# My baby girl has Spinal Muscular Atrophy (SMA)

**URL:** <https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126>\
**Category:** Miscellaneous and Personal Stuff I Must Share\
**Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\
**Posts on this page:** 20\
**Page:** 5

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**Author:** ![gardentraveler](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/gardentraveler/32/3576_2.png) [@gardentraveler](https://boards.straightdope.com/u/gardentraveler)\
**Post date:** [August 1, 2010, 2:08am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/81 "2010-08-01T02:08:47Z")

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I’m so sorry to read this. Good thoughts headed out to you and your family.

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**Author:** ![MPB\_in\_Salt\_Lake](https://avatars.discourse-cdn.com/v4/letter/m/c0e974/32.png) [@MPB\_in\_Salt\_Lake](https://boards.straightdope.com/u/MPB_in_Salt_Lake)\
**Post date:** [August 1, 2010, 2:12am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/82 "2010-08-01T02:12:13Z")

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My best thoughts go out to your young family, Bearflag70.

Matthew

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**Author:** ![Reepicheep](https://avatars.discourse-cdn.com/v4/letter/r/ed655f/32.png) [@Reepicheep](https://boards.straightdope.com/u/Reepicheep)\
**Post date:** [August 1, 2010, 2:13am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/83 "2010-08-01T02:13:08Z")

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My heart goes out to you, your wife, and the little owl. Hugs to all – you and your family are in my thoughts and prayers.

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**Author:** ![Happy\_Fun\_Ball](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/happy_fun_ball/32/17664_2.png) [@Happy\_Fun\_Ball](https://boards.straightdope.com/u/Happy_Fun_Ball)\
**Post date:** [August 1, 2010, 2:13am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/84 "2010-08-01T02:13:09Z")

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I am really sorry. I cannot imagine how you and your wife feel right now and I know nothing said will help, but I am truly sorry.

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**Author:** ![anu-la1979](https://avatars.discourse-cdn.com/v4/letter/a/47e85d/32.png) [@anu-la1979](https://boards.straightdope.com/u/anu-la1979)\
**Post date:** [August 1, 2010, 2:17am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/85 "2010-08-01T02:17:19Z")

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Peace and love to your little owl, **Bearflag70**. My heart goes out to you and your wife.

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**Author:** ![Gleena](https://avatars.discourse-cdn.com/v4/letter/g/b3f665/32.png) [@Gleena](https://boards.straightdope.com/u/Gleena)\
**Post date:** [August 1, 2010, 2:48am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/86 "2010-08-01T02:48:03Z")

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I am so very sorry. I have no idea what else to say.

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**Author:** ![Mama\_Zappa](https://avatars.discourse-cdn.com/v4/letter/m/71e660/32.png) [@Mama\_Zappa](https://boards.straightdope.com/u/Mama_Zappa)\
**Post date:** [August 1, 2010, 2:51am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/87 "2010-08-01T02:51:26Z")

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Oh hell. My heart is breaking for you and your wife and your little hoot-owl :(. I wish I knew the magic words to help with your fear and heartache.

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**Author:** ![Elysium](https://avatars.discourse-cdn.com/v4/letter/e/3be4f8/32.png) [@Elysium](https://boards.straightdope.com/u/Elysium)\
**Post date:** [August 1, 2010, 3:17am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/88 "2010-08-01T03:17:36Z")

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Oh **Bearflag70** I’m so sorry. I can’t imagine getting that news. We’re always here for you to at the Dope, but I hope you have family or friends close by to lean on right now.

My thoughts are with you all, and you can add me as another who is crying for you.

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**Author:** ![Kyla](https://avatars.discourse-cdn.com/v4/letter/k/eada6e/32.png) [@Kyla](https://boards.straightdope.com/u/Kyla)\
**Post date:** [August 1, 2010, 3:18am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/89 "2010-08-01T03:18:55Z")

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Jesus christ this is horrible. My best wishes to you and your family, **Bearflag**. I really don’t have any words. I am thinking of you.

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**Author:** ![Heart\_of\_Dorkness](https://avatars.discourse-cdn.com/v4/letter/h/4bbf92/32.png) [@Heart\_of\_Dorkness](https://boards.straightdope.com/u/Heart_of_Dorkness)\
**Post date:** [August 1, 2010, 3:32am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/90 "2010-08-01T03:32:01Z")

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I’m so sorry, **Bearflag**. My thoughts are with you all. Take good care of each other.

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**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\
**Post date:** [August 1, 2010, 3:57am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/91 "2010-08-01T03:57:56Z")

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Today, I went for a walk in the park with my wife, our baby girl, and our dog. It was one of the most wonderful things I have ever done.

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**Author:** ![dada2fish](https://avatars.discourse-cdn.com/v4/letter/d/ccd318/32.png) [@dada2fish](https://boards.straightdope.com/u/dada2fish)\
**Post date:** [August 1, 2010, 3:59am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/92 "2010-08-01T03:59:23Z")

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There should be a law or something. No babies ever get sick. It’s just not right. My heart aches for you and your family.

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**Author:** ![Cazzle](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/cazzle/32/75_2.png) [@Cazzle](https://boards.straightdope.com/u/Cazzle)\
**Post date:** [August 1, 2010, 5:20am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/93 "2010-08-01T05:20:39Z")

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I just experienced that gut-sick feeling you get when you realise the bottom has just dropped out of someone else’s world. I am so sorry for the dire diagnosis, and remain hopeful that some kind of miracle will happen for you. This thread is devastating to read and my heart goes out to you.

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**Author:** ![Oakminster](https://avatars.discourse-cdn.com/v4/letter/o/77aa72/32.png) [@Oakminster](https://boards.straightdope.com/u/Oakminster)\
**Post date:** [August 1, 2010, 5:38am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/94 "2010-08-01T05:38:59Z")

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\*\* Bearflag70 \*\*, there are no words. Wishing the best for you and yours.

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**Author:** ![Yllaria](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/yllaria/32/3452_2.png) [@Yllaria](https://boards.straightdope.com/u/Yllaria)\
**Post date:** [August 1, 2010, 6:12am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/95 "2010-08-01T06:12:04Z")

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Oh, man. All my best thoughts to you and your family.

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**Author:** ![PapSett](https://avatars.discourse-cdn.com/v4/letter/p/ecc23a/32.png) [@PapSett](https://boards.straightdope.com/u/PapSett)\
**Post date:** [August 1, 2010, 6:19am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/96 "2010-08-01T06:19:20Z")

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I am so sorry. I don’t know what else to say. (((hugs)))

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**Author:** ![Beware\_of\_Doug](https://avatars.discourse-cdn.com/v4/letter/b/278dde/32.png) [@Beware\_of\_Doug](https://boards.straightdope.com/u/Beware_of_Doug)\
**Post date:** [August 1, 2010, 6:31am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/97 "2010-08-01T06:31:53Z")

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No words is right…such a sad thing…thinking of you.

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**Author:** ![The\_Hamster\_King](https://avatars.discourse-cdn.com/v4/letter/t/8edcca/32.png) [@The\_Hamster\_King](https://boards.straightdope.com/u/The_Hamster_King)\
**Post date:** [August 1, 2010, 6:45am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/98 "2010-08-01T06:45:47Z")

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I’m so sorry. Sending thoughts of strength your way.

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**Author:** ![Maiira](https://avatars.discourse-cdn.com/v4/letter/m/f04885/32.png) [@Maiira](https://boards.straightdope.com/u/Maiira)\
**Post date:** [August 1, 2010, 7:07am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/99 "2010-08-01T07:07:32Z")

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Oh my god, Bearflag, I’m so sorry. I remember reading your “I’m about to have a baby girl!” thread and being so excited for you. This news is truly awful, and so very unfair. My thoughts will be with you.

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**Author:** ![Neeps](https://avatars.discourse-cdn.com/v4/letter/n/a183cd/32.png) [@Neeps](https://boards.straightdope.com/u/Neeps)\
**Post date:** [August 1, 2010, 7:12am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/100 "2010-08-01T07:12:43Z")

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I’ve been trying to think of something to say, and am really struggling. Our babies are almost the same age, and I remember being pregnant at the same time as your wife, both of us preparing for the changes ahead.

Words fail me at this time. I will be thinking about you and your family.

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