# My baby girl has Spinal Muscular Atrophy (SMA) **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [July 18, 2010, 3:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126 "2010-07-18T15:17:44Z")\ **Posts on this page:** 20\ **Page:** 6
**Author:** ![Girl\_From\_Mars](https://avatars.discourse-cdn.com/v4/letter/g/3da27b/32.png) [@Girl\_From\_Mars](https://boards.straightdope.com/u/Girl_From_Mars)\ **Post date:** [August 1, 2010, 9:48am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/101 "2010-08-01T09:48:54Z")
Awful awful news, and I’m hoping that you hear something positive about her condition very soon. Can’t imagine what you’re going through, but we’re thinking about you guys and your little owl. ---
**Author:** ![Rala](https://avatars.discourse-cdn.com/v4/letter/r/8797f3/32.png) [@Rala](https://boards.straightdope.com/u/Rala)\ **Post date:** [August 1, 2010, 10:09am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/102 "2010-08-01T10:09:31Z")
I’m so sorry. I’ll be thinking of you and your family, and praying if you don’t object. I can’t think of anything else to say - I guess there isn’t anything. My heart goes out to you. ---
**Author:** ![Cinnamon\_Imp](https://avatars.discourse-cdn.com/v4/letter/c/58956e/32.png) [@Cinnamon\_Imp](https://boards.straightdope.com/u/Cinnamon_Imp)\ **Post date:** [August 1, 2010, 10:41am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/103 "2010-08-01T10:41:11Z")
I’m so sorry to hear your news. I don’t know if there are levels of SMA, but I just wanted to say I knew a guy with it who made it to over 30, yes he was in a wheelchair, but he had a happy full life, very intelligent, active social life, good career, loads of girlfriends and didn’t have to rely on a ventilator. With medical advances, I hope your daughter also defies the current predictions and goes on to achieve great things. (hugs from a stranger, if you want them) ---
**Author:** ![Sticks\_and\_Scones](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/sticks_and_scones/32/16951_2.png) [@Sticks\_and\_Scones](https://boards.straightdope.com/u/Sticks_and_Scones)\ **Post date:** [August 1, 2010, 11:17am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/104 "2010-08-01T11:17:53Z")
My thoughts are with you and your little owl. ☹ ---
**Author:** ![Broomstick](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/broomstick/32/246_2.png) [@Broomstick](https://boards.straightdope.com/u/Broomstick)\ **Post date:** [August 1, 2010, 11:20am UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/105 "2010-08-01T11:20:48Z")
> [@Bearflag70](#): > > Today, I went for a walk in the park with my wife, our baby girl, and our dog. It was one of the most wonderful things I have ever done. Cherish the good moments. Try to have as many as possible. I wish you many happy moments over the years despite this horrible news. ---
**Author:** ![WhyNot](https://avatars.discourse-cdn.com/v4/letter/w/c77e96/32.png) [@WhyNot](https://boards.straightdope.com/u/WhyNot)\ **Post date:** [August 1, 2010, 2:43pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/106 "2010-08-01T14:43:07Z")
> [@Bearflag70](#): > > Not much more that can be said. The thoughts are appreciated more than the words. _Thoughts_ Sorrowful, loving, rage-at-the-universe thoughts. May we ALL enjoy the moments we have with our children while we have them. ---
**Author:** ![Khadaji](https://avatars.discourse-cdn.com/v4/letter/k/9e8a1a/32.png) [@Khadaji](https://boards.straightdope.com/u/Khadaji)\ **Post date:** [August 1, 2010, 2:45pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/107 "2010-08-01T14:45:34Z")
I’m sorry to hear your news. My thoughts are with you. ---
**Author:** ![cwthree](https://avatars.discourse-cdn.com/v4/letter/c/9de0a6/32.png) [@cwthree](https://boards.straightdope.com/u/cwthree)\ **Post date:** [August 1, 2010, 2:47pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/108 "2010-08-01T14:47:43Z")
How awful. I’m sorry. ---
**Author:** ![Tequila\_Mockingbird](https://avatars.discourse-cdn.com/v4/letter/t/41988e/32.png) [@Tequila\_Mockingbird](https://boards.straightdope.com/u/Tequila_Mockingbird)\ **Post date:** [August 1, 2010, 3:09pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/109 "2010-08-01T15:09:48Z")
What heart wrenching news… I wish words could convey how badly I feel about your sweet baby owl’s diagnosis. My thoughts are with you and your family. Enjoy every precious moment while you can. ---
**Author:** ![IvoryTowerDenizen](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/ivorytowerdenizen/32/17937_2.png) [@IvoryTowerDenizen](https://boards.straightdope.com/u/IvoryTowerDenizen)\ **Post date:** [August 1, 2010, 3:38pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/110 "2010-08-01T15:38:47Z")
I am so very, very sorry. ---
**Author:** ![rhubarbarin](https://avatars.discourse-cdn.com/v4/letter/r/eb9ed0/32.png) [@rhubarbarin](https://boards.straightdope.com/u/rhubarbarin)\ **Post date:** [August 1, 2010, 3:43pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/111 "2010-08-01T15:43:55Z")
I’m so, so sorry to hear this terrible news. I will be thinking of you and your wife, your little daughter, and your family. ---
**Author:** ![aceplace57](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/aceplace57/32/3500_2.png) [@aceplace57](https://boards.straightdope.com/u/aceplace57)\ **Post date:** [August 1, 2010, 3:54pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/112 "2010-08-01T15:54:28Z")
I wish your family well. Treasure the time with your daughter and keep her close to your heart. Best wishes. ---
**Author:** ![Bearflag70](https://avatars.discourse-cdn.com/v4/letter/b/8e7dd6/32.png) [@Bearflag70](https://boards.straightdope.com/u/Bearflag70)\ **Post date:** [August 1, 2010, 4:13pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/113 "2010-08-01T16:13:18Z")
Another day. Things get a bit easier as time progresses and reality sets in. Today is our 8 year anniversary of the day my wife and I met. We’re learning to live for the moment. ---
**Author:** ![evilbeth](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/evilbeth/32/2268_2.png) [@evilbeth](https://boards.straightdope.com/u/evilbeth)\ **Post date:** [August 1, 2010, 4:38pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/114 "2010-08-01T16:38:21Z")
**Bearflag** , I am so very sorry. I am glad you are living day by day and enjoying every blessed moment with that wonderful little baby owl. ---
**Author:** ![shantih](https://avatars.discourse-cdn.com/v4/letter/s/f6c823/32.png) [@shantih](https://boards.straightdope.com/u/shantih)\ **Post date:** [August 1, 2010, 4:42pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/115 "2010-08-01T16:42:41Z")
**Bearflag** , I’m so terribly sorry. _helpless_ ---
**Author:** ![Antigen](https://avatars.discourse-cdn.com/v4/letter/a/848f3c/32.png) [@Antigen](https://boards.straightdope.com/u/Antigen)\ **Post date:** [August 1, 2010, 5:05pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/116 "2010-08-01T17:05:03Z")
I’m so sorry, **Bearflag**. I know nothing I say can help, but I’m thinking of you and your family and hoping for the best. ---
**Author:** ![koeeoaddi](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/koeeoaddi/32/408_2.png) [@koeeoaddi](https://boards.straightdope.com/u/koeeoaddi)\ **Post date:** [August 1, 2010, 5:10pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/117 "2010-08-01T17:10:57Z")
Oh, **Bearflag** , I’m so very sorry. You and your family and especially your little one will be in my thoughts. ---
**Author:** ![Zakalwe](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/zakalwe/32/270_2.png) [@Zakalwe](https://boards.straightdope.com/u/Zakalwe)\ **Post date:** [August 1, 2010, 5:11pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/118 "2010-08-01T17:11:16Z")
**Bearflag** Dear Lord, I am so sorry. One of my wife’s best college friends went through this. If you haven’t been to [http://www.fsma.org/](http://www.fsma.org/), please go. Also, if you have Facebook and want to get in touch with her (the friend). PM me and I’ll put you guys in touch. ---
**Author:** ![Larry\_Borgia](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/larry_borgia/32/156_2.png) [@Larry\_Borgia](https://boards.straightdope.com/u/Larry_Borgia)\ **Post date:** [August 1, 2010, 5:11pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/119 "2010-08-01T17:11:42Z")
May you have many days with your precious daughter. I wish you and your family all the best in this difficult time. ---
**Author:** ![joyfool](https://avatars.discourse-cdn.com/v4/letter/j/df788c/32.png) [@joyfool](https://boards.straightdope.com/u/joyfool)\ **Post date:** [August 1, 2010, 5:17pm UTC](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126/120 "2010-08-01T17:17:43Z")
I am so very sorry **Bearflag**. Prayers for you all are headed your way. ☹ [Previous page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=5) [Next page](https://boards.straightdope.com/t/my-baby-girl-has-spinal-muscular-atrophy-sma/547126.md?page=7)