# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 48
**Author:** ![Typo\_Knig](https://avatars.discourse-cdn.com/v4/letter/t/cdc98d/32.png) [@Typo\_Knig](https://boards.straightdope.com/u/Typo_Knig)\ **Post date:** [July 12, 2014, 1:32am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/941 "2014-07-12T01:32:33Z")
This news is the high point of my week, and I’ve had a great week! ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [July 12, 2014, 2:52am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/942 "2014-07-12T02:52:16Z")
I, too, have been following Getty and her exciting world. Way to go Getty! Way to go researchers! Keep it up! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [July 12, 2014, 4:23am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/943 "2014-07-12T04:23:45Z")
> [@Smeghead](#): > > A very close relative of mine has been personally involved in a lot of the current groundbreaking research on SMA. To hear him talk, they should have it completely cured in a few years. They’ve already done it in mice. I don’t know what effect, if anything, that will have on your daughter, but progress is happening. Oh… Who do you know? You must be talking about gene therapy. Yes that is an awesome program and offers so much hope. Groundbreaking indeed. Can’t wait to see some results from the clinical trial getting underway. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [July 12, 2014, 4:28am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/944 "2014-07-12T04:28:46Z")
The promise of a gene therapy benefit for Getty is uncertain. Lots of variables there. The mice had a short treatment window, so whether gene therapy can have much or any benefit for older SMA kids is a big question. How many motor neurons have died? What function can be saved or rehabilitated from existing motor neurons? Nonhuman primate studies show the narrow treatment window found in mice may not be so narrow for primates. So that’s promising. ---
**Author:** ![Wednesday\_Evening](https://avatars.discourse-cdn.com/v4/letter/w/b2d939/32.png) [@Wednesday\_Evening](https://boards.straightdope.com/u/Wednesday_Evening)\ **Post date:** [October 31, 2014, 7:12pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/945 "2014-10-31T19:12:57Z")
Bumping this thread to note that Getty is [One Of The Baddest Ass Trick Or Treaters You’ve Ever Seen](http://www.buzzfeed.com/morganshanahan/the-baddest-ass-trick-or-treaters-youve-ever-seen) (from Buzzfeed). Yay Getty - awesome costume! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [November 1, 2014, 3:19am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/946 "2014-11-01T03:19:49Z")
> [@Wednesday\_Evening](#): > > Bumping this thread to note that Getty is [One Of The Baddest Ass Trick Or Treaters You’ve Ever Seen](http://www.buzzfeed.com/morganshanahan/the-baddest-ass-trick-or-treaters-youve-ever-seen) (from Buzzfeed). Yay Getty - awesome costume! Thank you. Nice to see our little owl and friends on Buzzfeed with some SMA awareness to boot! ---
**Author:** ![Rhiannon8404](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rhiannon8404/32/17929_2.png) [@Rhiannon8404](https://boards.straightdope.com/u/Rhiannon8404)\ **Post date:** [November 1, 2014, 4:57am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/947 "2014-11-01T04:57:36Z")
> [@Wednesday\_Evening](#): > > Bumping this thread to note that Getty is [One Of The Baddest Ass Trick Or Treaters You’ve Ever Seen](http://www.buzzfeed.com/morganshanahan/the-baddest-ass-trick-or-treaters-youve-ever-seen) (from Buzzfeed). Yay Getty - awesome costume! Thank you for bumping and posting this! I loved, loved, loved looking at those pictures. Especially our very own Getty! ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [November 3, 2014, 3:00am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/948 "2014-11-03T03:00:57Z")
I look at them and I can’t decide who’s costume is the best. There are some very creative people out there! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [February 23, 2015, 11:51pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/949 "2015-02-23T23:51:49Z")
Hey folks! Here’s a local news piece on the latest. Getty is well. All is well. Thanks to The Dope for being there from the start. > **[Thousands run for a cure for spinal muscular atrophy](https://www.kcra.com/article/thousands-run-for-a-cure-for-spinal-muscular-atrophy/5989137)** > > Runners came out to Crocker Park for the Getty Owl Run to help raise money to fight spinal muscular atrophy. ---
**Author:** ![WhyNot](https://avatars.discourse-cdn.com/v4/letter/w/c77e96/32.png) [@WhyNot](https://boards.straightdope.com/u/WhyNot)\ **Post date:** [February 24, 2015, 12:16am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/950 "2015-02-24T00:16:29Z")
She’s so beautiful! Her hair looks just like spun gold. 🙂 Glad to hear she’s doing well. ---
**Author:** ![Sarabellum](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/sarabellum/32/3492_2.png) [@Sarabellum](https://boards.straightdope.com/u/Sarabellum)\ **Post date:** [February 24, 2015, 12:24am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/951 "2015-02-24T00:24:37Z")
Wow, that was really well done! Congrats on the run and raising awareness. Miss Getty does have great hair, it almost sparkles in the sun. What a little beauty she’s growing into! Did she have a good time? ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [February 24, 2015, 12:33am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/952 "2015-02-24T00:33:48Z")
She loved it! For the past 3 years, I would take her out to the event, visit all the vendor booths we have set up in the park, and mingle with people. This is the first year I ran the event with her. We did the 5k, and I pushed her along. The weather was perfect and the view along the Sacramento River was gorgeous. She hooted and squealed with joy much of the way and also enjoyed all the attention afterward. ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [February 24, 2015, 2:10am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/953 "2015-02-24T02:10:04Z")
I saw this on her FB page. What you all have accomplished so far is amazing. And Getty is growing up fast! ---
**Author:** ![joyfool](https://avatars.discourse-cdn.com/v4/letter/j/df788c/32.png) [@joyfool](https://boards.straightdope.com/u/joyfool)\ **Post date:** [February 24, 2015, 2:15am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/954 "2015-02-24T02:15:31Z")
My goodness, she is getting big! And I concur with everyone else… she’s quite the charming young lady. Bless your family for doing so much to help others and raise awareness. It’s a beautiful sight to behold. Just wish I was closer to watch it all in action. ---
**Author:** ![Indyellen](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/indyellen/32/4176_2.png) [@Indyellen](https://boards.straightdope.com/u/Indyellen)\ **Post date:** [February 24, 2015, 5:44pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/955 "2015-02-24T17:44:39Z")
Getty is gorgeous, and getting so big! You and your wife looked pretty good, too, **Bearflag**. 😉 Thanks for sharing this with us. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [February 24, 2015, 5:58pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/956 "2015-02-24T17:58:08Z")
Aw shucks… Thanks! ---
**Author:** ![suranyi](https://avatars.discourse-cdn.com/v4/letter/s/e36b37/32.png) [@suranyi](https://boards.straightdope.com/u/suranyi)\ **Post date:** [February 24, 2015, 6:32pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/957 "2015-02-24T18:32:20Z")
So nice to see her doing well. Hang in there! ---
**Author:** ![janis\_and\_c0](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/janis_and_c0/32/21_2.png) [@janis\_and\_c0](https://boards.straightdope.com/u/janis_and_c0)\ **Post date:** [March 26, 2015, 12:00am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/958 "2015-03-26T00:00:25Z")
Wow. A Big Five years old now… a miracle for sure!!! **Happy 5th Birthday Getty Owl!!** ---
**Author:** ![kopek](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/kopek/32/337_2.png) [@kopek](https://boards.straightdope.com/u/kopek)\ **Post date:** [March 26, 2015, 12:26am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/959 "2015-03-26T00:26:08Z")
Fan-dam-tastic!!! ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [March 26, 2015, 12:47am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/960 "2015-03-26T00:47:28Z")
happy birthday getty! hoot! hoot! hoot! hoot! hoooooooooooot! [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=47) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=49)