Dedicated to a Brother: The Last Time Around

I’m very sorry to hear about this turn of events. :frowning: Your brother sounds like an amazing young man and I hope you are able to make some good memories during however much time he has left. I wish all of you peace in dealing with this sad news.

I am so sorry to hear this news Marley. I have been following this story since the beginning, and this is just devastating to read. My thoughts are with you and your family. You sound like a wonderful brother to have, and he is lucky to have you.

I saw the title of this thread and said, out loud, “Oh, GOD, NO,” even before I moused over. I am so very very sorry to hear this. I, like many in this thread, have been following your updates regarding your brave brother and courageous family, and this hit me like a punch in the gut.

My deepest thoughts are with you and your brother and your family during this time.

I read the thread title and all I could do was say “No, no, no. It’s not time yet!” I really wish this thread didn’t have to exist. :frowning:

(((((Marley, bro and parents)))))

Oh fuck.

Marley I’m so so sorry. I can’t imagine what you guys are going through right now. :frowning:

I’m sorry, **Marley[/b. I’ll keep you and your brother in my prayers.

Oh, dear. I don’t really have any words (what words are there for something like this?). I have read about you and your brother for months now as you have travelled this unwelcome road, and I thought that perhaps things had turned for the better.

I admire both of you for your courage and honesty in facing this horror. I can’t do much, but please know you have my heartfelt sympathies. I wish your brother peace and godspeed, and for you and your parents some form of solace in the coming days. I wish that didn’t sound so useless. I am so sorry, and am thinking of you and yours.

I was wondering about him just the other day and I’m really very sad to read this news. No one should lose their life or their sibling at such a young age.

He’s fought a long time and his spirit seems to have been strong, I’m sorry his body just couldn’t match it. I hope for peace and comfort for him, for you, and for your family.

Very sorry.

“FUCK” seems like a good place to start. After that I got nothing.

We had a quiet, fairly normal night at our place tonight - we’re both a little on edge but it’s not too bad and we had a healthy dinner. I can see I’ll need to focus on that. Crisis counselors and therapists use terms like “the new normal” in talking about situations like this but I find that language buzzwordy and annoying. Regardless I’ll need to find some peace when I can. I’ll be visiting my family again tomorrow night and Saturday. Like I said, my uncle will be in town for about 48 hours and it’ll be good to see him. Maybe we’ll play some music. Sunday I think I’m going to get another tattoo. In one of my other threads I think I mentioned that a friend of my dad’s made up a bunch of Chordoma Foundation bracelets, the same kind of rubber as a LiveStrong bracelet but dark blue. My dad wears five of them at all times. I wear one sometimes but I’ve decided I’m going to get it tattooed onto my arm instead of having to remember to put it on and trying to get it to stay put. I may go back again Monday since it’s Labor Day. I’ve also applied for caregiving leave from work. My own days off would probably take care of it but I’ve been advised that this would be a good idea.

There’s nothing much I can say except to give you my condolences. :frowning:

I’m sorry, Marley.

I’m sorry to hear this. I ain’t the praying type, but I’ll try to send some good vibes your way.

I’m so sorry to hear that such a terrible thing is happening to such a good kid. I haven’t said much, but I’ve followed all your threads about him, and he seems like such a nice kid who has bravely faced more than most of us. Your family is in my thoughts.

Fuck is exactly the word that flew through my mind when I read the OP. I’m so sorry Marley.

{{{Marley and family}}}

I have followed th threads for years without joining in. I am sorry for you and your family Marley.

My deepest condolences for you, your brother, and your family. I have been following your reports of your brother’s condition for a while, never really speaking up, but aware of them, and hoping for your brother to get the break he deserved. That he’s not been given that is a insult to everything I want to think of for an 18 yo. That your brother can find the grace and courage you’ve reported in your posts is amazing, and impressive.

Make his time, and yours with him, count.

Dammit, I’m so sorry.

Oh, and fuck chordoma.

Marley I’m so sorry for this. Your brother, family and you are in my thoughts and prayers.

In the end that’s pretty much what it comes down to :(. I’ll add another hearty FUCK for you and your family. I hope for peace for all of you, but don’t sweat it if it takes some rage at the world first to get there.