# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 54
**Author:** ![kambuckta](https://avatars.discourse-cdn.com/v4/letter/k/53a042/32.png) [@kambuckta](https://boards.straightdope.com/u/kambuckta)\ **Post date:** [March 27, 2019, 2:21am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1061 "2019-03-27T02:21:05Z")
Gosh, the years are just flying by! Hope you had a great day Getty, best wishes from Australia. :):)🙂 ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [March 28, 2019, 1:50am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1062 "2019-03-28T01:50:40Z")
Happy birthday to Getty! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [March 25, 2020, 3:28pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1063 "2020-03-25T15:28:33Z")
Getty. Today. 10 years, folks! 10 years… Thanks for all the love and support. Sent from my iPhone using Tapatalk ---
**Author:** ![Dung\_Beetle](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/dung_beetle/32/7945_2.png) [@Dung\_Beetle](https://boards.straightdope.com/u/Dung_Beetle)\ **Post date:** [March 25, 2020, 6:49pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1064 "2020-03-25T18:49:20Z")
Amazing. Amazing. Happy birthday, girl! ---
**Author:** ![IvoryTowerDenizen](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/ivorytowerdenizen/32/17937_2.png) [@IvoryTowerDenizen](https://boards.straightdope.com/u/IvoryTowerDenizen)\ **Post date:** [March 25, 2020, 9:14pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1065 "2020-03-25T21:14:14Z")
> [@Bearflag70](#): > > Getty. Today. > > 10 years, folks! > > 10 years… > > Thanks for all the love and support. > Sent from my iPhone using Tapatalk Unbelievable! What a testament to her amazing parents! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [March 25, 2020, 9:53pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1066 "2020-03-25T21:53:25Z")
[![](https://uploads.tapatalk-cdn.com/20200325/647ffd5541bd09c4f1e36908417da1cc.jpg) ](https://uploads.tapatalk-cdn.com/20200325/647ffd5541bd09c4f1e36908417da1cc.jpg) Getty does her usual cake-cutting honors. Sent from my iPhone using Tapatalk ---
**Author:** ![StGermain](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/stgermain/32/2868_2.png) [@StGermain](https://boards.straightdope.com/u/StGermain)\ **Post date:** [March 25, 2020, 10:02pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1067 "2020-03-25T22:02:13Z")
Amazing! I’m so happy for you, **Bearflag**. How’s the Spinraza doing, both for Getty and for the other SMA kids? StG ---
**Author:** ![kambuckta](https://avatars.discourse-cdn.com/v4/letter/k/53a042/32.png) [@kambuckta](https://boards.straightdope.com/u/kambuckta)\ **Post date:** [March 25, 2020, 10:13pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1068 "2020-03-25T22:13:49Z")
Happy Birthday Miss Getty! Double digits now, WOOOOOOO. :):)🙂 ---
**Author:** ![missred](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/missred/32/14096_2.png) [@missred](https://boards.straightdope.com/u/missred)\ **Post date:** [March 25, 2020, 10:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1069 "2020-03-25T22:17:05Z")
Happy birthday Getty! ---
**Author:** ![Larry\_Borgia](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/larry_borgia/32/156_2.png) [@Larry\_Borgia](https://boards.straightdope.com/u/Larry_Borgia)\ **Post date:** [March 25, 2020, 10:40pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1070 "2020-03-25T22:40:35Z")
Happy Birthday! ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [March 25, 2020, 10:46pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1071 "2020-03-25T22:46:50Z")
Hoot! Hoot! hoot! Hoot! Hoot! hoot! Hoot! Hoot! hoot! HOOT! ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [March 25, 2020, 11:36pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1072 "2020-03-25T23:36:59Z")
> [@StGermain](#): > > Amazing! I’m so happy for you, **Bearflag**. How’s the Spinraza doing, both for Getty and for the other SMA kids? > > StG All good. Some fights in the community to get it covered for some folks, but good results in maintaining available strength from the time of dosing rather than experiencing constant loss of strength. A couple new oral drugs will be on the market soon hopefully. This might cut the STEEP price tag of Spinraza, especially because Spinraza requires a hospital visit to administer, which poses an exposure risk for our fragile kiddos… especially with COVID19 around. Sent from my iPhone using Tapatalk ---
**Author:** ![carnut](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/carnut/32/3531_2.png) [@carnut](https://boards.straightdope.com/u/carnut)\ **Post date:** [March 26, 2020, 2:27pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1073 "2020-03-26T14:27:12Z")
Wonderful news! Belated happy birthday to Getty! Wow, has she grown! Keep learning and growing Getty, we need girls like you! ---
**Author:** ![janis\_and\_c0](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/janis_and_c0/32/21_2.png) [@janis\_and\_c0](https://boards.straightdope.com/u/janis_and_c0)\ **Post date:** [March 26, 2020, 5:29pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1074 "2020-03-26T17:29:46Z")
**Happy Birthday Getty Owl…** Sorry it’s a day late… been thinking a lot about you guys… _HUGS_ ---
**Author:** ![Sunny\_Daze](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/sunny_daze/32/438_2.png) [@Sunny\_Daze](https://boards.straightdope.com/u/Sunny_Daze)\ **Post date:** [March 26, 2020, 7:06pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1075 "2020-03-26T19:06:59Z")
Happy Birthday! Best wishes to the entire family. ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [March 26, 2021, 8:03pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1076 "2021-03-26T20:03:35Z")
happy birthday, getty! may you continue to thrive! hoot, hoot, hoot, hoot, hoot, hoot, hoot, hoot, hoot, hoot, hoot!! ---
**Author:** ![ekedolphin](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/ekedolphin/32/10003_2.png) [@ekedolphin](https://boards.straightdope.com/u/ekedolphin)\ **Post date:** [March 26, 2021, 8:33pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1077 "2021-03-26T20:33:18Z")
I just now found this thread, and… wow. I’m already on board with the Getty Gang. How is the precious girl doing on her 11th birthday? ---
**Author:** ![ekedolphin](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/ekedolphin/32/10003_2.png) [@ekedolphin](https://boards.straightdope.com/u/ekedolphin)\ **Post date:** [April 1, 2021, 2:18am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1078 "2021-04-01T02:18:55Z")
A CNN article about [another](https://www.cnn.com/2021/03/31/health/toddler-expensive-drug-zolgensma-wellness/index.html?utm_content=2021-04-01T01%3A01%3A38&utm_medium=social&utm_term=link&utm_source=fbCNN&fbclid=IwAR164T8CFzKIR0rUd_7Vs-_s3-hZoohL6t2dPScZAbFQ3JeRMDaTJLxU6Rs) precious girl with SMA, from Denmark, and her parents’ struggles to save her life. ---
**Author:** ![janis\_and\_c0](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/janis_and_c0/32/21_2.png) [@janis\_and\_c0](https://boards.straightdope.com/u/janis_and_c0)\ **Post date:** [April 10, 2021, 3:17am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1079 "2021-04-10T03:17:25Z")
Happy VERY late Birthday precious! ---
**Author:** ![Shayna](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/shayna/32/17976_2.png) [@Shayna](https://boards.straightdope.com/u/Shayna)\ **Post date:** [June 1, 2021, 11:35pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1080 "2021-06-01T23:35:38Z")
Bearflag, is the treatment Zolgensma covered here yet, and would it help Getty Owl? > **[Five-month-old baby becomes first NHS patient to receive Zolgensma drug for...](https://news.sky.com/story/five-month-old-baby-becomes-first-nhs-patient-to-receive-drug-for-genetic-condition-12321853)** > > Arthur Morgan, who has spinal muscular atrophy (SMA), received the one-off US gene therapy, Zolgensma, last week. Think of you often. Hope all is going well. \<3 [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=53) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=55)