Cannabidiol (CBD) and epilepsy -- a good idea?

My daughter has been epileptic for twenty years. Her twin has started pushing her to try Cannabidiol oil, derived from cannabis but won’t make her high. So what’s the point, right? :wink: No, really, if it can help I’m all for it. She often falls when seizing and she’d love to be able to drive and get a part time job and I’d love to not worry about her all the time. But does it work? I know, ask her neurologist, but before I do I want to be sure he won’t laugh me out of the room.

While actual testing has been limited due to legal issues, there’s some actual evidence that points to possible benefit for some seizure disorders. The Epilepsy Foundation has a page that points to some of it along with possible side effects.

There’s enough actual research to at least, IMO, make it reasonable to discuss CBD as an experimental and unproven treatment. It’s not just some totally baseless woo that’s been repeatedly proven not to work.

I have a friend who uses cannabis to control his epilepsy. He has pretty good luck with it, but he had a couple seizures a few days ago, so it is not perfect. And I am fairly certain that he uses some THC-laden product as well, though I am not sure how regularly. He said that the prescription drugs for controlling epilepsy are not very pleasant for him, that the cannabis does a pretty good job of it with fewer bad side effects. Legality is not a concern here.

As always, HMMV

It doesn’t look like her Medicare Part B will cover it.

Something about the local distributor that sounds fishy is that the daughter (L) doing the research claims they give you a free lid, er, 28.35 grams of pharmaceutical-grade reefer when you sign up. Daughter in question (S) isn’t interested and ol’ Dad doesn’t need it. Wants it. Doesn’t need it.

ETA: And CBD doesn’t seem to work all that well.

DinoR has the right of it - it’s almost certainly not woo but the gubbmint has classified it so strictly that there’s been very little actual testing done. What works for one person won’t necessarily work for another.

If legality isn’t an issue or concern for you, there’s definitely no harm in bringing it up with the doc. If he laughs you out of the room, get a new doc. There’s not a lot of evidence, but there’s enough that it shouldn’t be dismissed out of hand.

Forgive me for skirting your question, but isn’t your daughter an adult who can make her own medical decisions?

Pot’s approved for epilepsy in Illinois. Her old neuro guy was useless so she has a new one.

Her early seizures were so bad they left a thumb-sized pool of water in her left temporal lobe. She is somewhat impaired, with cognition and memory issues, so we accompany her to her doctor visits so everything is covered and what the doctor says is understood and remembered.