# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 55
**Author:** ![Typo\_Knig](https://avatars.discourse-cdn.com/v4/letter/t/cdc98d/32.png) [@Typo\_Knig](https://boards.straightdope.com/u/Typo_Knig)\ **Post date:** [August 1, 2021, 8:18pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1081 "2021-08-01T20:18:45Z")
I only just saw the Facebook post about Getty’s 11th birthday. I’m moved beyond words, and straight to tears of joy. ---
**Author:** ![janis\_and\_c0](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/janis_and_c0/32/21_2.png) [@janis\_and\_c0](https://boards.straightdope.com/u/janis_and_c0)\ **Post date:** [March 25, 2022, 7:49pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1082 "2022-03-25T19:49:43Z")
Holy cow. I can’t believe this baby is 12 today. Happy birthday darling! ---
**Author:** ![ekedolphin](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/ekedolphin/32/10003_2.png) [@ekedolphin](https://boards.straightdope.com/u/ekedolphin)\ **Post date:** [March 26, 2022, 1:00am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1083 "2022-03-26T01:00:25Z")
I think I may have only discovered this thread last year, but happy birthday to your beautiful little miracle. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [March 28, 2022, 5:04pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1084 "2022-03-28T17:04:21Z")
Hello Dopers. Sorry I’ve been absent for a while. Getty turned 12 a few days ago. She is doing well with Spinraza to maintain existing strength. We are currently in the hospital for an illness that accelerated the timing of a planned tracheostomy. She’s adjusting well to the new vent interface. ---
**Author:** ![hajario](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/hajario/32/171_2.png) [@hajario](https://boards.straightdope.com/u/hajario)\ **Post date:** [March 28, 2022, 5:06pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1085 "2022-03-28T17:06:47Z")
Thanks for the update. I am humbled by the strength and perseverance of your family. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [March 28, 2022, 5:08pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1086 "2022-03-28T17:08:57Z")
Thanks for all of your support and well wishes! ---
**Author:** ![janis\_and\_c0](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/janis_and_c0/32/21_2.png) [@janis\_and\_c0](https://boards.straightdope.com/u/janis_and_c0)\ **Post date:** [March 25, 2023, 4:29pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1087 "2023-03-25T16:29:47Z")
Wow. A teenager! Happy Birthday Getty Owl! ---
**Author:** ![rocking\_chair](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/rocking_chair/32/2918_2.png) [@rocking\_chair](https://boards.straightdope.com/u/rocking_chair)\ **Post date:** [March 25, 2023, 10:40pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1088 "2023-03-25T22:40:01Z")
Hoot, hoot, hoot, hoot! Uu uu, uu uu, uu uu, uu uu! Hu hu, hu hu, hu hu, hu hu! HOOT! ---
**Author:** ![Jman](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/jman/32/4416_2.png) [@Jman](https://boards.straightdope.com/u/Jman)\ **Post date:** [June 22, 2023, 7:58pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1089 "2023-06-22T19:58:38Z")
I know it’s been over a year since your last update, but just wanted to check in and see how the little owl was doing. I still think about Getty from time to time, even though I haven’t been an active poster on the SDMB for a few years. It has been truly amazing what you and Mrs. Bearflag have been able to do in fighting SMA and caring for Getty. I did see some of the photos you’ve posted recently on Instagram, and it’s amazing and wonderful to see her as a teenager! Continued good luck and best wishes for you, Getty and your family! ---
**Author:** ![janis\_and\_c0](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/janis_and_c0/32/21_2.png) [@janis\_and\_c0](https://boards.straightdope.com/u/janis_and_c0)\ **Post date:** [March 25, 2024, 10:43pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1090 "2024-03-25T22:43:11Z")
Just wanted to bump this to wish Miss Getty a very very happy birthday! ---
**Author:** ![Typo\_Knig](https://avatars.discourse-cdn.com/v4/letter/t/cdc98d/32.png) [@Typo\_Knig](https://boards.straightdope.com/u/Typo_Knig)\ **Post date:** [March 26, 2024, 1:08am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1091 "2024-03-26T01:08:51Z")
> [@janis\_and\_c0](#): > > Just wanted to bump this to wish Miss Getty a very very happy birthday! Seconded! I saw the Facebook post that Miss Getty is 14 years old! 😍 ---
**Author:** ![purplehorseshoe](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/purplehorseshoe/32/2996_2.png) [@purplehorseshoe](https://boards.straightdope.com/u/purplehorseshoe)\ **Post date:** [March 26, 2024, 1:15am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1092 "2024-03-26T01:15:42Z")
> [@Bearflag70](#): > > Hello Dopers. Sorry I’ve been absent for a while. Getty turned 12 a few days ago. Never, ever apologize. It’s been a while! I remember when this all started. (“Hoooot!”) So here’s another 🦉 … and yes, I know the post I’m responding to is older than some of my socks. I’m just holding good wishes for your family. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [November 18, 2024, 3:32am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1093 "2024-11-18T03:32:12Z")
Hello Dopers! It’s been a while! Everyone’s good. Getty is a 14 year old high school student doing remote classes from home. I love her to pieces. She’s happy, sassy, independent minded, and wonderful. Thanks all for your well wishes over the years. ---
**Author:** ![needscoffee](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/needscoffee/32/1076_2.png) [@needscoffee](https://boards.straightdope.com/u/needscoffee)\ **Post date:** [November 18, 2024, 4:17am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1094 "2024-11-18T04:17:25Z")
Great to hear! ---
**Author:** ![hajario](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/hajario/32/171_2.png) [@hajario](https://boards.straightdope.com/u/hajario)\ **Post date:** [November 18, 2024, 5:45am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1095 "2024-11-18T05:45:19Z")
Go Getty! Thanks for the update ---
**Author:** ![Typo\_Knig](https://avatars.discourse-cdn.com/v4/letter/t/cdc98d/32.png) [@Typo\_Knig](https://boards.straightdope.com/u/Typo_Knig)\ **Post date:** [November 18, 2024, 7:10pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1096 "2024-11-18T19:10:57Z")
Yay! Good news is always welcome! ---
**Author:** ![susan](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/susan/32/17537_2.png) [@susan](https://boards.straightdope.com/u/susan)\ **Post date:** [November 18, 2024, 7:12pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1097 "2024-11-18T19:12:35Z")
Great news! ---
**Author:** ![Saint\_Cad](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/saint_cad/32/18907_2.png) [@Saint\_Cad](https://boards.straightdope.com/u/Saint_Cad)\ **Post date:** [November 18, 2024, 7:18pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1098 "2024-11-18T19:18:33Z")
You don’t know how worried I was scrolling down to see the update. I am so glad for Getty and you. And keep the good news updates coming. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [November 19, 2024, 2:54am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1099 "2024-11-19T02:54:09Z")
I can’t say it’s been an entirely smooth road. In late 2021, she had what we think is an allergic reaction to the COVID vaccine. Her face swelled up, digestion shut down, and ended up getting septic. We spent about 2 months in the hospital and got her off of the BiPAP ventilator mask a had her trached. It’s been a transition but she’s better now. ---
**Author:** ![JRDelirious](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/jrdelirious/32/9531_2.png) [@JRDelirious](https://boards.straightdope.com/u/JRDelirious)\ **Post date:** [November 19, 2024, 8:28pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/1100 "2024-11-19T20:28:15Z")
What a journey… we all keep rooting for her and for all of you. [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=54) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=56)