# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 44
**Author:** ![Cinnamon\_Imp](https://avatars.discourse-cdn.com/v4/letter/c/58956e/32.png) [@Cinnamon\_Imp](https://boards.straightdope.com/u/Cinnamon_Imp)\ **Post date:** [December 3, 2012, 10:11am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/861 "2012-12-03T10:11:07Z")
> [@Bearflag70](#): > > Greetings! Getty is doing well! > > I haven’t been back to this thread in quite a while, but no news is good news. Whew, glad to hear it!I must admit a sense of dread everytime I see it bumped (and nobody let \*\*flatlined \*\*post in here, you hear me?) 😉 I can’t believe she’s three already - I remember this thread being started. How time flies 🙂 ---
**Author:** ![kittenblue](https://avatars.discourse-cdn.com/v4/letter/k/ba8739/32.png) [@kittenblue](https://boards.straightdope.com/u/kittenblue)\ **Post date:** [December 3, 2012, 1:01pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/862 "2012-12-03T13:01:11Z")
Oh, thanks for the update! I was just wondering about you all the other day and meant to search for recent news. Everytime I see an owl picture I think of your beautiful little girl! ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [December 4, 2012, 2:51am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/863 "2012-12-04T02:51:45Z")
I’ve been following the facebook page to know what is happening. This year, I even participated in the “Tell Six” being sure to hand them out to people who are of an age to consider this issue. You’ve done an excellent job publicizing it. You’ve paid back our support by educating us. Thank you Bearflag! ---
**Author:** ![Digital\_is\_the\_new\_Analog](https://avatars.discourse-cdn.com/v4/letter/d/a88e4f/32.png) [@Digital\_is\_the\_new\_Analog](https://boards.straightdope.com/u/Digital_is_the_new_Analog)\ **Post date:** [December 4, 2012, 3:46am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/864 "2012-12-04T03:46:21Z")
**Bearflag** - I just read this thread. Much of this happened when I was very new to the 'Dope, and wasn’t sure which threads I wanted to follow. I’m glad I started with your latest update - knowing your little Owl is doing well made reading the ups and downs of the thread much easier. Best wishes, and I’m hoping things continue to work out! -D/a ---
**Author:** ![monavis](https://avatars.discourse-cdn.com/v4/letter/m/e0b2c6/32.png) [@monavis](https://boards.straightdope.com/u/monavis)\ **Post date:** [December 4, 2012, 12:37pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/865 "2012-12-04T12:37:36Z")
> [@Bearflag70](#): > > At her last doctor’s appointment, she was in the 94th percentile of dome circumference for her age. Big heads run on my side of the family. > > We give her “tummy time” on her belly, but she can’t lift her head under her own power. She tries but her little neck can’t do it. She wiggles a round in a face plant position then gets frustrated. Apparently, most babies can do that by now. > > She’s otherwise happy and healthy. We haven’t been back to the doctor, but she didn’t seem concerned at the last meeting. Look up Laurie Horiup on her blog. She is a grandmother with that decease, was head of California’s Handicapped division. avery wonderful woman who livedas normal a life as possible. She also wrote a Book " My life with a handicap. she could give you good advice on Your daughter’s condition as she has the same handicap. ---
**Author:** ![Sarabellum](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/sarabellum/32/3492_2.png) [@Sarabellum](https://boards.straightdope.com/u/Sarabellum)\ **Post date:** [December 4, 2012, 3:46pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/866 "2012-12-04T15:46:35Z")
Miss Getty is getting so big! And she’s just adorable. Hoot-hoot to the little owl! It does make me very happy to hear that she’s getting this quality of life, and that you guys are doing such a great job advocating for your daughter. You are simply doing a superb job - hat’s off to you and your wife. I am in awe of you guys! ---
**Author:** ![Heart\_of\_Dorkness](https://avatars.discourse-cdn.com/v4/letter/h/4bbf92/32.png) [@Heart\_of\_Dorkness](https://boards.straightdope.com/u/Heart_of_Dorkness)\ **Post date:** [December 4, 2012, 4:01pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/867 "2012-12-04T16:01:26Z")
I think of you folks often, because Getty was diagnosed when I was pregnant, and she’s just a little older than my guy. So I check in with the [blog](http://gettyowl.org/about-us/blog-2/) from time to time to see how you’re doing. I’m always happy to see news and photos of you all. But [this post](http://gettyowl.org/2012/11/06/special-touches/) in particular was the most touching thing I’ve read in a long time. Best wishes to you. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [December 4, 2012, 4:29pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/868 "2012-12-04T16:29:28Z")
> [@monavis](#): > > Look up Laurie Horiup on her blog. She is a grandmother with that decease, was head of California’s Handicapped division. avery wonderful woman who livedas normal a life as possible. She also wrote a Book " My life with a handicap. she could give you good advice on Your daughter’s condition as she has the same handicap. I have spoken to Laurie a few times and we agreed to meet “sometime” but never get around to making a date. Gotta do that. Thanks! ---
**Author:** ![Merneith](https://avatars.discourse-cdn.com/v4/letter/m/57b2e6/32.png) [@Merneith](https://boards.straightdope.com/u/Merneith)\ **Post date:** [December 4, 2012, 8:12pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/869 "2012-12-04T20:12:11Z")
Thanks for the update, Bearflag! I’m glad to hear your family is doing well. ---
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [December 4, 2012, 8:58pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/870 "2012-12-04T20:58:27Z")
> [@Bearflag70](#): > > Those first months were so unbelievably horrible… > > \ > > Since then, we have learned so much about SMA, taught our doctors a lot about SMA, started an SMA nonprofit, switched jobs to accommodate our new lives, got rid of our house and a car. We help newly diagnosed SMA families every day to help them navigate those rough waters. Best of all, we have provided Getty with all she could need so far to live a happy and fruitful life, despite her limitations and medical fragility. This, right here, is the meaning of life. You used your deepest pain to find compassion for others, and I can conceive of no higher calling. Thank you for sharing this with us. ---
**Author:** ![FloatyGimpy](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/floatygimpy/32/7750_2.png) [@FloatyGimpy](https://boards.straightdope.com/u/FloatyGimpy)\ **Post date:** [March 25, 2013, 1:25pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/871 "2013-03-25T13:25:12Z")
Happy 3rd Birthday, Getty!! ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [March 25, 2013, 4:48pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/872 "2013-03-25T16:48:12Z")
happy birthday getty!!! ---
**Author:** ![janis\_and\_c0](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/janis_and_c0/32/21_2.png) [@janis\_and\_c0](https://boards.straightdope.com/u/janis_and_c0)\ **Post date:** [March 25, 2013, 7:19pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/873 "2013-03-25T19:19:49Z")
Wow. 3 years old… **Happy Birthday Getty Owl!!** ---
**Author:** ![lisiate](https://avatars.discourse-cdn.com/v4/letter/l/f05b48/32.png) [@lisiate](https://boards.straightdope.com/u/lisiate)\ **Post date:** [March 25, 2013, 9:14pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/874 "2013-03-25T21:14:34Z")
Happy Birthday Getty Owl, I hope you and your family have a great day. ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [March 25, 2013, 10:07pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/875 "2013-03-25T22:07:19Z")
**Happy Birthday Getty. Woo hoo!** ---
**Author:** ![Cazzle](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/cazzle/32/75_2.png) [@Cazzle](https://boards.straightdope.com/u/Cazzle)\ **Post date:** [March 25, 2013, 10:59pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/876 "2013-03-25T22:59:45Z")
Happy birthday Getty! ---
**Author:** ![StGermain](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/stgermain/32/2868_2.png) [@StGermain](https://boards.straightdope.com/u/StGermain)\ **Post date:** [March 26, 2013, 2:04am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/877 "2013-03-26T02:04:12Z")
\*\*Happy Birthday, GettyOwl!! \*\* StG ---
**Author:** ![overlyverbose](https://avatars.discourse-cdn.com/v4/letter/o/9dc877/32.png) [@overlyverbose](https://boards.straightdope.com/u/overlyverbose)\ **Post date:** [March 26, 2013, 2:41am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/878 "2013-03-26T02:41:20Z")
Happy Birthday, Getty! ---
**Author:** ![LavenderBlue](https://avatars.discourse-cdn.com/v4/letter/l/e95f7d/32.png) [@LavenderBlue](https://boards.straightdope.com/u/LavenderBlue)\ **Post date:** [March 26, 2013, 2:49am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/879 "2013-03-26T02:49:06Z")
Happy birthday pretty baby! ---
**Author:** ![kambuckta](https://avatars.discourse-cdn.com/v4/letter/k/53a042/32.png) [@kambuckta](https://boards.straightdope.com/u/kambuckta)\ **Post date:** [March 26, 2013, 5:07am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/880 "2013-03-26T05:07:38Z")
Happy birthday Getty. Many happy and healthy returns sweety-pie. 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=43) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=45)