Our baby died yesterday (another long post)

8:00PM CDT I will be in a Bible class and it ends about then. We finish with prayer, and you can be assured I will mention Ian, and ask for prayer in his name.

TokyoPlayer, I’m so sorry for your loss, and my heart goes out to you, your wife and your family.

Done. But for all of you, not just Ian.

A special prayer has been said for Ian.

Done at 1700 PDT. Along with a request to my parents—especially my mother, who adored babies of all shapes, sizes and colors—to keep an eye out for him.

(I tried to fold an origami crane to set afloat in the lake outside the HQ building in Ian’s memory, but what I came up with would have been insulting. So I guess he’ll have to get by with the prayer and the request. Somehow, I don’t think he has anything to worry about.)

I’m so sorry for your loss.

It seems so very inadequate, but I’m so terribly sorry for your loss. As a mother, I can only imagine what horrible grief you must be suffering. As a human being, I find myself stunned and awed by the love and courage that you’ve both displayed. How selfless you’ve been, how loving and tender and brave–I’m simply blown away.

Lean on one another now and draw on the strength and love that you’ve shared through all of this. And when you need friends to talk to, we’ll be here.

Rest peacefully, little Ian.

May you and yours find peace, TokyoPlayer.

TokyoPlayer I am so sorry for your loss. You are a very strong and brave person, and I know that you and TokyoWife were the best parents little Ian could have had in his short stay on Earth

Thank you all so much for your thoughts and prayers. We had a really nice experience at the cremation.

TW, TokyoMother, SIL, and MIL send their thanks and appreciation as well.

I will write more, but today has been too long and I will pause here.

Here are some more photos.

Just thinking good thoughts your way.

My thoughts are with your family. I’m sorry Ian was with you so short a time.

G

I’m so very, very sorry.

I almost didn’t open your thread - my selfishness I suppose, in not wanting to feel this way this morning. I finally realized how horrible I was.

I don’t know if this will help but you might like to get hold of a copy of Swimmer in the Secret Sea by William Kotzwinkle.

My thoughts are with you.

Toyko Player I am so sorry for your loss. Maybe a good idear might be to find a charity or an organziation that is doing nereologcal research on hydranencephy/related conditions (like some genetic syndromes that have formal groups might have hyndranencephaly as one of the symptoms)
and start a tradition of sending them a donation on Ian’s birthday! Maybe even get involved with those organizations, since many of the rare medical things tend to be very grassroots, and always in need of support.

I lost my father on August 30th. It is so true that losing a child is worse than anything else. But for me? I have no children, and I had devoted my life to making sure my dad was as happy as he COULD be after my mom died nine and a half years ago. I made him the focus of my life, so I did this to myself…but I think I understand what you went through. I’m lost and devastated.

I am so sorry that you had this happen. But I believe that your child is in heaven, in the arms of God. And also in the arms of both of my parents, who…TRUST ME…will love your baby as if he was their very own. It isn’t much, but it is what I can give you. Because I believe it to be true.

I’m so very sorry.

My Love,

Cheri

I had lost track of Ian’s tale and now that I have learned what has happened I am crying as I type this. I hope peace and strength continue to surround your family.