# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 49
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [March 26, 2015, 1:56am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/961 "2015-03-26T01:56:33Z")
She is getting so big and her glasses make her look like a true scholar! Happy Birthday Getty! ---
**Author:** ![dogbutler](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/dogbutler/32/428_2.png) [@dogbutler](https://boards.straightdope.com/u/dogbutler)\ **Post date:** [March 26, 2015, 2:09am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/962 "2015-03-26T02:09:15Z")
Happy Birthday!!! ---
**Author:** ![kambuckta](https://avatars.discourse-cdn.com/v4/letter/k/53a042/32.png) [@kambuckta](https://boards.straightdope.com/u/kambuckta)\ **Post date:** [March 26, 2015, 5:40am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/963 "2015-03-26T05:40:41Z")
Five? FIVE??? She is SO NOT FIVE already?? Really? :eek: What a wonderful milestone for Miss Getty Owl and for you and Missus Flag **Bearflag** May the day be just wonderful, and of course, many happy returns. Sending birthday candles and wishes from downunder. :):):):):):):):):):):):):):):):)🙂 ---
**Author:** ![Cazzle](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/cazzle/32/75_2.png) [@Cazzle](https://boards.straightdope.com/u/Cazzle)\ **Post date:** [March 26, 2015, 9:35am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/964 "2015-03-26T09:35:00Z")
Wishing Miss Getty Owl a very happy birthday! ---
**Author:** ![swampbear](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/swampbear/32/467_2.png) [@swampbear](https://boards.straightdope.com/u/swampbear)\ **Post date:** [March 26, 2015, 6:19pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/965 "2015-03-26T18:19:47Z")
Happy Birthday Getty Owl! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [May 15, 2015, 4:19am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/966 "2015-05-15T04:19:43Z")
Thank you all! ---
**Author:** ![Motorgirl](https://avatars.discourse-cdn.com/v4/letter/m/e36b37/32.png) [@Motorgirl](https://boards.straightdope.com/u/Motorgirl)\ **Post date:** [July 14, 2015, 3:12pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/967 "2015-07-14T15:12:54Z")
Thought of you toady - a friend is part of the team working on a [new SMA treatment](https://www.nibr.com/stories/medicines/rewriting-playbook-clinical-testing-rare-disease)and an article (primarily a PR piece) just appeared about their work. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [August 22, 2015, 4:55am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/968 "2015-08-22T04:55:04Z")
Wow! Good to see things in the pipeline ---
**Author:** ![StGermain](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/stgermain/32/2868_2.png) [@StGermain](https://boards.straightdope.com/u/StGermain)\ **Post date:** [August 26, 2015, 12:20pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/969 "2015-08-26T12:20:33Z")
**Bearflag** - Inspirational article about an SMA kid [here.](http://www.upworthy.com/he-didnt-want-to-quit-band-so-his-teacher-helped-figure-out-a-way-to-keep-him-playing?c=sr1&sr_source=lift_facebook) StG ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [September 4, 2015, 9:29pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/970 "2015-09-04T21:29:07Z")
Wonderful write up! ---
**Author:** ![Quartz](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/quartz/32/267_2.png) [@Quartz](https://boards.straightdope.com/u/Quartz)\ **Post date:** [September 4, 2015, 9:48pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/971 "2015-09-04T21:48:06Z")
Wow. Nearly five and a half years now. ---
**Author:** ![N9IWP](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/n9iwp/32/3154_2.png) [@N9IWP](https://boards.straightdope.com/u/N9IWP)\ **Post date:** [September 4, 2015, 11:18pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/972 "2015-09-04T23:18:10Z")
Just saw this on the local news: [http://raycomgroup.worldnow.com/story/29956158/wisconsin-girls-gets-to-go-to-school-thanks-to-her-robot](http://raycomgroup.worldnow.com/story/29956158/wisconsin-girls-gets-to-go-to-school-thanks-to-her-robot) Brian ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [September 6, 2015, 3:58am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/973 "2015-09-06T03:58:29Z")
That’s great too! That’s how Getty attends kindergarten: VGo robot. It’s wonderful. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [September 6, 2015, 4:00am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/974 "2015-09-06T04:00:23Z")
> [@Quartz](#): > > Wow. Nearly five and a half years now. It feels good to have proven them all wrong and to see her blossom ---
**Author:** ![kambuckta](https://avatars.discourse-cdn.com/v4/letter/k/53a042/32.png) [@kambuckta](https://boards.straightdope.com/u/kambuckta)\ **Post date:** [September 6, 2015, 4:14am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/975 "2015-09-06T04:14:23Z")
> [@Bearflag70](#): > > It feels good to have proven them all wrong and to see her blossom “Feels good”? Hahahaha…talk about understatement of the century! I’m a regular visitor to Getty’s blog, and whilst I can’t begin to comprehend the enormous effort that you and Kate put in to her care and also championing the SMA cause, just be assured there’s strangers out in the interweb world cheering you along the way. 🙂 ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [September 6, 2015, 4:31am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/976 "2015-09-06T04:31:04Z")
I’m not usually the neener neener type but in this case… Neener neener Thanks. ---
**Author:** ![Bosda\_Di\_Chi\_of\_Tricor](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/bosda_di_chi_of_tricor/32/16845_2.png) [@Bosda\_Di\_Chi\_of\_Tricor](https://boards.straightdope.com/u/Bosda_Di_Chi_of_Tricor)\ **Post date:** [September 6, 2015, 10:17am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/977 "2015-09-06T10:17:15Z")
🙂 ---
**Author:** ![bup](https://avatars.discourse-cdn.com/v4/letter/b/6bbea6/32.png) [@bup](https://boards.straightdope.com/u/bup)\ **Post date:** [September 6, 2015, 6:05pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/978 "2015-09-06T18:05:16Z")
This is the fucking greatest thing I’ve heard all month. I’m so happy for you and your family. ---
**Author:** ![Sarabellum](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/sarabellum/32/3492_2.png) [@Sarabellum](https://boards.straightdope.com/u/Sarabellum)\ **Post date:** [September 6, 2015, 9:16pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/979 "2015-09-06T21:16:30Z")
Love it! My special needs son used an iPad to talk for him last year in kindergarten, and was the first non-verbal kid to be completely mainstreamed in his district. By the end of the second week of school, the other kids were demanding that THEY wanted a Robot Voice, too. 🙂 He was just another kid, and it meant so much to him. Technology is helping to fill the gaps, at least a little bit. Hoot hoot for the little owl! ---
**Author:** ![Merneith](https://avatars.discourse-cdn.com/v4/letter/m/57b2e6/32.png) [@Merneith](https://boards.straightdope.com/u/Merneith)\ **Post date:** [September 6, 2015, 10:33pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/980 "2015-09-06T22:33:46Z")
Students like Getty and your son, Sarabellum, are astronauts, going boldly into our future. We are so lucky to be alive, right now. [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=48) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=50)