This is about using more specific terms to describe a condition. I know when my son, Billy started having seizures when he was three (he’s 15 now). I asked ‘is this epilepsy’? The doctor hastily said that it wasn’t it’s ‘seizure disorder’. I then wanted further clarification and we ended up with, yeah, it IS epilepsy, but we don’t like calling it that. My mother in law acted as though Billy had leprosy, she didn’t want to hug, or touch him in anyway, while staying close to my older son, DJ. It hurt Billy terribly, because he didn’t understand what predjudice and fear even was yet. Which is what this comes back to in the final analysis. Billy’s brain misfires for some unknown reason, medication works, but the dosage has to be reworked ALOT.
I think of bipolar much the same way, except it has the additional stigma of ‘mental illness’ behind it. While Billy has suffered predjudice because of the condition, he hasn’t been slapped around and told to ‘pull himself out of it’.
The brain is a fantastically wonderful thing, but it is also mysterious. There is no history in either of our families, though in the ‘good old days’ they wouldn’t have admitted it anyway! But, Billy is still a person of multiple talents, he isn’t the EPILEPSY, he just has it. Most all of these conditions are treatable, it’s the ‘attitude’ that comes along with it that can be more of a obstacle to overcome than the condition itself. And I don’t mean the attitude of the person, I mean the rest of us. I didn’t care about calling Billy’s condition epilepsy…I finally had a NAME to go with what was happening to my beloved little boy. There is some comfort in just knowing what the IT is. And remembering, you’re not the IT, the job then becomes convincing others, and diminishing the fears these names evoke.
I liken it to, Billy knows what he has, what he has to take for the seizures not to happen, and how straightforward I am about talking with him, he also has experienced ignorance, a condition NOT known to have a treatment to go along with it.
Judy
“Consider it a challenge…”