The High Price of Insulin Is Killing US Citizens

Note the title. Note the “US Citizens”. That’s very important, because it’s not happening in the UK or France or Britain or Australia or really anywhere else even slightly modern/technological.

The price of insulin has skyrocketed in the last few decades, doubling between 2012 and 2016. This has resulted in people losing access to insulin, to having to choose between rent and insulin, to people suffering side effects like kidney problems, blindness, and even death because they rationed their limited supplies too much. Go to GoFundMe and type “insulin” into the search engine and you’ll get more than 7000 hits of people essentially begging for help to purchase the medicine that keeps them alive. Americans near international borders cross them to purchase insulin in another country because it’s cheaper to travel to a foreign country to pay cash on the counter than what they can get though the jacked up health “coverage” system in the US.

It’s more than sad, it’s disgusting. Of the three people who developed insulin to treat diabetes one refused any compensation and the other two sold their discovery for a mere $1 because they wanted this live-saving substance to be easily accessible to all. That was back in 1923 - insulin is NOT a new drug. Humalin has been on the market since 1982, it’s not new, either.

The drug companies keep coming out with new tweaks and new formulas to justify keeping this under patent and jacking up the costs but really, basic insulin should be made and available to all who need it as a cost that can actually be met without destitution and ruin. There is no reason this can’t be done other than greed and callous indifference to suffering, disability, and death.

I’m frustrated because I know people this is affecting. I know a young man who only uses insulin every other day, and even that supply is unsteady. I suspect he’s selling illicit drugs to get the money to pay for his insulin as his low-level retail job isn’t sufficient. By which I mean the cost of his insulin per month exceeds his GROSS income. He lives at home with his parents, who cover his food costs, he has no car, no rent, etc. His entire income is insufficient to cover the cost of the insulin necessary to keep him alive. This has been the case since he hit 26 and was no longer covered by his parents insurance. Due to untreated diabetes he is not in good physical health which makes holding down even a part time job difficult. He is slowly dying.

I’m frustrated and angry because a co-worker of mine, although in a financially better situation with a full time job and some health coverage is still stretched to the limit and terrified a day is approaching when she, too, can not afford the medicine that keeps her alive. This is a woman who works full time, has health coverage, and usually skips lunch in order to scrape together a few more pennies to buy insulin. The mental stress of only being sure she has enough to keep herself alive for a month or even as little as a week at a time is frightening to see.

A local acquaintance died from this - first she started to have kidney problems, then her vision deteriorated, then she had to have a toe amputated, then a foot… one day she was found dead in her apartment with no food in the refrigerator and no insulin. She had run out, could not get more, and simply fell into a coma and died. Her landlord found her - he’d come to ask about the rent months past due. Apparently the utilities had been shut off as well. In other words, literally every cent this woman had went to trying to buy insulin - not to shelter, not to food, not to anything but trying to get her medicine. And it wasn’t enough.

That’s just three of the people I know/knew.

This is happening every goddamned day in the US. And no one seems to give a fuck. Or at least, not anyone with the power to change things. The drug companies are charging what the market will bear, and then some. I dunno, maybe they assume people will pay ANYTHING to survive, which is true up to a point… but at some point best effort still isn’t good enough. Of course, the poor are hardest hit and least cared about, but it’s getting bad enough to affect the middle class now - and such middle class folks will soon become poor.

I’m mad as hell - but can’t do a goddamned thing about it. Oh, I suppose I could kick a few bucks to the folks I know personally - although how much that’s going to help with these people needing $1000+ a month (for the ones with insurance!) is debatable at best. I don’t report people bending/breaking laws to stay alive. No way in hell I’d admit to wrong-doing myself in a public forum but let’s just say that I put saving a life above a lot of other things I would normally adhere to. More than willing to drive people to doctor visits or hospitals even as I gnash my teeth over peoples’ bodies being destroyed by something we’ve been able to treat for nearly a century now.

Really makes me want to scream.

[del]If I won a really big lottery prize I’d set up a charity to cover these cost for people.[/del] [del]I’d buy a few Congresspeople and Senators to change the laws.[/del] [del]I’d set up a company to manufacture a generic in direct competition to the current assholes.[/del] Fuck, I don’t know.

This is how gangster capitalism works: use leverage - patient desperation and the legal system - to jack up prices. And if people die because they can’t pay, well, too bad.

I personally do not necessarily think that Medicare-for-all is necessarily the best route to reform our healthcare system, but the problem we have is that Big Medicine and the Republican party are so fucking corrupt that there will eventually be a political tidal wave against the system. Bernie-care might be the end result, whether I or anyone else thinks it’s the best alternative or not.

I’m sorry your friend(s) are suffering.

It’s not whether or not “Bernie-care” is the best system or not, it’s whether or not it’s better than the one we currently have.

On top of that - as I noted, this is killing people even WITH medical coverage. Those with Medicaid/Medicare/private insurance are affected as well - my coworker has private insurance, the person who died had Medicare. It still wasn’t enough.

You forgot Canada, which is perhaps even more relevant, because Americans are coming to Canada to buy insulin and probably breaking American laws in the process:

As the article notes, a vial of NovoLog which costs USD $300 in the US is $30 in Canada. Same with most other patented (non-generic) drugs. The blood thinner Brilinta costs about CAD $100 per 60 tablets here in Ontario, though mine are covered by the Ontario Seniors Drug Benefit so they cost me $4 (the dispensing fee). In the US it ranges from the low 400s to nearly USD $500 for the same thing.

The reason for these differences is that Canada has the Patent Medicine Prices Review Board, while the US has a Congress owned by corporate interests.

There are ways to get Humulin and Novalog pretty cheaply. The problem is that everyone (understandably) wants to take newer long-acting insulins, which cost a ton.

It’s easier to mess up and die on the other stuff. The longer acting stuff helps you live a normal life.

One of my best friends has been a T1 diabetic for 30 years. Her whole adult life has basically been working to pay for insulin. Her and her husband work their asses off with little to show for it and no way to get ahead, because of all the money she has to shell out just to stay alive.

Diabetics aren’t the only ones that have to go through this with medication but it’s such a SIMPLE thing…it’s mind-boggling that this is crippling so many Americans.

There was recently a hearing with drug companies about insulin prices. Sooooo much finger pointing between drugmakers and insurance companies and pharmacies. Drug makers are all like “we give them coupons!” They give a very small percentage of people very small coupons. It’s not helping. Colorado just passed a law that caps insulin co-pays at $100. I hope other states follow suit, because capitalism isn’t working.

She mentions it later, along with Mexico. Americans cross to both in order to buy medication which is available much more cheaply.

I agree with the outrage. These people should be in prison.

But I am a little confused as well.

I am a T1 Diabetic. Been taking insulin for 33 years. I take two types by prescription (insulin pens, very convenient), plus have a backup vial and syringes. I still pay $25 for each prescription (copays). One script last about a month, the other about 2 weeks. This is through my work insurance.

The back up vial, I buy at the Walmart here in Sacramento area. It still costs me $25 and it does NOT go through insurance. I wonder if these are vials that Walmart had before the price explosion and I will get shocked when I but my next one. I did buy my last one after this story broke.

That article shows Novolog costing about $341 per vial. How is that cheaper? The article I linked says it costs around $300, and about $30 in Canada, which is why this caravan of Americans came up here to buy it, along with other types.

As far as I know the $25 Wal Mart vials are still a thing. But no one wants to use them as their primary insulin.

Sorry, Novalin, not Novolog.

Bloody hell.

In the UK, you normally have to pay a small amount for any prescription via the NHS- £9 currently. Some classes of people are exempt from this charge, including children, people on some income related benefits, pregnant women, and insulin dependent diabetics.

Yeah, not only do you not pay for insulin here, if you need insulin you don’t pay for any medicine.

Death penalty for drunk drivers? No.

Death penalty for pedophiles? No.

Death penalty for drug company execs? Definitely yes.

If you’re on Medicare, you can apply for extra help for your prescriptions through Social Security. I only pay $8.50 a month for my insulin. Yeah, I know it’s small comfort if you don’t have Medicare. I’ve been in the same boat where I’ve had to beg my doctor for samples.

Let’s be careful with the consumer direct payment vs what the drug company is getting paid. IIRC the UK price for insulin is ~£400/year, not paid by the consumer directly.

It’s harder to make and get biosimilars approved compared to small molecule generics, hence the decreased competition.

People who are unable to manage their diabetes are less likely to be productive. So from a cold-hearted economic growth point of view, the current situation situation appears suboptimal. Never mind the, you know, suffering and death thing.

Re: Walmart, this is the 1980s “human” (synthetic, as opposed to animal) insulin. Not the modified insulin analogues first introduced by Lily in I think '96 and now off-patent for the early ones. Nobody may want to manage their blood sugar with this stuff, but pretty much everyone did when I was growing up because it was the only option. That said, I think something like <3% of diabetics use human insulin now. Re: productivity, this stuff does not maximize it.

Just to be clear, it’s not generic ‘Equate’ brand insulin. It’s Novolin.

That was actually sort of already figured out by the kind of 19th century industrialists whose workers owed their soul to the company store: those who built schools and clinics, either out of the goodness of their heart or because there was a need for a place to store little children and sick people so their mothers/relatives could go to work, got better results than those who did not.

Thing is, in most countries, this ended up in diverse variations of univeral-ish healthcare; the intent is to have universal healthcare, but the path there may still have a ways to go. In the US, it stayed as a job-related benefit and one which often deserves scare quotes. Even ACA is often treated as an addendum or bridging mechanism in between… uh. In between jobs with decent medical benefits.

That “uh” is because I just thought of that adage about how “in America, a poor person is just a temporarily embarrased millionaire” or words to that effect. Apparently the assumption behind a lot of the usual discourse is that “in America, someone without decent medical coverage is just between good policies”. :smack::smack:

Death penalty for poor people with diabetes? Apparently so.

I don’t understand this. Aren’t the benefits for Medicare standard across the US? How can one person die because they can’t afford it, and another person only pay $8.50 a month?

Why don’t they want to use them as their primary insulin?

See my post above.