My Cancer Gone By

A Cancer In Four Movies

All That Jazz: On June 11, 2021, I was in serious trouble. I’d had worsening swelling of lower extremities, shortness of breath, persistent stuffy nose with occasional severe mucus production, and inability to exercise, all of which I’d put down to allergies, lack of exercise, and weight gain due to COVID quarantine. Never mind my reduce appetite and the fact I was getting worse at walking around my apartment, not better. I was in denial, in terror of getting COVID on top of my shortness of breath, and in the Providence St Patrick Hospital emergency room, where I was diagnosed with lymphoma, ultimately determined to be primary mediastinal B-cell lymphoma. I honestly didn’t feel terror, or horror, or grief. What I felt was a need to research the disease (quote of the evening: “Is intense research one of the stages of grief?”) and I had intrusive imaginings of Angelique, the Angel of Death, smiling down at me from various vantage points in the ER bay. I had a diagnosis, I wasn’t hiding from my illness, and I could hum Bye, Bye, Love while my oncologist decided on my treatment.

The Americanization Of Emily: A few days later, I was admitted to the hospital and in a room in Five North, the cancer ward. Since chemotherapy is delivered through a vein, and since the doctors need to draw blood and push other drugs, I was going to get a PICC, or a peripherally-inserted central catheter, or a plastic tube inserted into a vein in my left arm and threaded into a major blood vessel near my heart by a doctor watching it all live on X-ray while I lay on a cold table in a cold room thinking that if something goes wrong, they’ll very likely have the rest of my life to figure it out. James Garner was on TCM, trying desperately to avoid the guns but having to face them for lack of a better option.

The Night Of The Iguana: A week or so after that, and I feel bad. My heartrate is high, my breathing is quick and shallow, and every room I’m in feels too hot regardless of the AC setting. The film on TCM has Richard Burton sweating it out in a fever-dream of a dead-end Mexican town, regretting bad choices and feeling trapped. It’s a hot June in Missoula and I’ll have a lot to sweat out.

Lunatics: A Love Story: TCM plays some odd movies early Saturday mornings. Which is perfect if you’re up, getting death pumped into you to save your life, listening to the sounds of a hospital at night. St Pat’s plays a nice little music box lullaby (“Hush, Little Baby”) whenever someone is born within its walls, and it also announces the need for a trauma team to assemble on the same all-hospital PA system. Hearing the lullaby and the trauma team announcement back to back is enough to put one in a reflective frame of mind, especially if it’s fuck-off thirty and your IV pump has alerted due to some illusory air in the line. (They’re pumping stuff derived from chemical warfare agents into me. The bubble you thought your little electronic eye saw isn’t the hazard, here.) Anyway, the movie’s about a crazy guy who gets the courage to leave his apartment to save the woman he loves, which isn’t much of a plot for a film with so little connection to reality. It’s the realest unreal film for the realest unreal place.

To save everyone the suspense, I’ve been in complete remission for over a year. My oncologist (well, one of them) says my cancer probably isn’t coming back. I will, though, to add more stories.

Please do! I’m glad you’re in remission.

Yes, yes, and YES!!! :100::heart: :kiss:

Wonderful news!

Even better news. Hopefully, some small lifestyle changes will add many quality years to your life.

Some things about cancer and its treatment are just stupid.

For example: Chemotherapy destroys your cells. That’s what it does. You take drugs which preferentially kill off the fastest-growing cells, ideally targeted at the kinds of cells your cancer is made of, and you deal with the consequences of that. One consequence, which I learned after my first round of my first line chemotherapy, is neutropenic fever, or a sick, feverish condition brought on by a lack of cells. One symptom of neutropenic fever is a lack of appetite.

Now, think about this for a second: Your body just lost a load of cells. In any intelligent world, if our body wasn’t a hacked-together rush job, that would stimulate the appetite, because your body needs to build cells. But no! It was all I could do to eat three little packets of yogurt a day for a while.

With one exception: I was on a diet where I got a little protein-powder-infused milkshake a day, purely to help keep my cell counts up. One of those days, in the depths of my neutropenic fever, I got a chocolate milkshake which was so cold it was almost solid. It was the tastiest thing I’ve ever had. It was like my appetite pulled a Wizard Of Oz and came back in full Technicolor for that one shake before actually returning. It was sublime.

Happily, I didn’t get neutropenic fever after any other round of chemotherapy. The first round is, typically, the worst, deliberately, as the oncologist dials in the dosage, and Neupogen helped with the rest.

Neupogen is great. It’s a colony-stimulating factor, which means it stimulates cell growth, which means a few shots of that in your stomach just under the skin keep the cell counts up. (Or just one shot of Neulasta, its sibling drug with polyethylene glycol added to it to make it last longer in the blood stream. Really. Polyethylene glycol. The stuff used in Miralax and sex lube. Not joking.) The problem with Neupogen is bone pain: It can literally cause your bone marrow to swell, which isn’t, since your marrow is kinda encased in hard tissue and doesn’t have anywhere to go. I never suffered from that, though, because I took the miracle cure: Claritin. Yep, cheap, OTC Claritin. Again, not joking.

Another stupid thing: Everyone knows chemotherapy makes your hair fall out. Nobody mentions this includes your nose hair, which gives you a permanent runny nose. I mean, damn.

Love your movie theme illness.

TCM is the backdrop to my medical life as well.
My latest was a Charlie Chaplin flick , I knew not the name of. The weird music suited my awakening from anesthesia and a vague pukey feeling I had going on.

Thanks. St Pat’s has a good basic cable package, but it has a better WiFi setup, and their TVs have HDMI inputs. After my first couple rounds of chemotherapy, I got a Roku I could plug into the room TV and get on their WiFi, so I could watch streaming channels on Pluto TV. I watched so much Rifftrax and MST3k after that.

Since I’m on the subject: Chemotherapy is given in terms of regimens, which are sequences of multiple drugs given on a schedule. My first line chemotherapy was DA-EPOCH-R, which is the Dose-Adjusted regimen of Etoposide, Prednisolone (or Prednisone in my case, the only directly chemotherapy-related pills I had to take, and damn bitter pills at that), Oncovin (usually called Vincristine, but that doesn’t make the acronym work), Cyclophosphamide (more usually called Cytoxan, the one derived from a chemical warfare agent), and Hydroxydaunorubicin (aka Doxorubicin, which looks like red Kool-Aid and is sometimes called the red devil), and Rituximab (also called Rituxan, which is in a lot of regimens these days); that regimen is given in multiple 24-hour bags over the course of four full days, plus a bit for the Cytoxan. As a result, it requires patients to be admitted to actual hospital beds, as opposed to chilling in the big comfy chairs in the infusion center.

Plus, when I was first admitted to the hospital, I was so disabled by my cancer I could not walk up the four flights of stairs to go back to my apartment; it took the time it took to get two full rounds plus a bit (six weeks or so) for me to be able to essay the climb. I had a lot of time to watch TV.

Chemo is lousy, but remission is worth it! I’m glad you’re doing well.

I did a thread a few years ago to explain my cancer experience - I really appreciate you doing the same thing. I never had to go through chemotherapy - general anaesthesia and four acetaminophen for me. Thing is, cancer f*cks with your mind. Anyone who has been through that is my cancer sibling.

I’m in remission - 4 years now. So, sibling, I wish you well.

j