# Tell me about your epilepsy **URL:** \ **Category:** Miscellaneous and Personal Stuff I Must Share\ **Created:** [March 24, 2016, 4:39pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029 "2016-03-24T16:39:24Z")\ **Posts on this page:** 20\ **Page:** 1
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [March 24, 2016, 4:39pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/1 "2016-03-24T16:39:24Z")
So Monday was happening, I was just hanging out working at my computer desk. Next thing I know I’m laying on the floor with coworkers fussing over me and I couldn’t remember a damned thing. One of the fussing coworkers told me I had a seizure, then I was hauled away in an ambulance. They kept asking me questions like, ''What year is it?" and ''Where do you work?" and I hadn’t a damned clue. Eventually, my memory came back, but it took a good 20 minutes. And the nausea was intense. At the hospital, they did a CT scan with no abnormal results, so they sent me home. I crawled into bed and promptly had another seizure – that’s two in the space of just a few hours. Back to the hospital I went, and I stayed in outpatient observation for two days. According to witnesses, these were the full-out convulsing kind of seizures for 2-3 minutes at a time. Among the weirder results – my kidney function was abnormal, possibly due to dehydration, and I tested positive for ecstasy. 😕 Anyway, this wasn’t my first rodeo. In 2013 something similar happened to me while I was on a hike. They took me away in an ambulance, did an EEG then and there were no abnormal readings so they just let me go and said, ''Well, it happens." Now that I’ve had three confirmed seizures, though, I’m officially diagnosed with epilepsy. I can’t drive for 6 months. My work schedule is going to be all jacked up (though luckily they are willing to work with me/let me work from home if necessary.) They put me on this medication called Keppra, and I was pulled off Wellbutrin which according to my shrink is ‘‘contraindicated for seizures.’’ That really blows me for me personally because Wellbutrin is the only antidepressant I’ve ever taken that works. So, brave new world for me. It’s scary thinking I could have a seizure at any moment, and I have no warning whatsoever, not an aura or anything like that, that would indicate I am about to have an event. So I am afraid to use the stove, or sit in a bath, or hold a knife, or do a number of other things that might hurt me. I’m sure there are Dopers out there who have been through this, and maybe have some pointers? Or just commiseration. This has been a truly bizarre experience all around. Thanks for listening, Christy ---
**Author:** ![Shodan](https://avatars.discourse-cdn.com/v4/letter/s/9f8e36/32.png) [@Shodan](https://boards.straightdope.com/u/Shodan)\ **Post date:** [March 24, 2016, 5:04pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/2 "2016-03-24T17:04:09Z")
Do you live alone? (Ignore if that is NOMB). Regards, Shodan ---
**Author:** ![ZipperJJ](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/zipperjj/32/211_2.png) [@ZipperJJ](https://boards.straightdope.com/u/ZipperJJ)\ **Post date:** [March 24, 2016, 5:11pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/3 "2016-03-24T17:11:31Z")
Dude, I’m sorry ☹ What did they say might cause a test to come up positive for ecstasy (that isn’t ecstasy)? ---
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [March 24, 2016, 5:15pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/4 "2016-03-24T17:15:13Z")
> [@Shodan](#): > > Do you live alone? (Ignore if that is NOMB). > > Regards, > Shodan I don’t. I live with my husband, though he’s at work an awful lot. ---
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [March 24, 2016, 5:19pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/5 "2016-03-24T17:19:14Z")
> [@ZipperJJ](#): > > Dude, I’m sorry ☹ > > What did they say might cause a test to come up positive for ecstasy (that isn’t ecstasy)? They said some OTC drugs can yield that result. They didn’t seem super concerned about it. ---
**Author:** ![Shodan](https://avatars.discourse-cdn.com/v4/letter/s/9f8e36/32.png) [@Shodan](https://boards.straightdope.com/u/Shodan)\ **Post date:** [March 24, 2016, 5:33pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/6 "2016-03-24T17:33:07Z")
> [@Spice\_Weasel](#): > > I don’t. I live with my husband, though he’s at work an awful lot. My bad - I confused you with another Doper. Did the dehydration have anything to do with it? I have no idea if that would affect epilepsy or not. Regards, Shodan ---
**Author:** ![Wesley\_Clark](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/wesley_clark/32/20581_2.png) [@Wesley\_Clark](https://boards.straightdope.com/u/Wesley_Clark)\ **Post date:** [March 24, 2016, 5:59pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/7 "2016-03-24T17:59:44Z")
Well, I’m glad to see you back on the boards but it sucks that this is what is happening to bring it about. Having never dealt with epilepsy I have no useful advice. Aside from here, I’d find a forum devoted to the subject. Patient forums are usually the most educational places you can go. There is jewelry like necklaces and bracelets that alerts someone if you faint, I would look into getting one. Look up ‘fall detection’ Also, welcome back. ---
**Author:** ![pidgeon92](https://avatars.discourse-cdn.com/v4/letter/p/50afbb/32.png) [@pidgeon92](https://boards.straightdope.com/u/pidgeon92)\ **Post date:** [March 24, 2016, 7:07pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/8 "2016-03-24T19:07:13Z")
That sucks. I don’t have epilepsy myself, but one of my dogs suffers occasional seizures. She just had two two days ago, one at 2:30a, and one at 4:00p. It’s heartbreaking to see, but she snaps out of it pretty quickly. She has had a total of 10 seizures in the last 19 months, and they tend to cluster together. At one point, it was 324 days between seizures. We’ve done numerous blood tests, the vet doesn’t know what’s causing them. ---
**Author:** ![Guinastasia](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/guinastasia/32/5751_2.png) [@Guinastasia](https://boards.straightdope.com/u/Guinastasia)\ **Post date:** [March 24, 2016, 11:20pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/9 "2016-03-24T23:20:42Z")
Epilepsy sucks. I’ve been having seizures for ten years now, although fortunately I haven’t had a big one since 2009 (I still have what are called “focal seizures”, or what used to be called “petit mals” from time to time). My doctor got me on the right combination of meds (Lamictal and Zonegran). Mine were always triggered by my period, it seemed – every month I’d end up spending a few days in bed. Caffeine was the other. My advice would be – find your triggers and then avoid them. Keep a diary of your seizures, write down the date and time, and anything you think might have caused them. I’ve found it’s helpful to show my doctor. And I second a medical alert bracelet. Also let your loved ones and coworkers know what to do when you have a seizure. (For one thing, do NOT allow them to put anything in your mouth!) Good luck. 🙂 ---
**Author:** ![Wesley\_Clark](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/wesley_clark/32/20581_2.png) [@Wesley\_Clark](https://boards.straightdope.com/u/Wesley_Clark)\ **Post date:** [March 25, 2016, 2:10am UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/10 "2016-03-25T02:10:28Z")
> [@Wesley\_Clark](#): > > There is jewelry like necklaces and bracelets that alerts someone if you faint, I would look into getting one. Look up ‘fall detection’ [http://www.epilepsy.com/learn/impact/mortality/sudep/role-seizure-alerts](http://www.epilepsy.com/learn/impact/mortality/sudep/role-seizure-alerts) I don’t know if you are interested in these products, but you said you spend a lot of time home alone (or at least you will, now that you can’t drive) and your husband is at work so you will be home alone a lot. A monitor that can call for medical aid and alert your husband if you faint or have a seizure is probably a good idea. At the very least, it’ll give you peace of mind. As Guin said earlier, find your triggers. That will also help. Apparently they don’t publish ‘epilepsy for dummies’ or ‘the complete idiots guide to seizure disorders’ guidebooks, but [this](http://www.amazon.com/Living-Epilepsy-Other-Seizure-Disorders/dp/0060538481/ref=sr_1_14?ie=UTF8&qid=1458871743&sr=8-14&keywords=epilepsy) one seems like a good intro book on the subject. ---
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [March 25, 2016, 3:06am UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/11 "2016-03-25T03:06:45Z")
I dug up[the post I made](http://boards.straightdope.com/sdmb/showthread.php?t=688829) the first time this happened, in 2013… apparently the diagnosis then was ‘‘syncope.’’ But in reality it’s pretty clear that was my first seizure. What I need to know is whether or not I was taking Wellbutrin at the time. If so, there’s some good evidence there that the Wellbutrin caused or exacerbated my condition. ---
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [March 25, 2016, 3:07am UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/12 "2016-03-25T03:07:48Z")
Thanks **Wesley** I am definitely interested in something like that just because being home alone scares the shit out of me right now. ---
**Author:** ![Wesley\_Clark](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/wesley_clark/32/20581_2.png) [@Wesley\_Clark](https://boards.straightdope.com/u/Wesley_Clark)\ **Post date:** [March 25, 2016, 3:14am UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/13 "2016-03-25T03:14:30Z")
> [@Spice\_Weasel](#): > > What I need to know is whether or not I was taking Wellbutrin at the time. If so, there’s some good evidence there that the Wellbutrin caused or exacerbated my condition. Hmm. I hope this isn’t too forward, but I searched your username and the keyword wellbutrin. One of the first things that came up was this post you made in July of 2012. [http://boards.straightdope.com/sdmb/showpost.php?p=15265903&postcount=11](http://boards.straightdope.com/sdmb/showpost.php?p=15265903&postcount=11) > [@Spice\_Weasel](#): > > I’ve been on Wellbutrin for four or five months now, Did you take it off and on, or did you start in 2012 and keep taking it consistently the last few years? ---
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [March 25, 2016, 3:27am UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/14 "2016-03-25T03:27:29Z")
IIRC I took it consistently until June 2014, when I got pregnant, then I tapered off. I went back on it in fall 2015. So I guess it can’t be ruled out as a trigger. ---
**Author:** ![Wesley\_Clark](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/wesley_clark/32/20581_2.png) [@Wesley\_Clark](https://boards.straightdope.com/u/Wesley_Clark)\ **Post date:** [March 25, 2016, 3:40am UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/15 "2016-03-25T03:40:34Z")
Sorry to hear that, in the post I linked to you seem to imply wellbutrin is the only thing that has worked for your depression. ---
**Author:** ![Wesley\_Clark](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/wesley_clark/32/20581_2.png) [@Wesley\_Clark](https://boards.straightdope.com/u/Wesley_Clark)\ **Post date:** [March 25, 2016, 3:43am UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/16 "2016-03-25T03:43:20Z")
> **[Home - Journal of Osteopathic Medicine](https://jom.osteopathic.org/)** > [@](#): > > At dosages of 450 mg/d or less, the incidence rate of seizures ranged from 0.35% to 0.44%, compared with a first-seizure incidence of 0.07% to 0.09% in the general population.4 The estimated seizure incidence was found to increase tenfold at dosages of more than 450 mg/d,5 and the number of seizure occurrences were twice as high in patients who took extra doses of bupropion IR on an “as needed” basis.6 In fact, a 2002 study7 reported that bupropion-induced seizures were the third most common cause of drug-induced seizures after cocaine ingestion and benzodiazepine withdrawal. In addition, about 21% of patients admitted with intentional bupropion IR overdose presented with seizures.8 > > In 1996, the FDA approved sustained-release bupropion (bupropion SR) as an alternative to bupropion IR. Bupropion SR allowed for more convenient twice daily dosing and reduced seizure incidence rates to 0.1%.9,10 Published reports, however, warn that this long-acting formulation might prolong neurologic toxicity—including seizures in overdose.11 Were you taking immediate release or sustained release tablets? The impression I get from the above is that the sustained release tablets have a rate of seizures roughly what the general public do, while those who use immediate release have a rate 5-10x higher than normal. ---
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [March 25, 2016, 1:06pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/17 "2016-03-25T13:06:41Z")
> [@Wesley\_Clark](#): > > [Home - Journal of Osteopathic Medicine](http://jaoa.org/article.aspx?articleid=2093332) > > Were you taking immediate release or sustained release tablets? The impression I get from the above is that the sustained release tablets have a rate of seizures roughly what the general public do, while those who use immediate release have a rate 5-10x higher than normal. I was taking sustained release, and only at a quantity of 300mg. So I guess the risk shouldn’t have been too elevated. ---
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [March 28, 2016, 7:49pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/18 "2016-03-28T19:49:11Z")
All right, I’m just getting freaked out. I asked for a description of what happened at work on Monday from eyewitnesses… turns out, I had _ **two** _ seizures at work, one right after another. That means I had a total of three seizures on Monday. When I told the neuro in the ER that I’d had two in one day, she said that was unusual. What does it mean to have three??? [QUOTE=coworker] I saw you slumped in your chair shaking. Your entire body was shaking. Your arms were out wide and your legs were in straddle position while you sat slumped in your chair. I ran to you along with Coworker. I knew you had to be put on the ground, I was fearful you were going to fall out of your chair and hurt yourself. I ran to Boss and she called 911. The first seizure was over and you were passed out completely. At that time because you were not shaking anymore I tried to get my arms under yours so I could move you to the floor. All of a sudden you started to have a 2nd seizure. It was the same as the first. But you were drooling and made some soft noises. (I wiped your mouth) you were completely white and your lips were of no color, just white-grey. After the second seizure was over you were still slumped in your chair. I was scared to move you by myself so I asked a man that was in CEO’s office to help me get you on the floor. I wanted to put you on your side so you were comfortable. The guy helped me get you to the floor and you were still very white/grey with no color. [/QUOTE] I don’t remember a damned thing. No warning, not a sound, not a smell, not even feeling a little woozy. Reading that, I’m glad I don’t remember, it sounds horrifying to witness. I’m just scared. I don’t like this at all. I don’t know how to deal with it. I’m supposed to meet with HR and my boss tomorrow to discuss the new work plan/emergency protocol and I’m just overwhelmed by the whole thing. New meds scrambling my brain probably do not help. ---
**Author:** ![Wesley\_Clark](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/wesley_clark/32/20581_2.png) [@Wesley\_Clark](https://boards.straightdope.com/u/Wesley_Clark)\ **Post date:** [March 28, 2016, 9:41pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/19 "2016-03-28T21:41:56Z")
Here is a website about cluster seizures. > **[Epilepsy for Parents and Caregivers](https://www.epilepsy.com/parents-and-caregivers)** > > Many parents, family and caregivers have similar concerns regarding the care they give to people with epilepsy. These concerns can be difficult and confusing to address Let me ask you something, did you bite your tongue during any of your 4 seizures? Ask your coworkers and husband if you did. I’m obviously not a doctor, I’m just someone with a background in biology who likes medicine and knows how to use google. There is a condition called RAS (reflex anoxic seizures; reflex asystolic syncope). It normally occurs in kids but can happen to adults. [http://www.cafamily.org.uk/medical-information/conditions/r/reflex-anoxic-seizures/](http://www.cafamily.org.uk/medical-information/conditions/r/reflex-anoxic-seizures/) > **[Reflexic Anoxic Seizures. What are Seizures? Information page](https://patient.info/doctor/reflexic-anoxic-seizures)** > > Reflexic seizures. Synonyms: pallid syncopal attack, white breath-holding attacks Reflex anoxic seizures are paroxysmal, spontaneously-reversing brief episodes. Seizures information. > **[Reflex asystolic syncope](https://en.wikipedia.org/wiki/Reflex_asystolic_syncope)** > > Reflex asystolic syncope (RAS) is a form of syncope encountered mainly, but not exclusively, in young children. Reflex anoxic seizures are not epileptic seizures or epilepsy. This is usually a consequence of a reduction in cerebral perfusion by oxygenated blood. It can be a result of either a sudden reduction in the blood flow to the brain, a drop in the oxygen content of the blood supplying the brain, or a combination of the two. Syncope can have different meanings ranging from transient loss A ... Overstimulation of the vagus nerve can temporarily stop the heart (it sounds scary but it is supposedly not life threatening), causing a rapid loss of consciousness, pallor, seizures, etc. Has RAS been ruled out? ---
**Author:** ![Spice\_Weasel](https://sea3.discourse-cdn.com/straightdope/user_avatar/boards.straightdope.com/spice_weasel/32/5435_2.png) [@Spice\_Weasel](https://boards.straightdope.com/u/Spice_Weasel)\ **Post date:** [March 28, 2016, 10:10pm UTC](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029/20 "2016-03-28T22:10:19Z")
Interesting. I don’t know if I bit my tongue. I think I severely burned my tongue before this happened while I was drinking some tea. My tongue was numb and sore for days… still kinda is. But I do think it was a burn not a bite. I don’t think anything has been ruled out, other than a tumor or physical obstruction. I have yet to have a consultation with a neurologist outside of the one in the ER. [Next page](https://boards.straightdope.com/t/tell-me-about-your-epilepsy/750029.md?page=2)