32.png) [@PunditLisa](https://boards.straightdope.com/u/PunditLisa)\ **Post date:** [March 25, 2011, 9:16pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/734 "2011-03-25T21:16:41Z")
Happy Birthday, Little Getty! ---
**Author:** ![dada2fish](https://avatars.discourse-cdn.com/v4/letter/d/ccd318/32.png) [@dada2fish](https://boards.straightdope.com/u/dada2fish)\ **Post date:** [March 25, 2011, 9:43pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/735 "2011-03-25T21:43:55Z")
Happy Birthday Sweet Little Getty! Enjoy your big day! ---
**Author:** ![FloatyGimpy](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/floatygimpy/32/7750_2.png) [@FloatyGimpy](https://boards.straightdope.com/u/FloatyGimpy)\ **Post date:** [March 26, 2011, 12:19am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/736 "2011-03-26T00:19:11Z")
Happy Birthday Sweet Baby. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [March 26, 2011, 1:14am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/737 "2011-03-26T01:14:49Z")
I had to share [this video](http://www.youtube.com/watch?v=JcxUYO7pCaI&feature=player_embedded). There’s a whole series of Happy First Birthday Getty videos. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [March 26, 2011, 1:23am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/738 "2011-03-26T01:23:26Z")
Thank you all for the b-day wishes! ---
**Author:** ![stargazer](https://avatars.discourse-cdn.com/v4/letter/s/eb8c5e/32.png) [@stargazer](https://boards.straightdope.com/u/stargazer)\ **Post date:** [April 6, 2011, 3:26pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/739 "2011-04-06T15:26:46Z")
I saw [this](http://www.girlsgonechild.net/2011/04/getty-lucy-sweet-water-child.html) today in my blog-reading, and I thought, hey, I know that kiddo! You just got a lot more visibility, **Bearflag70**! Congrats! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [April 6, 2011, 5:44pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/740 "2011-04-06T17:44:56Z")
> [@stargazer](#): > > I saw [this](http://www.girlsgonechild.net/2011/04/getty-lucy-sweet-water-child.html) today in my blog-reading, and I thought, hey, I know that kiddo! You just got a lot more visibility, **Bearflag70**! Congrats! Yeah, there are some bloggers out there really helping us out! It’s fantastic! For those who don’t know the story, when we got the diagnosis last year, one of our dear friends, who is a small potatoes blogger, stepped up and offered to do anything she could for us. She was pretty much single-handedly responsible for putting on a great craft fair in Sacramento for us. Then, she just so happened to be talking to another blogger and mentioned that she loved a band called The Damnwells… it’s her favorite band. It turns out this other blogger knows The Damnwells personally and she offered to put our friend in touch with The Damnwells. The Damnwells had been toying with the idea of writing a lullaby album. When our friend told them of Getty, one of the members of The Damnwells and his wife decided to do the lullaby album, name it after Getty, and donate all the proceeds to Getty Owl Foundation. The album is available here and is called _[Sweet Water Child - Lullabies for Getty](http://lullabiesforgetty.com/index.html)_. A bunch of bloggers are taking it upon themselves to promote it. Oh … and the second annual craft fair is coming up! The local radio station that did Baby Idol is talking to us about getting Getty Owl Foundation some promotion. It’s actually one company that owns 6 local stations. We were also just contacted today by a magazine thanks to the blogging buzz, I suppose. The whole thing .. all the outpouring of love and support … is surreal and we appreciate it so much. As my wife posted on Facebook the other day, “[SMA] can’t hide any more, you piece of shit.” [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=36) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=38)