# My baby girl has Spinal Muscular Atrophy (SMA)

**URL:** <https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126>\
**Category:** Miscellaneous and Personal Stuff I Must Share\
**Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\
**Posts on this page:** 20\
**Page:** 38

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**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\
**Post date:** [May 2, 2011, 8:20pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/741 "2011-05-02T20:20:56Z")

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nifty new video of getty combing her hair! gotta look good!

and to be sure she does.

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**Author:** ![whiterabbit](https://avatars.discourse-cdn.com/v4/letter/w/cab0a1/32.png) [@whiterabbit](https://boards.straightdope.com/u/whiterabbit)\
**Post date:** [May 2, 2011, 8:28pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/742 "2011-05-02T20:28:58Z")

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I can’t buy the CD until my next check, but it is so on my list. Getty’s grown so much! I mean, I know they do that, but still.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [May 2, 2011, 9:31pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/743 "2011-05-02T21:31:54Z")

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> [@rocking\_chair](#):
>
> nifty new video of getty combing her hair! gotta look good!
> 
> and to be sure she does.

If you want to come over and get your hair combed, just let me know. 😉

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**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\
**Post date:** [May 2, 2011, 10:09pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/744 "2011-05-02T22:09:31Z")

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has she been practicing on the entire family?

the video is so very cute, i’m glad she has added a new fun activity to her repertoire.

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**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\
**Post date:** [June 27, 2011, 11:38pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/745 "2011-06-27T23:38:24Z")

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getty is in hospital with a bit of lung troubles (see getty’s web page). here is hoping a bit of sdmb love will help and getty will be breathing easy soon.

hang in there little owl. healing thoughts heading your way!

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**Author:** ![IvoryTowerDenizen](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/ivorytowerdenizen/32/17937_2.png) [@IvoryTowerDenizen](https://boards.straightdope.com/u/IvoryTowerDenizen)\
**Post date:** [June 27, 2011, 11:49pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/746 "2011-06-27T23:49:48Z")

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Love love love love love

Getty’s way!

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**Author:** ![PunditLisa](https://avatars.discourse-cdn.com/v4/letter/p/4af34b/32.png) [@PunditLisa](https://boards.straightdope.com/u/PunditLisa)\
**Post date:** [June 27, 2011, 11:57pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/747 "2011-06-27T23:57:04Z")

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Best wishes that you can all return home soon. Caring for a sick child is hard enough without having to deal with a strange environment and disruptions in your routine.

Sending love Getty’s way.

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**Author:** ![janis\_and\_c0](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/janis_and_c0/32/21_2.png) [@janis\_and\_c0](https://boards.straightdope.com/u/janis_and_c0)\
**Post date:** [June 28, 2011, 12:04am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/748 "2011-06-28T00:04:33Z")

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Prayers for little Owl.

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**Author:** ![Quasimodem](https://avatars.discourse-cdn.com/v4/letter/q/e274bd/32.png) [@Quasimodem](https://boards.straightdope.com/u/Quasimodem)\
**Post date:** [June 28, 2011, 1:23am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/749 "2011-06-28T01:23:31Z")

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Stumbling in, as usual. D and I send our prayers, thoughts and vibes your way for you and the little owl, **Bearflag70**.

You and that sweet little one have the greatest support group in the world pulling for y’all, but I’m sure you already knew that, right?🙂

Keep on keepin’ on and please keep us updated.

Thanks

Bill & Dondra

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**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\
**Post date:** [June 28, 2011, 2:14am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/750 "2011-06-28T02:14:14Z")

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Sending hopes and prayers for Getty.

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**Author:** ![Ruby](https://avatars.discourse-cdn.com/v4/letter/r/13edae/32.png) [@Ruby](https://boards.straightdope.com/u/Ruby)\
**Post date:** [June 28, 2011, 2:29am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/751 "2011-06-28T02:29:48Z")

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Sent healing mojo on FB but will repeat here. Get well, little owl.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [June 28, 2011, 7:09am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/752 "2011-06-28T07:09:30Z")

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Thanks for the comments. She seems to be improving. Hopefully just a few days and then back home.

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**Author:** ![chizzuk](https://avatars.discourse-cdn.com/v4/letter/c/e36b37/32.png) [@chizzuk](https://boards.straightdope.com/u/chizzuk)\
**Post date:** [June 28, 2011, 7:31am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/753 "2011-06-28T07:31:43Z")

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Glad to hear good news. My stomach drops every time I see this thread bumped. Sending more get well vibes to Miss Getty!

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [June 28, 2011, 11:40pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/754 "2011-06-28T23:40:24Z")

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[Update](http://gettyowl.com/)

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**Author:** ![PunditLisa](https://avatars.discourse-cdn.com/v4/letter/p/4af34b/32.png) [@PunditLisa](https://boards.straightdope.com/u/PunditLisa)\
**Post date:** [June 29, 2011, 12:07am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/755 "2011-06-29T00:07:13Z")

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Sleep well, little Getty.

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**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\
**Post date:** [June 29, 2011, 3:09am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/756 "2011-06-29T03:09:21Z")

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goodness, i hope things get better soon. poor little owl.

i hope all of you get some quality sleep soon.

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**Author:** ![Drain\_Bead](https://avatars.discourse-cdn.com/v4/letter/d/e47774/32.png) [@Drain\_Bead](https://boards.straightdope.com/u/Drain_Bead)\
**Post date:** [June 29, 2011, 1:04pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/757 "2011-06-29T13:04:19Z")

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> [@PunditLisa](#):
>
> Sleep well, little Getty.

I must say that this post about gave me a heart attack until I was able to read the link!

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**Author:** ![zweisamkeit](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/zweisamkeit/32/4360_2.png) [@zweisamkeit](https://boards.straightdope.com/u/zweisamkeit)\
**Post date:** [June 29, 2011, 4:04pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/758 "2011-06-29T16:04:27Z")

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> [@Drain\_Bead](#):
>
> I must say that this post about gave me a heart attack until I was able to read the link!

Me too!

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**Author:** ![RoniaBorkason](https://avatars.discourse-cdn.com/v4/letter/r/9dc877/32.png) [@RoniaBorkason](https://boards.straightdope.com/u/RoniaBorkason)\
**Post date:** [June 29, 2011, 5:53pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/759 "2011-06-29T17:53:00Z")

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I wish I had seen this thread yesterday - I was at the PICU saying hi to the doctors - my son was in last summer for a while. I could have said hi to you too! Did you see us? around 11 am, with a tan stroller?

I know how bad it stinks to have to be there, but I loved the staff and they were wonderful to us and very competent.

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**Author:** ![PunditLisa](https://avatars.discourse-cdn.com/v4/letter/p/4af34b/32.png) [@PunditLisa](https://boards.straightdope.com/u/PunditLisa)\
**Post date:** [June 29, 2011, 8:24pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/760 "2011-06-29T20:24:05Z")

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> [@zweisamkeit](#):
>
> Me too!

Sorry about that! Hope everyone got some well-deserved rest last night.

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