This is not for me, but for my boss. I am not seeking medical advice, that is what the hemophilia doctor is for. This is more lifestyle advice, what is it like living with hemophilia. My boss’s daughter just had a son, and they discovered after circumcision that he has hemophilia. After he was transferred to a children’s hospital, and more tests were done, it was determined that he has severe Hemophilia type A.
My boss and her daughter are understandably a little freaked out, and while they are trying to stay calm and rational, could use some stories from people who have been there. So please, if you have hemophilia or know someone who does, what was their life like?