I decided to take my doctor’s advice on trying a vascular specialist before doing PT again. I just had an appointment last week. I described my symptoms to the PA, she looked at my knee and the other tests I had done, and said she doubted this was vein-related. But she gave me a test where they put those blood-pressure testing cuffs on my wrists and ankles, and some sensors on my fingers and toes. She said all the numbers came up normal, and then the doctor came in to view the results and he agreed.
I asked if they had any thoughts on what else to do, and the PA suggested a Rheumatology specialist who was in the same building. Her thought was that it could be an issue related to mitochondria or lactic acid buildup. She even went over and talked to him for me, and he said he’d see me but I need some blood work first. So I have a list of blood work tests, and I’m getting them done on Monday, and then hopefully I can make an appointment with the doctor.
I also had an appointment with my primary care physician last week, and I asked her if she had any ideas for what else to try. She recommended trying this third PT place, so I have an appointment with them on Monday too. She also said she felt confident that the problem would be found eventually, it just might take time. I’m not so sure, and wondered if she was just saying that to make me feel better, as I was visibly frustrated and upset by the whole thing. Hopefully she’s right.
I called back the orthopedic doctor (who had recommended the vascular specialists) and left a message for him asking if he had any other suggestions beyond the PT.
So that’s where it stands. Any other thoughts about what this could be? I saw some info on bursitis and thought that was a possibility, but maybe my other tests (MRI, X-Ray, EMG) would have shown that already?
TL;DR - I bought a bike that was either too heavy or at an angle that my body didn’t like. Riding it made my quads sore, but I kept at it for probably too long. After I stopped, my quads eventually felt better, but I was left with a mysterious, swollen painful lump above my left knee. It’s always swollen, and exercise or walking makes it hurt. Massaging the area or putting any kind of pressure on it makes it hurt. Cutting out physical activity entirely is the only thing that somewhat stops the pain. It has been like this since October 2011. I have had the following tests, all showing up negative: x-ray, MRI, EMG, compartment syndrome test, blood pressure test for vein issues. Physical therapy made it worse, since it involves physical activity. I am seeking advice on other specialists/tests to consider that may help diagnose the problem.