Could you imagine being almost completely deaf for your whole life?

And not realizing it? And then one random day when your doctor gives you a nasal spray your “mild” eustachian tube dysfunction you can suddenly hear noises that you did not even know existed?

That you could, for the first time ever, instantly understand what people are saying to you without having to repeat what sounds like gibberish over and over again in your head trying to understand what is going on. No longer having to plan conversations out in advance because you know that you won’t be able to follow what the other person is trying to say.

To find out that there are actually words inbedded in those songs they play on the radio?

Or how about being able to talk and actually understand your own voice?

Or how about coming from a very musical family and always have this gut feeling that you were suppose to be a musician but despite hours upon hours upon years of practice ending up as good a pianist as your average five year old.

And then one day you just sit down at the piano and instantly play by ear with perfect timing like you have been playing your whole life.

That, in a nutshell, is what I have recently experienced. The hearing the past few days has come and gone. When it comes I instantly have all the abilities listed above and they can disappear just as quickly as they come. It’s so scary.

Of course I will be running not walking to the doctor Monday to undergo a myraid of hearing tests.

This has already changed my life so profoundly that it is incomprehensible. The weird thing is that I’ve always known that there was something really wrong with me and that I was somehow smarter that most people yet had some handicap that I prevented me for experiencing the world like others.

Never had a clue that my hearing was impaired though. In fact I thought I actually had GOOD hearing. I thought my hearing was hyperactive because sounds that I heard that didn’t bother other people would just drive me up the wall. But it was actually that I was only hearing some frequencies and hearing that without the rest of the sound just gave me a headache.
Pretty crazy huh?

That’s really interesting. I hope you find a doctor who can restore your hearing permanently. Good luck!

Wow! I predict you will be studied like crazy at some speech and hearing center in the very near future. Best of luck!

Wow, how come this wasn’t found when you were younger? I seem to remember getting several sight & hearing tests in elementary school. Didn’t you get those?

Well that is what I really don’t understand at all. I know I had to have passed those hearing tests.

When I was young (elementary school) I had to have speech therapy because I could not speak clearly.

It’s painfully obvious to me now why I needed that speech therapy. I simply don’t hear a lot of the noises that go into forming a word.

Like when I say me name, Doug, I think I only really hear part of the d sound and part of the g sound, but not so much the ou in the middle of doug. It’s more than enough to string it together, but it literally takes all my brain power to do it.

It might also explain why I at first mistook the increased hearing as actually being able to see better rather than hear better. I think I’m much more reliant on my eyes than most people. So when I started hearing the speech, all the visual cues I was used to paying attention to seemed clearer too – I think just because I was able to relax and my mind could work me freely.

I have an anxiety disorder so severe that it causes my blood pressure to rise over forty points. It’s unresponsive to all medication except powerful benzodiazepines that knock me out. When me hearing is restored my blood pressure also drops from about 150 to 120 and I get relief from the constant anxiety I’ve always dealt wiith.

I have been deaf a total of 3 times, and partially deaf (my right ear only gets about 10% of the noise) for years, off and on.

My ears do not work properly in draining fluid, and I get a cerumen impaction behind my eardrum. The problem has been corrected by tubes twice, but I have yet to find a perfect permanent solution.

And I experienced the same thing as you, MrPlatypus, not once but twice.

When I was 7 years old, my mom took me to doctors for testing. She noticed that she had to really holler for me for dinner, to come inside, etc. and wanted to know why. This culminated in an office visit where the doctor walked around his desk behind me and told my mother “he can’t hear anything I’m saying right now.” I had lost my hearing gradually and had taught myself to read lips. He estimated I had prolly been deaf since the age of 4 or 5. I had surgery to put the tubes in place and my hearing was restored.

In high school, my mom noticed the same thing: she had to really crank up the volume when she called me downstairs or from another room. Tests showed that I was not hearing anything, really, and so we went for another set of tubes. By this time the surgery was something that could be done in the doctor’s office in less than an hour. When I woke up, they told me everything seemed fine, and I confirmed that I could in fact hear people talking to me. We left the office, got in the car. I was still kind of groggy when my mom started the engine AND I SNAPPED AWAKE AND SCREAMED AT HER TO SHUT IT OFF SOMETHING IS WRONG WITH THE CAR,; IT’S GOING TO EXPLODE!!! Of course, nothing was wrong with the car. I simply hadn’t realized that a car engine was so loud. “But what about all those weird noises? Car engines don’t make all those weird noises!” My mom turned the car off and I told her I could still hear them. “What do they sound like?” I told her there was a kind of clicking noise and short, high pitched screeching. As I’m talking, I look out the car window and realize that what I’m hearing is, in fact, birds chirping. It had been so long since I had heard them I had no idea what it was. I also didn’t realize that the wind made noise as it blew tree branches around.

I have rarely been as panicked as I was that day. The next few weeks were amazing. Songs had melodies, people’s voices sounded very different than I thought, and I was constantly amazed at how quiet a sound could be and still be a sound.

The third time the problem persisted for more than 8 months, but I was able to correct it with an aggressive decongestant regimen coupled with the ubiquitous Medrol dose-pack.

Today, I still have trouble with my right ear. Most of the time I can’t hear anything there. When I can get the blockage to clear, it’s like waking up all over again. Despite this, I still have a love for music. I own thousands of albums and have written over 80 songs in the last 5 years. I’ve taught myself to play several instruments (none very well, admittedly) including guitar and saxophone. I love all my bodily functions, but hearing is at the top of the list.

One cool thing is that I can still read lips perfectly well. :smiley:

But I know exactly what you’re going through, MrPlatypus. Welcome! Enjoy!

WOW. Your experience in the car and being able to understand is EXACTALY like what I experience. Except I hear birds and high pitched noises. And that is all I hear. When my hearing comes it sounds like the whole world is rumbling. There are vibrations and low noises everywhere. Music sound so good. I can actually feel the beat. I can play the piano and dance because I can feel the beat that I never felt before. Whereas before I thought people were mumbling now there voices are crystal clear and it’s like there is a tube that connects their speech directly to my brain and I instantly comprehend what is being said.

Speech is prolly the best part of being able to hear. It’s a real turn off to women, co-workers, random people in stores when I have to ask them to repeat themselves 2 or 3 times so I can understand everything they said. I’m so busy “filling in the gaps” and using context to comprehend that I often can’t do it as fast as people talk. It sucks bad to be out on a date with a woman I think is potentially cool and watch her get frustrated with me, thinking I’m obtuse or not paying attention to her.

And music! I can’t say enough about how incredible it is to hear all the parts of the music clearly. If anyone want’s to know what it used to sound like for me do this:

Take a boombox into a room and turn it on at a good full volume, one that fills the room but isn’t crushingly loud. Now go into an adjoinging room and shut the door. Now go into the closet in that room and shut the door. Now put your ear to the wall and listen to the music.

That’s how it was (and still is for my right ear most of the time). It’s much nicer with all the doors open, even better to be in the same room as the music.

Again, congrats on your new ears. So glad you could join us, hope you can stay. :smiley:

This sounds so familiar to me, except that mine hasn’t been lifelong. I have serious problems with fluid drainage in my eustachian tubes, along with a nasty tinnitus. I have major problems following conversations if I’m more than about two feet away from the person, and it takes all of my concentration to keep up, which is incredibly frustrating and tiring. When I CAN clear my tubes, I’m fine for a couple of hours and then it shuts up again. I’ve had the drainage tubes FIVE TIMES and every time they help while they’re in but my hearing problems return after they come out.

None of this started until I was 24 years old, though I did have to have tubes once when I was a kid. I’m functionally close to 50% impaired in all normal interactions (though a phone with volume control is a godsend). I don’t hear most environmental noise at all except when I yawn (and the tubes clear for a few seconds at most). I was at a partially-outdoor party last night and never realized that crickets were chirping until I yawned. And what my hearing manages to catch, my tinnitus interferes with.

I’m working up to getting my doctor to refer me to an audiologist, but so far all I’ve gotten from him was a cleaning of the outer ear for wax. Kind of frustrating…

Incidentally, what was the “nasal spray” your doctor gave you?

Fascinating, MrPlatypus. Keep us updated!

The nasal spray was Astelin. It’s just an antihistamine spray.

I was already taking Flonase, Allegra and refused to stop taking the antibiotic Zithromax because I knew it made me feel so much better but I didn’t understand why. Actually what was making the biggest difference was saline sinus irrigations that was reducing the inflamation of my eaustachian tube.

I went from doctor to doctor telling them that for some reason when I take antibiotics and do these saline washes I feel so much better than I feel like a whole different person. They all ran a few tests said you’re fine and said talk to a psychiatrist.

Then I tried this nasal spray and a day latter it was just like WHAM. All off a sudden I could just hear. I finally understand why people act the way they day.

What is most interesting is that now that I have heard, even when I lose my hearing again (it is coming and going at present) I understand that I am deaf and that I am having trouble following conversations and that I need to ask people to repeat things. Before I thought that I heard things the way other poeple heard things and that I was retarded or something. But now I know what it is that makes me different than other people and the world actually makes sense to me.

Did you ever explain to the woman in question that you are hard of hearing?

I dated a guy that was in the same boat as you, but he explained that he was slightly impaired, and all I did was make sure that I was looking directly at him when I spoke, and made sure to tak clearly. Nothing like that insulting slow are ya dumk drawl, but a smidge slower than normal [the way I spoke when tutoring in a foreign language, making sure to enunciate clearly and not add or drop syllables or letters=)]

I myself have a fairly solid hearing loss in midrange from working in a machine shop and having a fair amount of ear infections when young [at 12 years old I lost about 20% of the hearing in my right ear permanently, and i go through periods when eustacheon tube congestion dampens down my hearing.] On the plus side, because I work so hard at listening, I am very adept at hearing upper and lower range, enough to have been a guinea pig for the audio lab on the Navy base in New London for the sonar tech reserchers=) I loved getting paid to listen for noise embedded in white and pink noise=) air conditioning in a seriously hot summersigh

Yes, of course I explain. Some women are okay with it and make some effort to accomodate me, others just continue to be turned off by it. The same holds true for people in general.

And even tho I mention it when necessary, I hate having to do so on a first or second date. I’m not after her sympathy, I just want to spend a pleasant evening with her. If she’s cool and thinks I am, in the long run it doesn’t matter.

With either a date or a co-worker or just someone out in public, tho, seeing that look of oh-my-Og-what’s-wrong-with-this-guy-is-he-stupid-or-what just sucks.

You’ll find stories like these in the Deaf community a lot. I had one sign language teacher who was not diagnosed until he was 9 years old - and he was profoundly deaf. He had had no clue that ears did anything, and just thought that everyone in the world was a better lip-reader than him.

It is almost one year exactly that I lost 55% of my hearing in my right ear for no explicable reason. The whole enchilada here

At home and in quieter places, I barely notice the loss, but in crowds and noisy environs I really do. I am just now starting to motivate towards a hearing aid and am hesitant only because I wonder how it will deal with the 24/7 tinnitus that I hate more than the hearing loss.

Keep us up to date!

Our 10yo son is hard of hearing.

When he was about four months old, the pediatrician suggested that we have his hearing tested, based on the fact that he did not respond to environmental noise very well. Up to that point, we had chalked his problems up to several environmental issues, including the fact that he had a very noisy older sister (so he had learned to ignore noises that didn’t involve him), and the fact that he was growing up in a multi-lingual setting. (I was teaching French in a French and Italian university department, so when he came to work with me, he was more likely to hear French or Italian than English. His babysitter was the wife of a fellow grad student who was French and spoke very little English, so he heard much more French than English most days. At home, we pretty much spoke only English) The fact that he was being exposed to so many different languages seemed like a logical reason for him not to understand any of them very well.

I took him to his first hearing test convinced that he could hear normally, and the test was just to prove the doctor wrong. He completely failed the hearing test in the sound booth, so they scheduled him for an ABR at a children’s hospital about an hour away. He also completely failed that one, which showed no hearing at all in one ear, and severe loss in the other.

We had ear tubes put in, and that improved his hearing to the point that hearing aids would be effective. He got his first hearing aid when he was about a year old, but it took another year or so to get a complete pair for him to use.

In going through this odyssey with my son, I discovered that it is not unusual for parents and other adults to believe that if a child can hear at all that the child can also hear perfectly, which is far from being the case. The most common home hearing test I heard when we first started this trek was to call to the child through a closed door. If the child heard you, apparently his hearing was “fine” and there was nothing to worry about.

For these reasons, it is not uncommon to hear about people who have grown up with significant hearing loss without anyone (including the affected individual) knowing that there is a problem. Children are remarkably resilient in learning language, and they will learn to rely on lip reading, facial expression, hand gestures, etc. to understand the adults around them, even if they can’t quite hear all the sounds the speaker is using. Other sounds, like birds chirping or thunder, really don’t affect them at all, so they may simply go for years without being aware that they are supposed to hear those sounds. This is why hearing problems were often not diagnosed until well into elementary school, if not later.

Even minor hearing loss can make it difficult for a child to learn to speak correctly, since there are so many nearly inaudible sounds in any given human language, and many of those sounds are also invisible to someone who relies on mouth movements to understand the speaker. (/t/ and /s/ are virtually silent sounds, although they can normally be seen. Glottal stops and /k/, though, are not only silent, but invisible.)

Our son relies on hearing aids to get anything close to “normal” hearing, but he still has significant language problems. We actually had to teach him where to use /s/ and “ed” at the ends of words, since these sounds tend to be swallowed at the end of the word in American English, and he never heard them. His speech is rather garbled, too, despite years of speech therapy. We are in the habit of looking at him when we talk to him, and enunciating words very clearly and carefully, but it often takes teachers weeks to get used to the idea that not only will he not hear them all the time, but he will often be completely clueless that there was something he was supposed to hear that he missed because he (or the teacher) was looking in the wrong direction at the time.

We do not know why he has hearing problems, and we have pretty much given up trying. We did start seeing a new ENT who felt that the problems could be corrected surgically. One of our son’s eardrums was little more than lace after his most recent tube came out, so he needed eardrum replacement surgery anyway. While the surgeon was fixing the eardrum, he also looked at the middle ear to see if there were obvious problems, but found nothing correctable.

In the US today, it is common practice to screen newborns for hearing problems before they even leave the hospital, making stories like these much less common than they have been in the past. Our son was born only six months before the hospital he was born in started screening infants, in fact.

Yeah. Speaking for me was a kind of matching game. It’s like I was listening for keywords out of all the gibberish and I knew when I heard the keyword that I had a preprogrammed response I could say in response to that keyword. Once I knew the response it was just a waiting game for them to finish so that I could say my little preprogrammed part, see how they react, and then repeat.

So instead of making an effort into having a thoughtful conversation and trying to understand every bit, all my energy went into trying to make them think that I understood them even though I didn’t. Conversation was more like acting to me.

Now when I am losing my hearing (it’s gone again) I tell people to slow down and repeat what they said. And then have them repeat it again and to wait a second before continuing. They don’t really understand but at least I do for a change.

Also I think I studdied people a lot. Like if I look at someone, I can tell you so much about them just be the expression on their face. Instead of listening to their words I was watching their facial expressions and seeing how they reacted to my words.

It always mystified me how people had to ask others how they feel to understand how someone feels. You can tell what someone is feeling by their facial expression really well. Yet most people didn’t seem to be able to do this nearly as well as me and I could never understand why.

re: your last two posts…

yeah, that’s what I meant by “filling in the gaps”.

Facial expression, posture, hand gestures… is a person’s gaze steady or are their eyes roving? Which way are they facing (at me or slightly away or all the way away?)? I can tell a lot (and a lot more than most people think) just from what I see. I guess it’s one of those over-developed-as-compensation things. Like I said, twice I was without hearing and no one (not even me) realized it.

I been thinking a lot about this since reading your OP, and I figure that maybe after I get my knee fixed I’ll see about getting a bionic ear or sumthin’. :smiley:

OTOH, when it’s too noisy to sleep (I frequently work late or overnight), I would miss the option of sleeping “bad ear up”. :smack: