# My baby girl has Spinal Muscular Atrophy (SMA)

**URL:** <https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126>\
**Category:** Miscellaneous and Personal Stuff I Must Share\
**Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\
**Posts on this page:** 20\
**Page:** 46

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [September 7, 2013, 6:52pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/901 "2013-09-07T18:52:42Z")

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Thanks. Preparing for war.

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**Author:** ![Rhiannon8404](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rhiannon8404/32/17929_2.png) [@Rhiannon8404](https://boards.straightdope.com/u/Rhiannon8404)\
**Post date:** [September 7, 2013, 11:03pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/902 "2013-09-07T23:03:14Z")

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> [@Bearflag70](#):
>
> Thanks. Preparing for war.

Good luck!

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [September 9, 2013, 4:07pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/903 "2013-09-09T16:07:45Z")

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Her 1st day of preschool is today! Who’d a thunk? Proud dad here.

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**Author:** ![Quartz](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/quartz/32/267_2.png) [@Quartz](https://boards.straightdope.com/u/Quartz)\
**Post date:** [September 9, 2013, 9:43pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/904 "2013-09-09T21:43:50Z")

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Preschool? Good heavens! You’ve worked so hard to get her there.

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**Author:** ![Broomstick](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/broomstick/32/246_2.png) [@Broomstick](https://boards.straightdope.com/u/Broomstick)\
**Post date:** [September 9, 2013, 9:50pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/905 "2013-09-09T21:50:28Z")

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OMG! Preschool!

Better start saving for Harve/Yale/UCLA now. No, I’m serious, she could be the next Stephen Hawking, right?

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**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\
**Post date:** [September 9, 2013, 10:23pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/906 "2013-09-09T22:23:20Z")

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this is the best school related news ever! i hope getty has a wonderful time at pre-school.

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**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\
**Post date:** [September 9, 2013, 11:38pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/907 "2013-09-09T23:38:16Z")

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This is terrific. I hope it is a great experience for her.

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**Author:** ![Rhiannon8404](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rhiannon8404/32/17929_2.png) [@Rhiannon8404](https://boards.straightdope.com/u/Rhiannon8404)\
**Post date:** [September 10, 2013, 12:35am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/908 "2013-09-10T00:35:53Z")

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> [@Bearflag70](#):
>
> Her 1st day of preschool is today! Who’d a thunk? Proud dad here.

I saw the FB post. Yay for Getty! So glad she had a good time.

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**Author:** ![Cyningablod](https://avatars.discourse-cdn.com/v4/letter/c/9fc29f/32.png) [@Cyningablod](https://boards.straightdope.com/u/Cyningablod)\
**Post date:** [November 3, 2013, 8:00pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/909 "2013-11-03T20:00:31Z")

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Hi Bearflag,

I can’t tell you how happy I am to read your recent updates. I haven’t posted much on the Dope in a couple of years, and from time to time I’ve remembered you and your family and have wondered how you’ve all been.  
I am THRILLED that Getty is doing so well, and I’m touched, as always, to see parents as dedicated as you are.

Continued best wishes!

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**Author:** ![LavenderBlue](https://avatars.discourse-cdn.com/v4/letter/l/e95f7d/32.png) [@LavenderBlue](https://boards.straightdope.com/u/LavenderBlue)\
**Post date:** [November 3, 2013, 8:07pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/910 "2013-11-03T20:07:44Z")

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Aww. Congratulations to your little owl! What a reason to pop open the champagne and celebrate!

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [November 5, 2013, 4:40pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/911 "2013-11-05T16:40:07Z")

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Thank you all.

We have been concerned that she would be “behind” in learning because she lacks practical experience of learning by her own movement and exploration of the world.

Perhaps.

On the flip side, her in-home teacher is amazed at the things Getty seems to be picking up on. She says the fact that Getty has such an awesome attention span, she can teach Getty things faster than she could teach able bodied kids who need to bounce around and fidget for a good part of each day.

Teacher’s assessment: she’s a very smart kid.

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**Author:** ![PunditLisa](https://avatars.discourse-cdn.com/v4/letter/p/4af34b/32.png) [@PunditLisa](https://boards.straightdope.com/u/PunditLisa)\
**Post date:** [November 6, 2013, 1:26am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/912 "2013-11-06T01:26:23Z")

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Great to hear. Thanks for the update. 🙂

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**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\
**Post date:** [November 7, 2013, 3:18am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/913 "2013-11-07T03:18:19Z")

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Wow, I know lots of teachers who would love to have a student with a real attention span. Go Getty!

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**Author:** ![FloatyGimpy](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/floatygimpy/32/7750_2.png) [@FloatyGimpy](https://boards.straightdope.com/u/FloatyGimpy)\
**Post date:** [March 26, 2014, 1:14am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/914 "2014-03-26T01:14:22Z")

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Happy 4th Birthday, Getty!

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**Author:** ![Cazzle](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/cazzle/32/75_2.png) [@Cazzle](https://boards.straightdope.com/u/Cazzle)\
**Post date:** [March 26, 2014, 1:37am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/915 "2014-03-26T01:37:37Z")

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Happy birthday Getty!

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**Author:** ![missred](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/missred/32/14096_2.png) [@missred](https://boards.straightdope.com/u/missred)\
**Post date:** [March 26, 2014, 2:14am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/916 "2014-03-26T02:14:44Z")

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Four years old already! Happy birthday, Getty!

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**Author:** ![dogbutler](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/dogbutler/32/428_2.png) [@dogbutler](https://boards.straightdope.com/u/dogbutler)\
**Post date:** [March 26, 2014, 3:14am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/917 "2014-03-26T03:14:13Z")

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Happy Birthday, Getty!

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**Author:** ![Poysyn](https://avatars.discourse-cdn.com/v4/letter/p/f4b2a3/32.png) [@Poysyn](https://boards.straightdope.com/u/Poysyn)\
**Post date:** [March 26, 2014, 3:38am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/918 "2014-03-26T03:38:09Z")

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This is amazing! Congratulations to you, your wife and your little owl. Thank you for sharing!

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**Author:** ![dropzone](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/dropzone/32/7515_2.png) [@dropzone](https://boards.straightdope.com/u/dropzone)\
**Post date:** [March 26, 2014, 4:06am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/919 "2014-03-26T04:06:30Z")

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Happy Birthday, Getty! Do you know you have so many people you’ll never meet, from around the world, cheering you on?

Wow. I just realized that she’s of a generation that will never think of that as out of the ordinary. To me it’s still science fiction.

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**Author:** ![Octarine](https://avatars.discourse-cdn.com/v4/letter/o/22d042/32.png) [@Octarine](https://boards.straightdope.com/u/Octarine)\
**Post date:** [March 26, 2014, 4:30am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/920 "2014-03-26T04:30:48Z")

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Happy Birthday Getty! I wish you many more to come. I’m fairly new here, so I just discovered this thread - from start to finish, it’s an unbelievable, incredible story.

> [@dropzone](#):
>
> Happy Birthday, Getty! Do you know you have so many people you’ll never meet, from around the world, cheering you on?
> 
> Wow. I just realized that she’s of a generation that will never think of that as out of the ordinary. To me it’s still science fiction.

Maybe threads about new babies will become a usual keepsake for people - “Here’s my birth certificate, the picture of me first walking, my favorite stuffed animal, my birth announcement message board thread . . .” 😃

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