# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 42
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [September 15, 2011, 1:44am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/821 "2011-09-15T01:44:00Z")
That is excellent news. I found I could vote for the blog award twice each day. Once from my smart phone and once from my laptop. Hoot! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [September 15, 2011, 7:03am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/822 "2011-09-15T07:03:21Z")
Thanks for your support! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [September 25, 2011, 5:50pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/823 "2011-09-25T17:50:35Z")
We launched a new website! Check it out! [http://gettyowl.org/](http://gettyowl.org/) ---
**Author:** ![IvoryTowerDenizen](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/ivorytowerdenizen/32/17937_2.png) [@IvoryTowerDenizen](https://boards.straightdope.com/u/IvoryTowerDenizen)\ **Post date:** [September 25, 2011, 5:59pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/824 "2011-09-25T17:59:14Z")
> [@Bearflag70](#): > > We launched a new website! Check it out! > > [http://gettyowl.org/](http://gettyowl.org/) Nice! Interesting about the new AA diet. ---
**Author:** ![Sarabellum](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/sarabellum/32/3492_2.png) [@Sarabellum](https://boards.straightdope.com/u/Sarabellum)\ **Post date:** [September 25, 2011, 8:54pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/825 "2011-09-25T20:54:43Z")
So wonderful to hear that she’s regained a little more movement! And so awesome to hear that she’s got a little more energy from the AA formula. Love the new site! 🙂 ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [September 25, 2011, 10:26pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/826 "2011-09-25T22:26:20Z")
thanks! Oh … and she’s 18 moths old today! HOOT! ---
**Author:** ![FriarTed](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/friarted/32/1052_2.png) [@FriarTed](https://boards.straightdope.com/u/FriarTed)\ **Post date:** [September 26, 2011, 1:32am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/827 "2011-09-26T01:32:29Z")
> [@Bearflag70](#): > > thanks! > > Oh … and she’s 18 moths old today! HOOT! When I read each improvement since starting the AA diet, my jaw dropped a bit more. This is wonderful! ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [September 26, 2011, 2:22am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/828 "2011-09-26T02:22:17Z")
That’s a terrific community you have with other SMA families. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [October 9, 2011, 11:12pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/829 "2011-10-09T23:12:22Z")
It appears when we switched to the new site, all the blog subscriptions disappeared. If you want to subscribe to the blog, please do so! Thanks! [http://gettyowl.org/about-us/blog-2/](http://gettyowl.org/about-us/blog-2/) ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [October 26, 2011, 2:47am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/830 "2011-10-26T02:47:30Z")
She’s 19 months old today and looking good. Hoot hoot! ---
**Author:** ![monavis](https://avatars.discourse-cdn.com/v4/letter/m/e0b2c6/32.png) [@monavis](https://boards.straightdope.com/u/monavis)\ **Post date:** [October 26, 2011, 12:40pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/831 "2011-10-26T12:40:09Z")
> [@Bearflag70](#): > > At her last doctor’s appointment, she was in the 94th percentile of dome circumference for her age. Big heads run on my side of the family. > > We give her “tummy time” on her belly, but she can’t lift her head under her own power. She tries but her little neck can’t do it. She wiggles a round in a face plant position then gets frustrated. Apparently, most babies can do that by now. > > She’s otherwise happy and healthy. We haven’t been back to the doctor, but she didn’t seem concerned at the last meeting. Our family has a friend that has Spinal Athrophy that your daughter has, she is now the mother of 2 healthy children and 3 grandchildren. She has a blog,was head of the handicapped division of California, you can find her blog on the internet Her name is Laural Horiup and has written a book about her life which will be coming out in March.I have her email address that I can look up for you if interested. A fablous woman 56 years of age) and an inspiration to all who know her. ---
**Author:** ![Elysium](https://avatars.discourse-cdn.com/v4/letter/e/3be4f8/32.png) [@Elysium](https://boards.straightdope.com/u/Elysium)\ **Post date:** [October 26, 2011, 12:45pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/832 "2011-10-26T12:45:09Z")
> [@Bearflag70](#): > > She’s 19 months old today and looking good. Hoot hoot! And looking gorgeous too! I love the pictures at the petting zoo, I bet she loved it. ---
**Author:** ![Heart\_of\_Dorkness](https://avatars.discourse-cdn.com/v4/letter/h/4bbf92/32.png) [@Heart\_of\_Dorkness](https://boards.straightdope.com/u/Heart_of_Dorkness)\ **Post date:** [October 26, 2011, 1:32pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/833 "2011-10-26T13:32:22Z")
Yay! She’s so _big_ now, I can’t believe it! I’m tickled that she’s doing so well. I still think of her as a baby, but of course, she’s almost 6 months older than our guy, and he’s practically a little kid now. She’s so beautiful - she’s really starting to look like her mom. Oh, I meant to tell you, I saw that you have The Book of Sleep (with the “watchful owl”). We have that, too - it’s a favorite. Do you have [In My Tree](http://www.amazon.com/My-Tree-Sara-Gillingham/dp/0811870529)? It’s got a little owl finger puppet inside; very cute. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [October 26, 2011, 4:19pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/834 "2011-10-26T16:19:17Z")
> [@monavis](#): > > Laural Horiup Thank you for reminding me. I emailed her months ago. We agreed to have coffee, but just haven’t gotten to it yet. I need to follow up on that. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [October 26, 2011, 4:21pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/835 "2011-10-26T16:21:25Z")
> [@Heart\_of\_Dorkness](#): > > Yay! She’s so _big_ now, I can’t believe it! I’m tickled that she’s doing so well. I still think of her as a baby, but of course, she’s almost 6 months older than our guy, and he’s practically a little kid now. She’s so beautiful - she’s really starting to look like her mom. > > Oh, I meant to tell you, I saw that you have The Book of Sleep (with the “watchful owl”). We have that, too - it’s a favorite. Do you have [In My Tree](http://www.amazon.com/My-Tree-Sara-Gillingham/dp/0811870529)? It’s got a little owl finger puppet inside; very cute. Thanks! We have two different size versions of that book. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [October 26, 2011, 4:23pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/836 "2011-10-26T16:23:26Z")
> [@Elysium](#): > > And looking gorgeous too! I love the pictures at the petting zoo, I bet she loved it. She did love it. It was a pumpkin patch with petting zoo inside. Lots of fun. She slept really well on the car ride home. ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [October 28, 2011, 12:05am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/837 "2011-10-28T00:05:37Z")
wow! getty is becoming quite the little lady. i have been noticing how very popular owls are lately. it seems i see them everywhere and when ever i see them i think of your getty. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [December 23, 2011, 9:54pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/838 "2011-12-23T21:54:07Z")
Thank you all for your warmth and support over the past couple of years. Getty is doing just fine right now in winter lockdown. Happy Holidays! Merry Christmas! ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [December 24, 2011, 4:27am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/839 "2011-12-24T04:27:17Z")
Happy holidays to you, Getty and all your supporters. ---
**Author:** ![dada2fish](https://avatars.discourse-cdn.com/v4/letter/d/ccd318/32.png) [@dada2fish](https://boards.straightdope.com/u/dada2fish)\ **Post date:** [December 24, 2011, 4:44am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/840 "2011-12-24T04:44:20Z")
Merry Christmas to the beautiful Getty and family and reaching 21 months old on Christmas day. Glad to hear she’s doing well!!! Wishing you all great things in the new year. (I always remember Getty’s months because she is exactly 1 month younger than my child 😉 [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=41) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=43)