My baby girl has Spinal Muscular Atrophy (SMA)

I’m not Bearflag70 but as the mother of a big-headed baby… yeah, it does. :::wince:::

BF70, let us know when you hear back about the assorted tests!

I’m glad that you made the right choice to check into some more with her doc- let us know how it goes.

fuck. fuck. fuck.

need lab test to confirm.

fuck.

:frowning:
We’re here for you, whatever small consolation that may be.

My wife is asleep but I can’t fall asleep yet.

Office diagnosis: Spinal Muscular Atrophy

Genetic disorder - degenerative, leading to increased complications over time

Life expectancy: Maybe 2 years.

This is just horrible beyond words. Our baby girl. :frowning:

Well I was going to make a So I Married An Axe Murderer joke but I’m not now.

Oh no - you poor people - you, your spouse, your daughter. That is just so unhappy making. I wish you all the strength possible.

Oh shit.

Damn, I am so, so sorry.

Oh no. My god I am so sorry. That is terribly unfair. My heart goes out to all three of you.

That’s awful & my thoughts are with you. However, in case you haven’t thought of it in the wake of bad news, make sure you get a second opinion from a specialist. In a quick Google search there seem to be several support groups. Take advantage of them - that’s why they’re there. They should be able to help with specialist referrals in your area.

Oh, Bearflag70, my heart goes out to you. I keep typing lame things then erasing them, this is too awful for words.

That’s just awful. I’m so sorry. My thoughts are with you, the baby and your wife.

Fuck, Bearflag70. There are just no words. And some kind of internet hug is just insulting. Thoughts are all I have for you.

You and your family are in my thoughts. I’m so sorry.

My heart goes out to you, your wife and you baby girl.

Oh my god. I’m so very, very sorry.

Oh no. I have no words. I am so, so, sorry.

I am so sorry. Words aren’t enough, but know that a stranger far away shed tears for all of you.

We are not strangers here, you have friends.

I’m going to go change the thread titile now to forestall any more jokes, even from those who are normally decent posters but who, out of carelessness, might drop in to post another joke without having read the entire thread.

I am so sorry to hear that.

:frowning:

Your poor family.