How can I help my sister get post-weight-loss skin removal surgery?

Over the past couple years, my sister, through diet and exercise alone, has lost more than 160 pounds. She recently lost another couple hundred pounds, as her divorce was just finalized. :wink: That leaves her as a single mom (kids are 20 and 22 and only one still lives with her) working a couple jobs to make ends meet. Her employer just changed medical insurance carriers and the new plan excludes skin removal surgery under any circumstances. (The previous plan would pay if she had several years of medical issues documented as a result of the excess skin folds. She was about 3/4 of the way to approval when her employer changed insurance plans.) She has filed an appeal, but doesn’t expect that to go anywhere really.

The excess skin causes rashes and is often raw and sore. It really hinders her mobility and of course, looks terrible. She’s only 45 but cannot see how she could possibly find another partner when she A) feels so terrible about her body she doesn’t want anyone to see her naked, ever, and B) who wants to be with a woman who has 40-50 pounds of loose, sagging skin hanging off of her, all over? (I wouldn’t blame any guy for that being a terrible turnoff and even if there was a great single man who could get past that, I don’t think she could.) Her doctor just cleared her as having stabilized her weight sufficiently and as having lost enough that she’s approved as a candidate for about three surgeries, which will amount to a full-body lift by the time it’s all said and done. She’s barely scraping by as it is, with her two jobs (and her at-home son works and pays his own bills as well), so she cannot afford to apply for Care Credit and make payments. She doesn’t have a car payment nor does she waste money on nonsense (e.g., she’s not out getting her nails done every Friday while sipping on $8 coffees).

So we’re tying to come up with fundraising ideas to help her come up with the money. I think she’ll need somewhere in the neighborhood of $50-60K. If this were you, how would you go about it?

Note: We’ve looked into much less expensive surgeries in Brazil and my major reservation about that is the 9-hour flight home with a body full of drains and stitches. I’d so much rather she get the surgery closer to home and she lives in a city where there is an obesity specialty clinic that does these types of surgery. Doctors who specialize in this sort of thing are right down the road from her, but the cost is simply totally out of reach.

One idea I had was to approach her gym about sponsoring and hosting a “thon” of some sort. She and her gym buddies go collect pledges and then will do a Zumba-thon, or a treadmill-thon or something-thon to get donations (Say, $0.05 per mile wearing a pedometer for 30 days or $1.00 per mile for two hours on a treadmill or whatever.)

We’ve found a couple of personal fundraiser websites, like this one, where you post your story, promote it on your social networking site pages, and people can donate.

Opinions? Fundraising ideas? Thoughts on medical tourism? How can I help my sister feel as beautiful on the outside as she is on the inside? How can I help her finish her journey from obesity to rockin’ healthy body?

That’s rough for her. I was going to suggest a crowdfunding site like the one you linked to. What if she had a series of photographs documenting her journey? (I can see that she might not want to, though.)

What you and she have is an amazing story. (Lost 140 pounds? Wow!) It needs to be written up as something between a screenplay and a blog, so that fans can follow her progress, feel her struggle, and cheer her successes. Start with your OP. If they’re emotionally swept up, they’re more likely to donate, or buy the book of your sister’s story, or whatever.

You have probably checked this possibility out. Contact the local burn center or teaching university. They might be interested in “harvesting” skin for burn victims. The need is ongoing for burns and other skin grafting. She could certainly be willing to travel even to another state for the opportunity.

Note: Such harvested skin is only used as a temporary bridge for burn victims who ultimately need to grow their own skin. The transplanted skin only lasts a short time so this procedure is very inefficient and expensive. The need is not great, but you could get on a list and get lucky.

God for her! Keep talking in various forums, set up a PayPal account for donations. I don’t have much extra, but it sounds like a worth cause. I’d throw a few dollars her way for that.

Great ideas!

I wonder if it’s illegal to sell body parts. I thought I heard somewhere that it is. That’s worth checking on at least.

The blog idea is great and already underway. I will most likely be donating my time and talents as an editor and desktop publisher. She’ll provide photos and basic text and I can edit and set up a web site for her, link it to a pay pal account, etc. I have a little experience with that; enough to get done what she needs.

Something I’ve thought of: Let’s say this is a success and my sister collects $50K in donations. She’ll have to pay federal income tax on that, right? Unless we establish a “foundation” or something as a 501(3)©? Can you establish a nonprofit org just for the purpose of collecting donations for surgery?

I’ll be over here Googling if anyone thinks of anything else! Keep the suggestions coming!

Also: I would have to get Board Admin permission to post a link here to a donation site, right?

Selling skin or donating skin in return for surgery subsidy: no go. Some quick Googling revealed it doesn’t work that way.

I’d look into Mexico and Costa Rica for medical tourism. Here’s a comparative chart.

Given that “the excess skin causes rashes and is often raw and sore”, has she tried fighting her insurance company at all? It seems that given that it’s a true medical issue and not simply cosmetic, she might have a case. I’m not saying she would for sure, but it might be worth looking into. Or contacting a specialist and enlisting their help; often doctors who perform these kinds of things will know how to code an issue so that the insurance companies will pay for it.

Where did you get that idea? The usual procedure is that she recuperates for a week or so afterwards in a hotel nearby and only returns when travel is possible. I’d go the medical tourism route.

How does she rate on the Pittsburg scale of loose skin? (Warning: page has NSFW medical pictures of nude women if you scroll down) Usually a three rates as a deformity that insurance has to pay for.

Can she write to Ophrah? She has quietly done a lot of philantropic work.

Check out the chapters on post surgery skin removal surgery in this book: Weight loss surgery for dummies. Lots of tips on, among other things, dealing with insurance companies.

One more thing: please be careful when you compare the “willpower way” your sister lost the weight with the “easy way out” of people who had bariatric surgery. It may play to the crowds, but it may also piss a lot of people off.

Can she write a letter to a teaching hospital?

I’d still go the medical tourism route. A tummy tuck can be had for about 6000 USD.

How “just finalized” was her divorce? It may be that she can go onto COBRA for her ex-husband’s insurance plan because her plan through work is inferior. She might also be able to talk to her employer about switching back to the other insurance next year when the option becomes available or to find a plan that covers her specific medical needs instead of the one they have currently.

Maybe you can contact your local news in addition to the fundraising website? It seems like almost every week ours has a story on a fundraiser for someone’s medical treatment.

What she did is very admirable, and going to the news would put it out there for people who would like to make donations, do a Zumba-thon for a $10 entry fee, stuff like that.

From some medical tourism websites I visited. Typically, she’d stay in Brazil (wherever) for a week or two post-op, and then they send her home. For some body lifts, you could still have a drain or two left in for 3-4 weeks, depending on how things are going. I know how I felt for a month after a very minor outpatient surgery and she’s had minor surgeries before as well. I can’t imagine a half-body lift and sitting on the plane for nine hours from Brazil to Miami – even a couple weeks later. Sounds like really painful to me. She would still probably have two more flights after Miami just to get home, but both short 2-hour flights. It’s hard to travel post-op.

On the Pittsburg scale, I really don’t know where she is because I’m not allowed to see her nekkid. Based on how she looks in her clothes, I’d guess she’s at least a 2 of not a 3 pretty much everywhere.

Despite that, her insurance clearly and explicitly states that they do not pay for excess skin removal surgery for any reason under any circumstances. An appeal letter has already been sent and a letter to HR asking them to reconsider. In the U.S., the employer determines the formulary – the list of stuff that will be covered given whatever premiums the employer is willing to pay (and/or pass on to the employee) – so an appeal to the insurance company is slightly more pointless than the appeal to her employer.

We plan to do that, and write to others as well.

I think it was finalized in November-ish. But I believe the COBRA option was specifically declined as part of the DIY divorce agreement. She is trying to the “talk to her own employer” route.

She has a specialist but her policy specifically excludes even medically necessary cosmetic surgery.

Might be worth it to change job and insurance company. See pointers in THE book i linked to.

Easier said than done in the US these days. Jobs aren’t exactly thick on the ground, chances are she’d have to take a pay cut, not to mention losing other benefits like vacation time and sick days. Most companies have a probationary period (it was 90 days where I work now) before you can start their insurance.

On top of that, since she’s not feeling at her best, interviews would be rough since it’s hard to project a “can do” attitude when you’re unhappy with your appearance.

I guess what I’m wondering is if they don’t bill it as cosmetic surgery, but as something purely medical.