Some of you may be familiar with my friend, Aloha Aloha, from her animal advocacy postings at these boards. She also made one mention about her nephew Noah and some of his medical problems.
This thread is for Aloha Aloha’s sister Jenny and Jenny’s husband and children. Jenny’s son, Noah, was born prematurely due to an automobile accident. Subsequent to delivery he was diagnosed as having had a minor stroke in utero. Investigations are continuing to determine if the car accident was responsible for this brain injury. Noah began having seizures and exhibiting a loss of eye control. Recently, he has gone through MRI scans, corrective surgery and other diagnostic analysis in attempts to alleviate his symptoms. Certain medications have helped to ameliorate his more severe symptoms but they do persist.
As of two days ago, Jenny’s older son Ian developed an ear infection and then had a grand mal seizure last night. Jenny and her husband called 911 and were told to transport Ian to hospital immediately. They were instructed to call an ambulance if Ian’s symptoms got worse. During the car ride Ian threw up and his parents summoned an ambulance immediately thereafter. Once he was at the hospital, Ian was ventilated and monitored closely. Doctors detected an abnormality in Ian’s EEG which they attribute to feveral (?) seizure. All of this may be related to Ian’s ear infection but no one is able to positively connect the two.
Ian’s seizure lasted 45 minutes. He has never displayed any epileptic symptoms prior to this event. There is some family history of juvenile onset epilepsy which subsequently responded to medication and then subsided. Ian is off of the ventilator and awaiting a MRI to see if there is any detectable feature which might explain this sudden epileptic onset.
When Aloha Aloha phoned me tonight and asked for my good thoughts and prayers, I immediately volunteered to initiate a support thread for here at these boards. Aloha Aloha was overjoyed that I would do so and here is my request to you all:
If you are religious or a member of a church, please say a prayer for Jenny’s children. Both Noah and Ian need your best wishes right now. Ian is in more danger but the entire family could use your good will at the moment.
If your church has a prayer group, please bring up this young couple’s need for their children to be well once again. Jenny and her husband are going through complete torment while they await some sort of diagnosis of their older son.
If you are part of a prayer chain, please forward a copy of this post or make mention of it somehow. Please let everyone know how much Jenny’s family needs your support.
If you feel so inclined, please send an email or ecard to me at the email address in my profile. I will make sure to forward all of them to Jenny and her family.
If you are willing to send some good vibrations this way or post any sort of thought, please don’t hesitate to do so. Every little bit will help right now.
If you are aware of any advanced or experimental pediatric medications or treatments for juvenile onset or infant epilepsy, please post or forward this information to me at my email address. Please do not reveal anything at these boards which would make you uncomfortable. Please do email me or post in this thread anything you think might be of help.
I have done my best to closely follow Noah’s progress and can tell you what a severe strain it has been for Jenny and her husband. Ian’s illness has come as a substantial blow to their spirits and your support can help to make a big difference in their world view right now.
What I will tell you is that Aloha Aloha has made huge contributions to the welfare of children. She is personally responsible for some cities adopting special EMT kits that contain a simple color coded tape measure. This scale is held up to an injured child’s body and its measured length helps the medical crew to properly gauge which medication pack to use in treatment. This simple procedure will help to save the lives of injured children. Each EMT kit contains all of the special splints, air casts and bandages for a child of that each given age group. All of the dosages are adjusted for the body weight and instructions are tailored for that specific age range.
I am working with Aloha Aloha to find sponsors that will facilitate the training and equipping of EMTs in various regional areas to help prevent needless complications while treating juvenile accident victims.
As you can see, the current problems that Aloha Aloha’s sister and her husband are experiencing go well beyond anything she can do to help them. I am turning to all of you fantastic people for the good wishes and major mojo that our wonderful online community can generate. Please do whatever you can and know that both Aloha Aloha and myself give you our deepest thanks.
Aloha Aloha and myself will be checking in to provide you with updates as to Ian’s condition. If your child could post a few words (or you could post them for your child) that would be a big plus too. These kids and their family need a major spiritual kick start right now and I would be extremely grateful if you could take a minute to do whatever you can.
Thanking You in Advance,
Chris