Please allow me to share my current experience with a terrible fever, healthcare, and whatever comes to mind. Pardon, I’m going a little stir crazy
For background, I’m a T1D with excellent blood sugar control. My A1c is always below 7 and usually below 6.5. This will matter later.
So last Sunday afternoon I started to feel crummy, and by evening I knew I had a fever. I assumed it was the flu or covid, and went to bed. I did not hardly move on Monday. That was the typical thing: Cold, aches all over, headache, weird dreams, the usual. Monday was the worst day, but the thermometer was without battery so I never got a reading until Tuesday, when I saw 102 (38.9C). I was able to live with Ibuprofen, but not happily.
Wednesday I was still sick, but had figured out that 400mg Ibuprofen every four hours was keeping me around 100. I haven’t mentioned but one week from THAT Wednesday (this coming) I have a really important work trip. So I spoke to the doctor and she said give it one more day and see if it’s wrapping up.
On Thursday I could keep the fever to <99.5 with my 400mg Ibuprofen every 4 hours, but if I let it go then pretty quickly I would rise to at least 101.5 This concerned me for the trip, and also for how long I’d be chomping Ibuprofen
In addition, as is normal with fevers, my blood sugar was out of control. Running in the 300s and taking gallons of insulin to bring down. This gets concerning because you’re sick, you take too much, go to sleep, and you can go really low. I’m more annoyed by this, though, than anything because at least I understand it and know it will resolve once the fever does. But we’re now on day 4 and I don’t think I’ve ever had a 4 day fever in my life.
Something odd is that the first couple days I had the usual chills, joint aches, shivers, etc. Those are gone now. I just get a fever, and that makes me feel hot/cold and tired.
Friday I see the PCP and she’s her usual self. I like her, but I feel like she follows a scrpit and doesn’t listen. I really want to know if a (now) five day fever is concerning, and can I just keep eating Ibuprofen from a PEZ dispenser.
She takes a urine sample and sends me to have blood taken to look for infection. While I’m having the blood drawn she calls me and tells me I must got to the ER NOW! They found ketones in my urine. Well, sure, given the highs, but do you really think I’m in ketoacidosis? I want you to go to the ER.
I thought about not doing it, but I was worried she wouldn’t take the rest of what I was dealing with seriously. I stopped by the house to get some things and pee on a ketostick. Guess what? Negative.
So I went to the ER and told them my doc wanted me to come in because she was concerned that I was in ketoacidosis. Checked in, triaged, all that, and brought into the back. The nurse looked at me and said “You aren’t in KDA” I said “I know. But my doc insisted” Probably worth noting that I went to this ER because they’re in the same system as my PCP and they can see each others notes, results, etc.
But of course, now I wasn’t there for JUST the KDA. I was there for the fever too, and so I figured I might as well make hay. They were much more responsive to my questions and concerns. They did some more comprehensive blood tests for infection and x-rayed my chest. In the end they determined it’s a viral infection of unknown origin, and I just need to wait it out. I’m a little skeptical this is really “We don’t know, we don’t care” They talked about using Ibuprofen through my week long trip, which sounds like they aren’t optimistic that it will resolve by then.
All yesterday and ½ of today I managed to function at about an 8, but suddenly mid-afternoon the temp spiked to 101.5 and I felt pretty crappy. The secret is an extra blast of acetaminophen when that happens.
Anyone ever have anything like this? Any coping suggestions? What’s the longest fever you’ve had? How concerned would you be where I am now? Please. General discussions, suggestions, medical advice, etc welcome. I’m not getting out much.