Anyone here have any experience with nerve palsies? A month ago, I got a splitting pain in my ear and Bell’s Palsy happened. This is a condition of the seventh facial nerve where it basically dies and half your face is paralyzed. Initially I didn’t worry about it as the prognosis is good, but a month later and I’m still Grade VI on the House-Brackman scale (total paralysis). I got tingling in my arm on the same side, and today my leg started feeling like it was asleep. “Leg falling asleep” means palsy. At least I can still clench the muscle, which means it’s a feeling nerve instead of a control nerve. I can still feel my face just fine, but the motor controls are gone.
This is very atypical for Bell’s Palsy. Usually it gets you and disappears a few weeks later. It’s been a month already. Now, it appears to be spreading…something that Bell’s Palsy doesn’t do. Any ideas or advice?
Yes, and you who are ready to post the most unhelpful comment in the world, “you need to stop asking questions on the internet and see a doctor immediately,” I just saw my sixth doctor today. The fifth doctor was a neurologist. The main problem is that nobody sees it as a problem. “Oh, it’s Bell’s Palsy,” the doctor says, immediately turning off her brain. “Here’s the standard treatment, now go away.” I’ve explained my thoughts and no doctor wants to listen. The neurologist kept interrupting me, for Pete’s sake. I’m concerned it’s an underlying condition that is manifesting as Bell’s Palsy.
Here’s what’s been done so far:
[li]Steroids for the first 7 days, 24mg/16mg/8mg (thank you very much Chinese doctor for totally underdosing me).[/li][li]Vitamin B12 plus ginkgo balboa from the Chinese doctor.[/li][li]Steroids for the next 7 days from an American doctor, 60mg for 3 days followed by decreasing dose. My face was still swelled up and the steroids seemed to help.[/li][li]Antiviral for the same 7 days as second dose of steroids.[/li][li]B12 + D vitamins + fish oil after the first two weeks. That’s all the neurologist gave me. Taking them daily.[/li][li]Today I went for my first acupuncture treatment now that I’m back in China. I’ve heard it helps, though I still regard it as witch-doctoring.[/li][/ul]
Any ideas? I’m stumped. I’ve been searching for days and nobody seems to have the same symptoms as me. It’s just endless stories about how it cleared up quick. I had a bunch of tests done and got a stack of meaningless numbers for my trouble. Anything can help…this board seems much more intelligent than any other I’ve seen online. I realize “ask the internet for help” is an idea doctors scoff at, but I’m at the end of my rope. I’ve searched for Bell’s Palsy here and read everything that came up. Thanks to anyone who replies.