Popsicle and I (My Dad's SCI)

I’ve heard from all too many people that the government medical care - Medicare, Medicaid, VA - is all screwed up, but then they go to private and find out it’s deny, deny, deny.

Bottom line is document EVERYTHING, have EVERYTHING explained, and do not settle for “summary descriptions” of anything. If you have a health policy ask for the FULL TEXT because that’s the only way you’ll really know what is and isn’t covered and how to appeal decisions - and don’t hesitate to appeal.

I just wanted to say that I really admire your strength Sami41 and I wanted to remind you to be kind to yourself whenever you can. That is something I myself have a hard time doing, but I am trying.

And the part about people just asking about your dad and not about you and not coming and visiting him when they could…I get it. When my husband died recently, a few people, who really don’t live very far, would constantly ask me about me and the kids when I didn’t post anything on facebook or on my blog for a few days, and they would do the same thing that you mentioned in your post. It pissed me off. I felt like I was obligated to post regular updates.

Talking about fake support, the other thing that pissed me off even more was when people would promise my daughter, without talking to me first, about coming and picking her up over the weekend to take her to the park or movies or shopping, etc. but never showed up. She would wait for the weekend to do these activities and these people wouldn’t even remember speaking to her and would continue their life with the other plans they made.

However, one friend of mine, on top of telling me that she was there for me day or night if I needed anything, also gave me a list of specific things that she could actually do for me…like laundry, dishes, watching the kids for two hours, grocery shopping…which was really helpful because I didn’t know what to ask for. Everything was overwhelming, including asking for help.

Anyway, I just wanted to say that I can somehow relate to a few aspects of your life and your struggles and I wanted to appreciate you for being brave. I wish I was closer to you so I could help out with whatever I could. ((HUGS)).

Oh and yeah…here in CA, I applied for MediCal and after two and a half months of waiting, me and my nine year old were denied and the reasons they gave me on paper were, “because you own a car” and “because you have money in your savings account”. Those savings are now gone now. I mean…dear government, I am sorry I was being responsible when I put away some savings for myself and the kids. And sorry about owning a car.
Sigh.:frowning: