I am wondering how many mono sufferers have had a similar experience to mine. I first got sick in July of 2012 and recovered uneventfully in less than three weeks. I was completely fine for a full year and thought that I was out of the woods. Then in July of 2013 I had the EXACT same symptoms come back. Enlarged spleen, swollen lymph nodes, fatigue, aches, brain fog, headaches etc. However, it was with a negative monospot. For this reason, my doctors figured it could not be related to my mono. It’s like I had all the symptoms, but the test would not cooperate. I was tested for everything under the sun by the doctors at my University’s student wellness center: (Thyroid, EKG, blood sugar, West Nile, ANA, HIV) All have come back negative.
I had finally come home in September after school was just wearing me out and I needed time to recover when my GP recognized it immediately as a “Chronic Fatigue post state” and said it would be 1-2 years before I was completely back to normal. I’m not sure where he got that timetable from. 9 months into it I feel the worst of it is over but the one symptom that has not gone away is the tiredness. I will be heading back to school in June and know I can handle classes, just not any rigorous activity without being wiped out the next day. Even though I am much improved, it’s just concerning me that this could last so long. Has anyone else gone through this?