A few weeks ago a nervous co-worker of mine was trying to make conversation and asked, “What do you think about the Human Genome Project, now that it’s done? Are you worried?”
So I said, “Not really. I think it’s a wonderful thing in the long term. I might even receive some direct benefits from the research when I’m seventy years old.”
“Really?” she asked. “Aren’t you worried about how your genome can be stored in a computer somewhere, and insurance companies can access it?”
“Well,” I said, “in the short term, there might be some legal issues to work out, and that might slow down research and make it hard for people like me to get genetic therapy, but I’m guessing my children will definitely be better off. I mean, I know the press is trying to make a big deal out of this and scare people, but when it comes to scientific matters, you have to be skeptical of what the media tells you…”
I was about to explain “…because they tend to get things wrong,” when she interrupted and said, “Oh, yeah. Because of the mind control techniques they use.”
It was more or less at that point that I realized my co-worker was a complete loonie.
But I sometimes wonder if I’m the only one who really thinks that genetic medicine is a good thing. I’d like to know my risk factors for certain diseases. It will help me to customize my lifestyle, especially as I get older, to keep myself healthy. Maybe I won’t live to be a hundred years old, but I tend to think I may come close. I would like my children to benefit from genetic screenings, so that certain common genetic defects could be corrected. I think the positive side greatly outweighs the negative side of a world where the statistical chance of a child being born with genetic disorders is greatly reduced.
I honestly don’t fear the sorts of things the media is trying to suggest will happen with the advent of the Human Genome Project. I know our legislative system isn’t perfect, but I certainly have enough trust in it to think they will put legal barriers in the path of medical insurance companies or corporations who try to discriminate on the basis of genetics or genetic risk factors. All the lobbyists in the world couldn’t stop such legislation from being passed eventually. I’ve seen Gattaca, and I liked it, but I don’t think it’s a particularly prescient movie, merely a relevant one. Nor am I particularly concerned about genetic experimentation on humans gone awry. I have enough trust in geneticists, doctors and lawmakers that any genetic procedure must be proven safe beyond any shadow of a doubt before it can be applied to human patients.
Am I the only one? It’s not as if I think the world will change overnight because of genetic medicine. In ten years, for example, I still think the immediate benefits will be minimal. But in thirty, forty or fifty years, as geneticists learn to decode the genome and identify disorders, I honestly see a wonderful change in medicine and a great leap forward in the human state of health.