I saw a documentary on Conjoined Twins.
The first set Lori and George (Dori/Reba) Schappell were featured and they were shown to have no oppositon to being studied. They allowed doctors to make detailed images of the brain (they share one) and other tests.
On the flip side Abby and Brittany refused to have any tests performed on them beyond what is absoluely medically needed. Their mother also had this attitude since their birth.
I got to thinking just what are the obligations of people with a unique medical condition to allow themselves to be tested for the good of society.
I got to thinking what if a guy has HIV and doesn’t take meds and never gets sick. There is such a guy (he’s had it since before 1980) and has never taken any meds and is healthy. But he allows tests to be peformed on him
Abby and Brittany are fascinating to me because the way their body is able to work. No one can explain how two brains (each twin controls half the body) can co-ordinate so well. (this is due to lack of test)
I was thinking about all the good testing could do for stroke victims or other brain injuries if we could figure out better how the brain works.
Now I’d like to say, I totally understand, legally there is NO obligation to get tested. Nor would I agree that there should be a law as such.
I also understand why people would not want to be tested. Everyone wants to, and is entitled to, live a normal average life.
But I also understand the flip side, if you have a unique condition, whether it’s medical or the ability to paint or sing or whatever, I think if you don’t use those gifts or allow your uniqueness to be studied, society as a whole loses.
And I think that in addition to ourselves we have a obligation to our society to better it, not just live or exist in it.
So what do you all think.
Again I want to rule out a legal obligation, because I never would agree to forcing anyone to have tests or to be studied against their will.
I’m talking about a moral or ethical or societal obligation (such as we have a societal oblication to drive to the "rules of the road’ to prevent choas on the streets)
I would also think that anyone studied, should have the right to decide the course of that study.