MS (Multiple Sclerosis) Support Group?

Miscellaneous and Personal Stuff I Must Share
1

It seems we have several members here who are living with MS, in the early stages with demyelinating disease, or caring for loved ones who have MS.

I was diagnosed with MS in May of this year, having had no prior testing or known symptoms along those lines. They were just like ‘yup! no doubt about it!’ and my world got flipped turned upside-down.

I know there are others who are recently diagnosed, and some that have been living with their diagnosis for years, so maybe you guys would like to get together in a single thread and discuss treatments, medications, etc. Would also love to have a smart and savvy group of people just to vent to who can relate to what I’m dealing with - and I am probably not alone there!

I know there are dedicated message boards and support groups out there, but have you (tried to) read those things? I’m also homebound and rather antisocial, so talking to you guys would be just swell.

All SDMB members are more than welcome to ask questions and come to learn more about this chronic illness that affects so many people, and we could use your support as well!

*Posted with Moderator blessings! We’ll keep it from getting crazy out of control!

2

I was just diagnosed with it yesterday. I’ll get back to you after I see the specialist.

3

Definitely! Hopefully some others will chime in here, and we can make ourselves a little repository of knowledge and shared experiences.

4

Uzi has a fascinating threadabout his wife and the Liberation treatment (CCVSI).

My wife was diagnosed about 8 years ago. She is doing okay, but think that she has recently been going through a flare-up. She started on Rebif but found it painful to inject and stopped taking it. I don’t know if she is ready to try starting up again. Recently her neuropathic pain and fatigue has been getting the best of her.