Can I join? Please? I’m of legal age now! holds up birth certificate
I have scoliosis, chronic stomach problems, clinical depression (well my doctor gives me medication for it so I’m assuming it’s clinical now…), and possible OCD and SAD. Or maybe I’m just a crazy grouch. :^)
Thank you Tator. Very interesting, but kinda scary. I was pretty much convinced that it would be okay to get my plumbing yanked. I am not having any more children so even though it was hard to come to terms with I have become alright with it.
I am thinking about printing that and taking it to my doctor and see what he has to say.
I know it sounds strange that I would be more accepting to surgery than not, but I am so tired of being poked and prodded and not being sure that it is going to work. I am sure that more than one person here knows that feeling.
Ya’ know when I told my husband how I got the info on this he didn’t understand why we would all want to talk about such things. Of course he doesn’t understand my addiction to the boards, or the community we have here either.
I didn’t know what to tell him. All I could do is shake my head and think of how wonderful it is to have you all to talk to, and maybe I can help someone out in a time of need.
He’s had one migrain, and thought he was dying! I am almost legally blind in my left eye from them, but can get no rest when I have them. Really guys he’s not a putz, he just never gets sick, and has never had surgery.
the group I work with is the National Pemphigus Foundation. Pemphigus (there are various forms) is an autoimmune disease that causes the skin to attack itself, causing blisters. It can be managed, but there is no cure. I would be pleased to provide more information to anyone who is interested, or you can check the website at http://www.pemphigus.org
tatertot said:
Yeah…that sounds a lot like me.
Oddly enough, I was diagnosed as diabetic twice. I was originally diagnosed at the age of eight, but then they changed their minds and decided I wasn’t diabetic after all. I was rediagnosed as diabetic in my early 20s, and I had to go on insulin a few months before I turned 30. There is, therefore, some debate about what type of diabetic I am.
Thank you, Tater. I try not to be completely stupid about it, and so far I’m fine.
I’m hypoglycemic. (I also have a couple other stupid problems, like scoliosis, that don’t really affect my quality of life.) I doubt I would have even posted to this thread just a couple weeks ago, but recently, my hypoglycemia has been out of control. Lots of shaking and acting really bizarre. It’s like I’m watching me behave strangely, and I’m thinking, “Why on earth am I doing this? Why did I SAY that?” But I can’t seem to stop myself from acting like this.
However, I have been hypoglycemic my entire life, quite literally (pictures of me as a newborn in the hospital show IVs regulating my sugar), and it was kind of socially stigmatizing in high school and college. Not like a lot of diseases mentioned here - I thank god that this is the worse thing I have - but more in the line of “How come you walk out of class to get M&Ms? What kind of rude person are you?” Well, my high school classes were an hour and a half long, and college lectures were often longer, and if I don’t have a snack every once in a while, it becomes extremely difficult to concentrate and be a good student! So sorry if it offends you so much! I can’t fast at Yom Kippur, either, which makes me unhappy, but if I didn’t eat for 25 hours I would be beyond acting kind of weird and more in the range of losing my color vision and passing out (yes, this did happen to me once; not one of my favorite memories).
I don’t mean to put this ailment in the category of Hepatitis, diabetes, lupus, clinical depression and other life/quality of life threatening diseases. You guys have my utmost admiration. Just chipping in.
Welfy: How old are you? I ask because I had serious problems with depression as a teenager…I’m so glad you’re getting the appropriate help for it. It might not seem like it now, but it can and does get better. Right now, I’m a pretty happy chick, aside from being diseased and all. Welcome aboard, and if you would like to talk to somebody who’s been there, please e-mail or ICQ me.
Kricket: I knew that watching all those news shows would help one day! I know what you mean about tellling people about this board, none of my physically present friends understands how I can spend so much time on the internet. Hopefully, that article can help your doctor better understand your problem, even if you don’t have the uterous veins. Sheesh, and I thought getting them on your legs was bad! Let us know how you do, okay?
Myster Ecks: Next time you’re in Germany, come over to my place for a nice, diabetic friendly meal. At this point, I think I know more about diabetic nutrition than my father…he was diagnosed at 45, and teaching an old dog new tricks…Luckily he’s doing fine, he doesn’t even need medication, but I’m afraid that in a few years his body won’t be as forgiving. I’m at high risk to develop diabetes, too. We think I might have had gestational diabetes, but I wound up giving birth prematurely before they could do the final test, and after the birth I was fine.
If I might share something, my sister, who also has chronic Hep B, claims she is sick with it right now. (I say claims because there is a lot of baggage going on, too long to explain here) It’s a little scary, one because it’s my sister, and two because that could be me. We’re trying to get her insurance coverage to cover another course of treatments, but as all of you folks with pre-existing conditions know, 'taint easy. Hopefully she can qualify for medicaid as an uninsurable person. Does anyone have any other suggestions? She lives in Tennessee, if that helps.
But you want to join us, Kyla, don’t you? I can relate to what you said, when I was hospitalized for depression, I was sent to a hospital in California (from Germany) and you wouldn’t believe how many classmates and adults! had the idea that I was on a carefree vacation. Yeah, like insurance is going to cover six weeks of laying on the beach…
Dylan, I’d love to discuss better eating habits and stress reduction techniques with you! That is, I’d love to do that when I get a minute between running the kids to school and helping out with the PTA fundraiser and taking care of my ailing elderly mother and balancing the checking account before I start bouncing checks - damn, is it 7:30 already?? I’d better just run by Taco Bell on the way home…and then I’ll wind down by staying up till the wee hours on the internet instead of getting enough sleep and/or exercising.
I’m feeling pretty lucky lately, actually. I haven’t had an outbreak in quite some time, but I sure don’t know why, given how I’ve been living the past month.