Medicare is not “government help”. Medicaid is. For many of the help programs, getting assistance from a 3rd party terminates your government benefits.
They (drug co’s) would rather not hand you that poisoned chalice.
True - it’s not the same as Medicaid - but from when my father-in-law was attempting to use a discount program for one of his meds, the fact that he was on Medicare prevented him from being able to do so. That may have varied by drug company etc.
Whoa. Today I learned.
Thanks for the info and I’m sorry FIL had to go through that.
I know it is a side effect of something but I have no idea what is doing it, but my hair is growing back. My bald spots are filling in.
For a guy named “Longhair” that’s gotta be gratifying. 
Hooray for something happy in the whole evolution.
yeah, that’s normal and it’s what happened to me. I gained hair on the top of my head (where I was moderately bald) and lost it over the rest of my body. Nice side effect, but didn’t make up for the other effects. Not recommended as a treatment for baldness (tho the drug propecia for hair loss works in the same way, by lowering testosterone).
I just came back from my first quarterly check with my Urologist. My PSA level is <0.04 NG/ML
My funding came through for my Abiraterone and he just added a daily Orgovyx to replace the quarterly Eilgard injections.
Most excellent news about that PSA!! Essentially undetectable.
My next PSA check is coming up in February.
Androgen blocker has been out of my system for about 6 months so I should have more success getting some muscle mass back soon. I’m certainly advancing in my exercise program quicker than I was previously.
Hooray for both of you!! It’s a journey and you’re both making strides along it.
This is great!
My Urologist says I have eighteen months to go with the Androgen blockers and he anticipates my testosterone level will recover pretty quickly after that
I’m now two years post op. PSA is low .04 and rising. Its concerning enough that they did a Decipher genomic test on a sample from the surgery. Scores range from 0 (good/not aggressive) to 1.0 bad/aggressive). I had a .97. Next step to consult with radiology and medical oncologists. I’m hoping they say “No rush, it can wait until after the summer” but I suspect (with no real basis) they will want to start radiation and hormone treatments sooner rather then later. I knew sRT was highly likely but was hoping it was still down the road a year or two. Oh, well.
I just wanted to ask those who have been dealing with prostate cancer if any of you with detectable PSA levels post-castration have been referred to a PSMA PET scan (Pylarify or Illucix are the big brand names) and moved on to Pluvicto, which is a relatively new Lu177 PSMA treatment for metastatic prostate cancer which has been a real game changer.
I’ve worked on those drugs and I would be interested in hearing about folks’ real world experiences, since most of what I hear is marketing wank at the conferences.
Don’t shop too long. Keep in mind that dying also puts a big crimp in your sex life. Keep your priorities in order.
That post was made in 2017. Squeegee last posted here in December. I hope he’s okay.
Thanks for calling my attention to one of my “duh moments”. LOL
I hope he is, too!